Hi, just letting everyone know that our 4 year old Brady is back in the hospital. (2nd time this year, he was in back in February for 2 weeks, then on home IV for a week and the 4th week had to get a new med port in his chest) He went in yesterday for a clean-out. We are praying we can go home early next week on home IV, it is hard for me to get to a computer, we are 2 hours from home, and he doesn't like me to leave the room................. my husband leaves for a florida trip on monday morning for a week... ug 3 other kids at home, pray we can go home!!! I wish I had a lap top in Brady room, very boring!!!
They also mentioned that Brady is going cepia. (spelling?) Is this early??? He already has the pseudomouis- got at 2 months.
Thanks for listening!
Angie
Step- Mom to Brittany 13 no cf
Mom to Tyler 12 no cf, carrier
Mom to Brady 4 with cf
Mom to Taylor 3 no cf, chromosome 9q deletion 9q 21.2 q 22.1
They also mentioned that Brady is going cepia. (spelling?) Is this early??? He already has the pseudomouis- got at 2 months.
Thanks for listening!
Angie
Step- Mom to Brittany 13 no cf
Mom to Tyler 12 no cf, carrier
Mom to Brady 4 with cf
Mom to Taylor 3 no cf, chromosome 9q deletion 9q 21.2 q 22.1