MamatoAlexa
New member
First a quick update - life with two is crazy but perfect at the same time. Alexa is a great big sister and Hannah is a sweet little baby. We are all adjusting to each other and our new routines, one day at a time. All of us have our moments but nothing unexpected being that everything has changed so much for all of us.
I ask about IV's because I have not had an IV for CF related issues since I was 9 years old, yes 19 years ago. I have been on Tobi since April 1st. I am not sure if I have a funky cough going on because of the Tobi or because I need something more. I tend to have trouble with Tobi. I start taking it and feel better w/in a few days but about 2 weeks in I start coughing a lot more. Once I stop the Tobi the cough usually returns to normal. For about a week I have been having a coughing fit every morning around 4:00. Hannah finishes eating and I start coughing. So annoying. Normally I would up my exercise but right now I am 5 weeks post partum and when I try to push it exercising a bit more my reproductive system tells me to stop. BLAH! Normally I want to avoid IV's at all costs but now with two children I am feeling much more open to an IV because I cannot risk getting sick and not being here. If an IV will do the trick I will take it. I think my biggest fear is a PICC line as I have never had one, only regular IV's. Anyway, tell me about home IV's...are they hard to juggle time wise? What is the usual schedule, like how many meds and how many hours between? If you breastfed and did IV's how did that go? Would you prefer oral antibiotics or IV
I have a CF check up on Monday so we will see where I am. I do not feel awful, I could feel better and I certainly do not want to feel worse!
I ask about IV's because I have not had an IV for CF related issues since I was 9 years old, yes 19 years ago. I have been on Tobi since April 1st. I am not sure if I have a funky cough going on because of the Tobi or because I need something more. I tend to have trouble with Tobi. I start taking it and feel better w/in a few days but about 2 weeks in I start coughing a lot more. Once I stop the Tobi the cough usually returns to normal. For about a week I have been having a coughing fit every morning around 4:00. Hannah finishes eating and I start coughing. So annoying. Normally I would up my exercise but right now I am 5 weeks post partum and when I try to push it exercising a bit more my reproductive system tells me to stop. BLAH! Normally I want to avoid IV's at all costs but now with two children I am feeling much more open to an IV because I cannot risk getting sick and not being here. If an IV will do the trick I will take it. I think my biggest fear is a PICC line as I have never had one, only regular IV's. Anyway, tell me about home IV's...are they hard to juggle time wise? What is the usual schedule, like how many meds and how many hours between? If you breastfed and did IV's how did that go? Would you prefer oral antibiotics or IV
I have a CF check up on Monday so we will see where I am. I do not feel awful, I could feel better and I certainly do not want to feel worse!