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iwantmypup
New member
I was diagnosed with CF at 2 months and I just recently found out that I have "severe" bronchiectasis (I'm 15 now). It bothers me that until we changed doctors, not one person had ever told me that I have it. I actually had a bronch this morning and he told me it was one of the worst cases he's ever seen...
iwantmypup
New member
I was diagnosed with CF at 2 months and I just recently found out that I have "severe" bronchiectasis (I'm 15 now). It bothers me that until we changed doctors, not one person had ever told me that I have it. I actually had a bronch this morning and he told me it was one of the worst cases he's ever seen...
iwantmypup
New member
I was diagnosed with CF at 2 months and I just recently found out that I have "severe" bronchiectasis (I'm 15 now). It bothers me that until we changed doctors, not one person had ever told me that I have it. I actually had a bronch this morning and he told me it was one of the worst cases he's ever seen...
W
windex125
Guest
I was diag. with Bronch. at 21 and the right lung is now completly destroyed from the bronch and CF with Mac on top of it all which came around 2000 so looking at a xray of me you think wow how is this person walking around without o2 all day? I am not sure? I guess it was a grad. decay of the lung even though on meds constant once their is nesting ground for infection anything is possible. I campare it to trying to get rid of roaches and you live in a apartment complex and not everyone is agreeing to use the RAID to kill them They just keep coming back. Casue it's dark,moist lots to eat. Pat-56/CF-MAC other stuff as well
W
windex125
Guest
I was diag. with Bronch. at 21 and the right lung is now completly destroyed from the bronch and CF with Mac on top of it all which came around 2000 so looking at a xray of me you think wow how is this person walking around without o2 all day? I am not sure? I guess it was a grad. decay of the lung even though on meds constant once their is nesting ground for infection anything is possible. I campare it to trying to get rid of roaches and you live in a apartment complex and not everyone is agreeing to use the RAID to kill them They just keep coming back. Casue it's dark,moist lots to eat. Pat-56/CF-MAC other stuff as well
W
windex125
Guest
I was diag. with Bronch. at 21 and the right lung is now completly destroyed from the bronch and CF with Mac on top of it all which came around 2000 so looking at a xray of me you think wow how is this person walking around without o2 all day? I am not sure? I guess it was a grad. decay of the lung even though on meds constant once their is nesting ground for infection anything is possible. I campare it to trying to get rid of roaches and you live in a apartment complex and not everyone is agreeing to use the RAID to kill them They just keep coming back. Casue it's dark,moist lots to eat. Pat-56/CF-MAC other stuff as well
This hospital stay...6 days ago (still on home iv's), Zoe was diagnosed with Bronchiectasis.<img src="i/expressions/face-icon-small-sad.gif" border="0"> She will be 7 in April. She had a chest ct done while in. The doc went over it with me. It's not a great thing to hear when your 6 yr. old is diagnosed with it. Unfortunately, Zoe is on albuterol, hypertonic, and pulmozyme nebbed. CPT twice a day. Without fail. She has NEVER missed a treatment or CPT. The only thing they added due to this new diagnosis is Zithro MWF, to help with inflammation.
Soooo...do all cf'ers get it...when does it show up??? Who knows. Another gray area with CF. Yay.
Soooo...do all cf'ers get it...when does it show up??? Who knows. Another gray area with CF. Yay.