Here is one of ours....Dear friends and family:
We are once again getting ready for the GREAT STRIDES walk to raise money for a cure! Last year we raised $40,000 and this year we have a goal of $65,000.
We are grateful that our daughter continues to be relatively healthy. As you all know, last July, she spent 2 ½ days in the hospital and 10 days on a home IV to treat a bacteria called pseudomonas. This is something we do not want to experience again any time soon. We prayed the treatments she had to suffer through would keep her safe from pseudomonas, for a long time, but this did not happen. In February we found out that she had the bacteria again. At this time she does not have to undergo the IV treatments, but she does have to sit through an additional 20 minute breathing treatment, two times a day. This is on top of her 10 minutes of breathing treatments and 10 minutes of chest physical therapy (CPTs).
We continue to do her treatments two times a day, unless she is sick. When she is sick, we increase the treatments to three or four times a day. She also continues to take two enzymes with every meal and one with every snack. We cant wait until the day when she does not have to take the enzymes and undergo this type of therapy!
This is of course where your help comes in again this year! The walk will take place on May 11h at *** . There are a couple of ways in which you can become involved in this event. You can gather your friends, family or co-workers to form your own walking team or you can sponsor *** envelope of hope. If you can walk this year, please let us know so we can send you a sponsorship form (*** - *** - ****). If you are unable to walk but would like to sponsor her in the walk, please send us a check made payable to the Cystic Fibrosis Foundation for $25, $50, $100 or whatever you can afford (your sponsorship is tax deductible). Please mail your check in the enclosed envelope by May 5. We will greatly appreciate anything you can do to help *** and the other 30,000 children and adults living with CF. Our goal is to one day have CF stand for CURE FOUND!
Thank you for your help,
****
*CF is a genetic disease that affects approximately 30,000 children and adults in the United States. Despite the increasing life span for individuals with CF, now up to 32 years, CF remains fatal. CF is caused by a defective gene that causes the body to produce an abnormally, thick, sticky mucus, which leads to chronic and life-threatening lung infections and impaired digestion (which makes it hard for them to gain weight). Currently there is NO CURE.
Nearly 91 cents of every dollar raised at Great Strides goes towards the necessary research
