Ca and D supplements that actually work for CF?

imported_Momto2

New member
Has anyone had any luck with this? I'm not talking the "I feel better because I am taking this" kind of thing, but "I had my vitamin levels tested, they were really low, I took this particular supplement w/o changing anything else in my diet OR amount of sunlight, and when I had my blood work redone, my levels were normal or improved".<br><br>Any luck here? I've tried a lot of different stuff to get my Ca and D levels up, the only thing that seems to work are actual fruits and veggies, almond milk, and getting a moderate amount of sunlight. (no matter what I do with my diet and pills, my D levels drop in the wintertime unless I head for the Caribbean or FL). Love to find a cheaper solution than heading south. The low D messes up my immune system and I already have bone issues. Anyone had any luck with those light lamps they put out? <br>
 

Incomudrox

New member
Well from what I understand taking a low dose of D3 (when you eat) because D3 is fat soluble works well. So 2000-5000IU's. For a while CF Docs have been prescribing 50,000 IU of D2 but find out that levels don't use and it actually causes bones to become MORE fragile. Research is showing a lower dose of D3 is much more effective. As far as calcium there are few different kinds, some you can get with D3, but it's usually a small amount.
 

Incomudrox

New member
Also for what it is worth, my D level in August 2011 was 15. They were barely even able to pick it up in blood test.
 

Sandrawall

New member
Hi Incomudox,

I also using ostocalcium chew ( http://www.internationaldrugmart.com/over-the-counter-meds/ostocalcium-chewable.shtml) it is also combination of both calcium and vitamin d3

can one tablet be taken a day or should I make once a week?
 

LittleLab4CF

Super Moderator
I wish I knew that answer. A couple years ago I was screened and from my vitamin/minerals I am dead. If you subtract 1950 from the given year, you will know my age which now is 62. Most of my life I have taken a decent multivitamin. At 50, when I was diagnosed, I amped up my suspected deficiencies, also I was counselled by a nutritionalist. Man that was a waste. Even though information came from people tuned into CF, things like 50,000IU D sounds good but CF doesn't absorb like it should. It will stiffle calcium and D, but accept D3 and calcium compounds designed for osteoporosis, which in the last 3 years has really nailed me. I have my ownd A,D,E,K that is as much voodoo as science. Several 5K IU D3 with milk smoothie that has chelated calcium is putting at least an image of my bones in a CT scan. There is little point in more details since I changed my vitamin regiment I have only tested for D. It is at the low end of acceptable. Up considerably from when we failed with 50K doses. I am sure this is standard procedure but CF is at least 7,000 years old and you would think it was brain surgery. Nutrition for CFers is vexing to say the least, what CF doctor knows how effective a transdermal gel or patch absorbs compared to oral or injected vitamins, medicines or minerals? Does Creon or other enzymes digest minerals and vitamins. I have a brother who was making shakes and smoothies in the early '60s. A lot of natural supplements require additional processing CFers just can't do without enzyme pills.

Nutrition is yet another subset of expertise each CFer has to become expert in from the perspective of their personal CF presentation. How do I rebuild and reclaim 50 years of malnutrition? I doubt everyone in this forum has an easier malnutrition monster to deal with.
 

Incomudrox

New member
Originally posted by: Sandrawall Hi Incomudox, I also using ostocalcium chew ( http://www.internationaldrugmart.com/over-the-counter-meds/ostocalcium-chewable.shtml) it is also combination of both calcium and vitamin d3 can one tablet be taken a day or should I make once a week?

I recommend Doctors Best Brand, Calcium Bone Marker. It has everything you need, including your K2 for bones, Zinc, and Vitamin D3 three things CFers traditionally lack or absorb poorly . The price is great as well.
http://www.iherb.com/Doctor-s-Best-Calcium-Bone-Maker-Complex-180-Capsules/27750

Supplement Facts
Serving Size: 6 Capsules
Servings Per Container: 30 Serving
Amount per serving% Daily Value
Potassium (from potassium citrate)99 mg3%
Vitamin C (as ascorbic acid)250 mg417%
Calcium (from microcrystalline hydroxyapatite)600 mg60%
Vitamin D (as D3, cholecalciferol)1800 IU450%
Vitamin K (as K2, MK-7/menaquinone-7)80 mcg99%
Magnesium (from dimagnesium malate)300 mg75%
Zinc (from zinc monomethionine)12 mg80%
Copper (from copper gluconate)1200 mcg60%
Manganese (from manganese citrate)2 mg100%
Microcrystalline hydroxyapatite2727 mg
Boron (from boron citrate)4 mg
† Daily Value not established.

 

imported_Momto2

New member
UPDATE: What I've been doing seems to be working. All my vitamins and minerals tested well within normal range except phosphorus, which was a little high.
 
W

welshwitch

Guest
Just to chime in I started taking Vitamin D supplements (over the counter) and ever since then my Vitamin D levels are A - OK <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

imported_Momto2

New member
Thats great welshwitch! Just goes to show how individual people are. Supplements never did squat for me. Out of curiosity, what type of OTC?
 
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