Hi there,<br><br> I am 30 years old and have cystic fibrosis, i've been having really bad stomach problems for the last 5 years now.<br>I get sever bloating and distended stomach after eating meals, which is very painful at the top of my stomach/under my ribs...it gets worse the more i eat throughout the day. Also within the last 12 months i seem to be getting horrendous acid reflux where it gives me quite severe chest problems. My throat and chest feel raw, i have a really dry, irritated cough, which i also wake up during the night with, and my chest is so tight that i struggle to breathe. After eating my evening meal i cannot go out or do anything because my chest is that tight.<br><br>The doctors at my hospital are currently trying a few things, none of which seem to have helped either problem, i have been tested for coeliac disease, intolerances to foods, i have had a gastric motility test, a breath test all were negative. I have tried, domperidone, senna tablets, lactulose, and others none have helped ?!?!?<br>I recently had a course of Gastrografin and this didn't help either, i am currently awaiting a ph test to diagnose the acid reflux, and then they said they will look to do a barium test on my intestines to see how things were moving as a stomach xray showed i had constipation, even though i do go to the toilet most days ?!?!?<br><br>If i dont eat much i feel so much healthier than when i do !! Its crazy, i can breathe ok and dont get bloating if i dont eat, surely this is wrong !!<br><br>Has anyone had similar symptoms ?? Its really getting me down as i cant seem to find an answer and i am getting married in 4 months time and really dont want to have to worry about what i eat on my wedding day so that i dont look pregnant in my dress !!<br>Any help would be greatfully received <img src="i/expressions/face-icon-small-happy.gif" border="0"><br><br>Thanks Keely x<br><br>
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Can anybody help ??
- Thread starter keely3780
- Start date
Hi there,<br><br> I am 30 years old and have cystic fibrosis, i've been having really bad stomach problems for the last 5 years now.<br>I get sever bloating and distended stomach after eating meals, which is very painful at the top of my stomach/under my ribs...it gets worse the more i eat throughout the day. Also within the last 12 months i seem to be getting horrendous acid reflux where it gives me quite severe chest problems. My throat and chest feel raw, i have a really dry, irritated cough, which i also wake up during the night with, and my chest is so tight that i struggle to breathe. After eating my evening meal i cannot go out or do anything because my chest is that tight.<br><br>The doctors at my hospital are currently trying a few things, none of which seem to have helped either problem, i have been tested for coeliac disease, intolerances to foods, i have had a gastric motility test, a breath test all were negative. I have tried, domperidone, senna tablets, lactulose, and others none have helped ?!?!?<br>I recently had a course of Gastrografin and this didn't help either, i am currently awaiting a ph test to diagnose the acid reflux, and then they said they will look to do a barium test on my intestines to see how things were moving as a stomach xray showed i had constipation, even though i do go to the toilet most days ?!?!?<br><br>If i dont eat much i feel so much healthier than when i do !! Its crazy, i can breathe ok and dont get bloating if i dont eat, surely this is wrong !!<br><br>Has anyone had similar symptoms ?? Its really getting me down as i cant seem to find an answer and i am getting married in 4 months time and really dont want to have to worry about what i eat on my wedding day so that i dont look pregnant in my dress !!<br>Any help would be greatfully received <img src="i/expressions/face-icon-small-happy.gif" border="0"><br><br>Thanks Keely x<br><br>
Hi there,<br><br> I am 30 years old and have cystic fibrosis, i've been having really bad stomach problems for the last 5 years now.<br>I get sever bloating and distended stomach after eating meals, which is very painful at the top of my stomach/under my ribs...it gets worse the more i eat throughout the day. Also within the last 12 months i seem to be getting horrendous acid reflux where it gives me quite severe chest problems. My throat and chest feel raw, i have a really dry, irritated cough, which i also wake up during the night with, and my chest is so tight that i struggle to breathe. After eating my evening meal i cannot go out or do anything because my chest is that tight.<br><br>The doctors at my hospital are currently trying a few things, none of which seem to have helped either problem, i have been tested for coeliac disease, intolerances to foods, i have had a gastric motility test, a breath test all were negative. I have tried, domperidone, senna tablets, lactulose, and others none have helped ?!?!?<br>I recently had a course of Gastrografin and this didn't help either, i am currently awaiting a ph test to diagnose the acid reflux, and then they said they will look to do a barium test on my intestines to see how things were moving as a stomach xray showed i had constipation, even though i do go to the toilet most days ?!?!?<br><br>If i dont eat much i feel so much healthier than when i do !! Its crazy, i can breathe ok and dont get bloating if i dont eat, surely this is wrong !!<br><br>Has anyone had similar symptoms ?? Its really getting me down as i cant seem to find an answer and i am getting married in 4 months time and really dont want to have to worry about what i eat on my wedding day so that i dont look pregnant in my dress !!<br>Any help would be greatfully received <img src="i/expressions/face-icon-small-happy.gif" border="0"><br><br>Thanks Keely x<br><br>
I'm not a medical person, but my DD has had many of these symptoms. If you are going for a PH probe ask for an impedence probe. It gives answers for acidic and non-acidic reflux with one probe down the esophogus. After endoscopy we found out that our non-CF child with a ton of stomach pain had an overgrowth of bacteria in her stomach even with extra acid. This didn't really show up on a breath test. Her ENT suspects that her sinus drip is what keeps landing the bacteria in her stomach. The GI explained that the bacteria she had in her stomach produce gas and that caused her stomach bloating and stomach pains. She would actually wear pants a size to big to school because after eating lunch her stomach would be so bloated she would get a red line around her waste if her pants were not big enough. She did a 14 day course of Neomycin. This antibiotic I was told is used before stomach surgery. It worked really well and we continue with probiotics 2 times daily ever since. Best wishes.
I'm not a medical person, but my DD has had many of these symptoms. If you are going for a PH probe ask for an impedence probe. It gives answers for acidic and non-acidic reflux with one probe down the esophogus. After endoscopy we found out that our non-CF child with a ton of stomach pain had an overgrowth of bacteria in her stomach even with extra acid. This didn't really show up on a breath test. Her ENT suspects that her sinus drip is what keeps landing the bacteria in her stomach. The GI explained that the bacteria she had in her stomach produce gas and that caused her stomach bloating and stomach pains. She would actually wear pants a size to big to school because after eating lunch her stomach would be so bloated she would get a red line around her waste if her pants were not big enough. She did a 14 day course of Neomycin. This antibioticI was told is used before stomach surgery. It worked really well and we continue with probiotics 2 times daily ever since. Best wishes.
<BR>I'm not a medical person, but my DD has had many of these symptoms. If you are going for a PH probe ask for an impedence probe. It gives answers for acidic and non-acidic reflux with one probe down the esophogus. After endoscopy we found out that our non-CF child with a ton of stomach pain had an overgrowth of bacteria in her stomach even with extra acid. This didn't really show up on a breath test. Her ENT suspects that her sinus drip is what keeps landing the bacteria in her stomach. The GI explained that the bacteria she had in her stomach produce gas and that caused her stomach bloating and stomach pains. She would actually wear pants a size to big to school because after eating lunch her stomach would be so bloated she would get a red line around her waste if her pants were not big enough. She did a 14 day course of Neomycin. This antibioticI was told is used before stomach surgery. It worked really well and we continue with probiotics 2 times daily ever since. Best wishes.
Sixty5roses
New member
I have similar problems. Has your gallbladder been checked?<br><br>Also, I take Prevacid, double dose, first thing in the morning. I take Culturelle twice a day. And enzymes. I take Miralax once a day and Acacia fiber powder throughout the day (www.helpforibs.com) . If I do ALL these things, and am religious about it, I'm good. If I get off track, it's a pain to get back. I do have some antispasmodics from the last round to the ER so hopefully it wont' be so painful if/when I miss it next time.<br><br>Hope that helps! <br>Sydna<br>
Sixty5roses
New member
I have similar problems. Has your gallbladder been checked?<br><br>Also, I take Prevacid, double dose, first thing in the morning. I take Culturelle twice a day. And enzymes. I take Miralax once a day and Acacia fiber powder throughout the day (www.helpforibs.com) . If I do ALL these things, and am religious about it, I'm good. If I get off track, it's a pain to get back. I do have some antispasmodics from the last round to the ER so hopefully it wont' be so painful if/when I miss it next time.<br><br>Hope that helps! <br>Sydna<br>
Sixty5roses
New member
I have similar problems. Has your gallbladder been checked?<br><br>Also, I take Prevacid, double dose, first thing in the morning. I take Culturelle twice a day. And enzymes. I take Miralax once a day and Acacia fiber powder throughout the day (www.helpforibs.com) . If I do ALL these things, and am religious about it, I'm good. If I get off track, it's a pain to get back. I do have some antispasmodics from the last round to the ER so hopefully it wont' be so painful if/when I miss it next time.<br><br>Hope that helps! <br>Sydna<br>
Thanks so much for your reply <img src="i/expressions/face-icon-small-happy.gif" border="0"><br><br>How is it that the bacteria wasn't picked up from the breath test ?? I have had a endoscopy done before but it came back with nothing ?? Just said i had gas in my stomach, which i already knew !! <br>I have the same issue with my stomach, it gets severely bloated and increases in size as the day goes on, sometimes the difference is 5inches bigger when i go to bed than it was in the morning. <br>My doctors seem to have the opinion that if a test comes back negative then you dont have it, so i dont know if they would let me try Neomycin to see if it helped as the breath test was negative !?!?!<br>Does your daughter no longer have the stomach bloating now she is on probiotics ??<br>I feel like i'm trying a million things and getting nowhere !! I cant believe that nothing has worked at all !! xxxx<br>
Thanks so much for your reply <img src="i/expressions/face-icon-small-happy.gif" border="0"><br><br>How is it that the bacteria wasn't picked up from the breath test ?? I have had a endoscopy done before but it came back with nothing ?? Just said i had gas in my stomach, which i already knew !! <br>I have the same issue with my stomach, it gets severely bloated and increases in size as the day goes on, sometimes the difference is 5inches bigger when i go to bed than it was in the morning. <br>My doctors seem to have the opinion that if a test comes back negative then you dont have it, so i dont know if they would let me try Neomycin to see if it helped as the breath test was negative !?!?!<br>Does your daughter no longer have the stomach bloating now she is on probiotics ??<br>I feel like i'm trying a million things and getting nowhere !! I cant believe that nothing has worked at all !! xxxx<br>
Thanks so much for your reply <img src="i/expressions/face-icon-small-happy.gif" border="0"><br><br>How is it that the bacteria wasn't picked up from the breath test ?? I have had a endoscopy done before but it came back with nothing ?? Just said i had gas in my stomach, which i already knew !! <br>I have the same issue with my stomach, it gets severely bloated and increases in size as the day goes on, sometimes the difference is 5inches bigger when i go to bed than it was in the morning. <br>My doctors seem to have the opinion that if a test comes back negative then you dont have it, so i dont know if they would let me try Neomycin to see if it helped as the breath test was negative !?!?!<br>Does your daughter no longer have the stomach bloating now she is on probiotics ??<br>I feel like i'm trying a million things and getting nowhere !! I cant believe that nothing has worked at all !! xxxx<br>
Hey Sydna,<br><br> Boy you take loads dont you !! I take Omeprazole 20mg twice a day and ranitidine 150mg twice a day for the acid reflux, which helps a little with the chest tightness, i've never heard of the other things you take though ?? Is culterelle probiotics ??<br>My doctors have never suggested any of these things to me so i'm only taking what they've given me, i am currently awaiting a prescription for movicol ?!? which i've never had before but they said it works similar to the gastrografin that i had.<br>What is the connection with the gallbladder ??? I get liver and abdominal scans done and noones ever mentioned my gallbladder ? xxxx<br>
Hey Sydna,<br><br> Boy you take loads dont you !! I take Omeprazole 20mg twice a day and ranitidine 150mg twice a day for the acid reflux, which helps a little with the chest tightness, i've never heard of the other things you take though ?? Is culterelle probiotics ??<br>My doctors have never suggested any of these things to me so i'm only taking what they've given me, i am currently awaiting a prescription for movicol ?!? which i've never had before but they said it works similar to the gastrografin that i had.<br>What is the connection with the gallbladder ??? I get liver and abdominal scans done and noones ever mentioned my gallbladder ? xxxx<br>
Hey Sydna,<br><br> Boy you take loads dont you !! I take Omeprazole 20mg twice a day and ranitidine 150mg twice a day for the acid reflux, which helps a little with the chest tightness, i've never heard of the other things you take though ?? Is culterelle probiotics ??<br>My doctors have never suggested any of these things to me so i'm only taking what they've given me, i am currently awaiting a prescription for movicol ?!? which i've never had before but they said it works similar to the gastrografin that i had.<br>What is the connection with the gallbladder ??? I get liver and abdominal scans done and noones ever mentioned my gallbladder ? xxxx<br>
As for the breathe test being negative the first Gi read it as negative and the second said it was questionable. Then we did the endoscopy not thinking about the bacteria, but looking for something reflux damage or an anatomical problem and instead the stomach content test came back with an overgrowth of bacteria. We having an upcoming appointment for my DD with and ENT. Her pediatrician thinks maybe she has a contast sinus drip/infection and that causes the bacteria in her stomach. About 1/2way through the 14 days of Neomycin she stopped with the stomach pain and bloating. Her pants fit her all day with no red marks around her waste. Continuing with the probiotics worked really well. If we skip a day it seems to take a full week to get back on track without any pain. Also she has another sinus infection and currently is complaining about pain again. I don't know if that supports the sinus drip theory, but I guess we will find out at ENT. Best wishes.
As for the breathe test being negative the first Gi read it as negative and the second said it was questionable. Then we did the endoscopy not thinking about the bacteria, but looking for something reflux damage or an anatomical problem and instead the stomach content test came back with an overgrowth of bacteria. We having an upcoming appointment for my DD with and ENT. Her pediatrician thinks maybe she has a contast sinus drip/infection and that causes the bacteria in her stomach. About 1/2way through the 14 days of Neomycin she stopped with the stomach pain and bloating. Her pants fit her all day with no red marks around her waste. Continuing with the probiotics worked really well. If we skip a day it seems to take a full week to get back on track without any pain. Also she has another sinus infection and currently is complaining about pain again. I don't know if that supports the sinus drip theory, but I guess we will find out at ENT. Best wishes.
<BR>As for the breathe test being negative the first Gi read it as negative and the second said it was questionable. Then we did the endoscopy not thinking about the bacteria, but looking for something reflux damage or an anatomical problem and instead the stomach content test came back with an overgrowth of bacteria. We having an upcoming appointment for my DD with and ENT. Her pediatrician thinks maybe she has a contast sinus drip/infection and that causes the bacteria in her stomach. About 1/2way through the 14 days of Neomycin she stopped with the stomach pain and bloating. Her pants fit her all day with no red marks around her waste. Continuing with the probiotics worked really well. If we skip a day it seems to take a full week to get back on track without any pain. Also she has another sinus infection and currently is complaining about pain again. I don't know if that supports the sinus drip theory, but I guess we will find out at ENT. Best wishes.