Can anyone translate doctor speak?

H

hmw

New member
I have no idea what the doctor meant by 'sterilizing the lungs.' IMO, that was kind of a weird thing to say...?

I'm so sorry that Sam cultured the PA again. It's common to have to use Tobi long-term 1mo on/1mo off to try and keep it under control and I would expect this. With the approval of Cayston that could be used instead of Tobi as routine treatment.

Since he is completely asymptomatic, introducing such aggressive treatment- alternating abx so he's on something continually and another oral med now- seems a little unusual, more like how an exacerbation would be treated. But I am not an expert of any kind...
 
H

hmw

New member
I have no idea what the doctor meant by 'sterilizing the lungs.' IMO, that was kind of a weird thing to say...?

I'm so sorry that Sam cultured the PA again. It's common to have to use Tobi long-term 1mo on/1mo off to try and keep it under control and I would expect this. With the approval of Cayston that could be used instead of Tobi as routine treatment.

Since he is completely asymptomatic, introducing such aggressive treatment- alternating abx so he's on something continually and another oral med now- seems a little unusual, more like how an exacerbation would be treated. But I am not an expert of any kind...
 
H

hmw

New member
I have no idea what the doctor meant by 'sterilizing the lungs.' IMO, that was kind of a weird thing to say...?

I'm so sorry that Sam cultured the PA again. It's common to have to use Tobi long-term 1mo on/1mo off to try and keep it under control and I would expect this. With the approval of Cayston that could be used instead of Tobi as routine treatment.

Since he is completely asymptomatic, introducing such aggressive treatment- alternating abx so he's on something continually and another oral med now- seems a little unusual, more like how an exacerbation would be treated. But I am not an expert of any kind...
 
H

hmw

New member
I have no idea what the doctor meant by 'sterilizing the lungs.' IMO, that was kind of a weird thing to say...?

I'm so sorry that Sam cultured the PA again. It's common to have to use Tobi long-term 1mo on/1mo off to try and keep it under control and I would expect this. With the approval of Cayston that could be used instead of Tobi as routine treatment.

Since he is completely asymptomatic, introducing such aggressive treatment- alternating abx so he's on something continually and another oral med now- seems a little unusual, more like how an exacerbation would be treated. But I am not an expert of any kind...
 
H

hmw

New member
I have no idea what the doctor meant by 'sterilizing the lungs.' IMO, that was kind of a weird thing to say...?
<br />
<br />I'm so sorry that Sam cultured the PA again. It's common to have to use Tobi long-term 1mo on/1mo off to try and keep it under control and I would expect this. With the approval of Cayston that could be used instead of Tobi as routine treatment.
<br />
<br />Since he is completely asymptomatic, introducing such aggressive treatment- alternating abx so he's on something continually and another oral med now- seems a little unusual, more like how an exacerbation would be treated. But I am not an expert of any kind...
 
J

Jana

New member
That was kind of my thought as well, Hariett. However, maybe it's because the doctor is still hoping to eradicate it by using a more long-term treatment. I'm not familiar with how initial cultures of pseudomonas are typically handled. I was thinking that Sam was going to be taking Cipro constantly, though, so am glad to hear that is not the situation.

I've been colonized for years--it was in my first culture as a baby. Typically, aside from Tobi I only take abx for it when it's symptomatic.

Maybe you should ask the doctor what his thinking is in treating so aggressively at this point. Probably there are people on here who know a great deal more about that at the stage you are dealing with than I do, though.

I kind of assumed as far as the strange "sterilizing" comment, that the doctor actually meant the lungs could be kept sterile--that is, free of harmful bacteria--as long as they aren't damaged. I would have to agree it was a rather strange way to phrase it if my interpretation is correct!
 
J

Jana

New member
That was kind of my thought as well, Hariett. However, maybe it's because the doctor is still hoping to eradicate it by using a more long-term treatment. I'm not familiar with how initial cultures of pseudomonas are typically handled. I was thinking that Sam was going to be taking Cipro constantly, though, so am glad to hear that is not the situation.

I've been colonized for years--it was in my first culture as a baby. Typically, aside from Tobi I only take abx for it when it's symptomatic.

Maybe you should ask the doctor what his thinking is in treating so aggressively at this point. Probably there are people on here who know a great deal more about that at the stage you are dealing with than I do, though.

I kind of assumed as far as the strange "sterilizing" comment, that the doctor actually meant the lungs could be kept sterile--that is, free of harmful bacteria--as long as they aren't damaged. I would have to agree it was a rather strange way to phrase it if my interpretation is correct!
 
J

Jana

New member
That was kind of my thought as well, Hariett. However, maybe it's because the doctor is still hoping to eradicate it by using a more long-term treatment. I'm not familiar with how initial cultures of pseudomonas are typically handled. I was thinking that Sam was going to be taking Cipro constantly, though, so am glad to hear that is not the situation.

I've been colonized for years--it was in my first culture as a baby. Typically, aside from Tobi I only take abx for it when it's symptomatic.

Maybe you should ask the doctor what his thinking is in treating so aggressively at this point. Probably there are people on here who know a great deal more about that at the stage you are dealing with than I do, though.

I kind of assumed as far as the strange "sterilizing" comment, that the doctor actually meant the lungs could be kept sterile--that is, free of harmful bacteria--as long as they aren't damaged. I would have to agree it was a rather strange way to phrase it if my interpretation is correct!
 
J

Jana

New member
That was kind of my thought as well, Hariett. However, maybe it's because the doctor is still hoping to eradicate it by using a more long-term treatment. I'm not familiar with how initial cultures of pseudomonas are typically handled. I was thinking that Sam was going to be taking Cipro constantly, though, so am glad to hear that is not the situation.

I've been colonized for years--it was in my first culture as a baby. Typically, aside from Tobi I only take abx for it when it's symptomatic.

Maybe you should ask the doctor what his thinking is in treating so aggressively at this point. Probably there are people on here who know a great deal more about that at the stage you are dealing with than I do, though.

I kind of assumed as far as the strange "sterilizing" comment, that the doctor actually meant the lungs could be kept sterile--that is, free of harmful bacteria--as long as they aren't damaged. I would have to agree it was a rather strange way to phrase it if my interpretation is correct!
 
J

Jana

New member
That was kind of my thought as well, Hariett. However, maybe it's because the doctor is still hoping to eradicate it by using a more long-term treatment. I'm not familiar with how initial cultures of pseudomonas are typically handled. I was thinking that Sam was going to be taking Cipro constantly, though, so am glad to hear that is not the situation.
<br />
<br />I've been colonized for years--it was in my first culture as a baby. Typically, aside from Tobi I only take abx for it when it's symptomatic.
<br />
<br />Maybe you should ask the doctor what his thinking is in treating so aggressively at this point. Probably there are people on here who know a great deal more about that at the stage you are dealing with than I do, though.
<br />
<br />I kind of assumed as far as the strange "sterilizing" comment, that the doctor actually meant the lungs could be kept sterile--that is, free of harmful bacteria--as long as they aren't damaged. I would have to agree it was a rather strange way to phrase it if my interpretation is correct!
 
R

Ratatosk

Administrator
Staff member
DS has been on Tobi for a very long time. Every other month. When he has developed a cough in recent years, they've added oral cipro to the mix. I've never heard sterilize either, but I do know it's important to be agressive in treating pseudo while they're still very young it the hopes of preventing it from colonizing.

We start up tobi again next week. Was getting used to our little tobi vacation <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

Ratatosk

Administrator
Staff member
DS has been on Tobi for a very long time. Every other month. When he has developed a cough in recent years, they've added oral cipro to the mix. I've never heard sterilize either, but I do know it's important to be agressive in treating pseudo while they're still very young it the hopes of preventing it from colonizing.

We start up tobi again next week. Was getting used to our little tobi vacation <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

Ratatosk

Administrator
Staff member
DS has been on Tobi for a very long time. Every other month. When he has developed a cough in recent years, they've added oral cipro to the mix. I've never heard sterilize either, but I do know it's important to be agressive in treating pseudo while they're still very young it the hopes of preventing it from colonizing.

We start up tobi again next week. Was getting used to our little tobi vacation <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

Ratatosk

Administrator
Staff member
DS has been on Tobi for a very long time. Every other month. When he has developed a cough in recent years, they've added oral cipro to the mix. I've never heard sterilize either, but I do know it's important to be agressive in treating pseudo while they're still very young it the hopes of preventing it from colonizing.

We start up tobi again next week. Was getting used to our little tobi vacation <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
R

Ratatosk

Administrator
Staff member
DS has been on Tobi for a very long time. Every other month. When he has developed a cough in recent years, they've added oral cipro to the mix. I've never heard sterilize either, but I do know it's important to be agressive in treating pseudo while they're still very young it the hopes of preventing it from colonizing.
<br />
<br />We start up tobi again next week. Was getting used to our little tobi vacation <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
3

3LilFightersmom

New member
my youngest has cultured PA as well, and put on tobi. At my clinic, after 3 negative cultures, they do a bronchoscopy and if that is negative as well, you can get off tobi. He cultured positive at 4 months old, was on tobi for 6 months, It went away. A couple months ago, it came back. We went back on tobi.. and he is once again culturing negative.

It depends on if the PA is mucoid, or non mucoid. Might be something to ask your doctor about. I don't know what your stance on a bronchospcopy is... (and i'm not trying to start a debate on the pros or cons) but I just wanted you to know that since you son hasn't been colonized for years, there is a good chance you can get rid of it for the time being.
 
3

3LilFightersmom

New member
my youngest has cultured PA as well, and put on tobi. At my clinic, after 3 negative cultures, they do a bronchoscopy and if that is negative as well, you can get off tobi. He cultured positive at 4 months old, was on tobi for 6 months, It went away. A couple months ago, it came back. We went back on tobi.. and he is once again culturing negative.

It depends on if the PA is mucoid, or non mucoid. Might be something to ask your doctor about. I don't know what your stance on a bronchospcopy is... (and i'm not trying to start a debate on the pros or cons) but I just wanted you to know that since you son hasn't been colonized for years, there is a good chance you can get rid of it for the time being.
 
3

3LilFightersmom

New member
my youngest has cultured PA as well, and put on tobi. At my clinic, after 3 negative cultures, they do a bronchoscopy and if that is negative as well, you can get off tobi. He cultured positive at 4 months old, was on tobi for 6 months, It went away. A couple months ago, it came back. We went back on tobi.. and he is once again culturing negative.

It depends on if the PA is mucoid, or non mucoid. Might be something to ask your doctor about. I don't know what your stance on a bronchospcopy is... (and i'm not trying to start a debate on the pros or cons) but I just wanted you to know that since you son hasn't been colonized for years, there is a good chance you can get rid of it for the time being.
 
3

3LilFightersmom

New member
my youngest has cultured PA as well, and put on tobi. At my clinic, after 3 negative cultures, they do a bronchoscopy and if that is negative as well, you can get off tobi. He cultured positive at 4 months old, was on tobi for 6 months, It went away. A couple months ago, it came back. We went back on tobi.. and he is once again culturing negative.

It depends on if the PA is mucoid, or non mucoid. Might be something to ask your doctor about. I don't know what your stance on a bronchospcopy is... (and i'm not trying to start a debate on the pros or cons) but I just wanted you to know that since you son hasn't been colonized for years, there is a good chance you can get rid of it for the time being.
 
3

3LilFightersmom

New member
my youngest has cultured PA as well, and put on tobi. At my clinic, after 3 negative cultures, they do a bronchoscopy and if that is negative as well, you can get off tobi. He cultured positive at 4 months old, was on tobi for 6 months, It went away. A couple months ago, it came back. We went back on tobi.. and he is once again culturing negative.
<br />
<br />It depends on if the PA is mucoid, or non mucoid. Might be something to ask your doctor about. I don't know what your stance on a bronchospcopy is... (and i'm not trying to start a debate on the pros or cons) but I just wanted you to know that since you son hasn't been colonized for years, there is a good chance you can get rid of it for the time being.
 
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