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can lung function be improved
- Thread starter JoanK
- Start date
thelizardqueen
New member
If there is no scarring, or at least minimal scarring, then yes lung function can be improved. Although I have to say that exercise is key to keeping us as healthy as possible, even if its simply going for a walk everyday. Drink a lot of water, so that he is not dehydrated, do airway clearance and meds on a regular basis, has he tried Pulmozyme or Hypertonic Saline?
thelizardqueen
New member
If there is no scarring, or at least minimal scarring, then yes lung function can be improved. Although I have to say that exercise is key to keeping us as healthy as possible, even if its simply going for a walk everyday. Drink a lot of water, so that he is not dehydrated, do airway clearance and meds on a regular basis, has he tried Pulmozyme or Hypertonic Saline?
thelizardqueen
New member
If there is no scarring, or at least minimal scarring, then yes lung function can be improved. Although I have to say that exercise is key to keeping us as healthy as possible, even if its simply going for a walk everyday. Drink a lot of water, so that he is not dehydrated, do airway clearance and meds on a regular basis, has he tried Pulmozyme or Hypertonic Saline?
i agree with liz. it's going to be hard to improve lung function with out exercise and meds compliance.
but i'll tell you one thing.... and i'm not saying you're doing this...but being bugged by my mom at age 20 to exericse would give me an aversion to exercise too. every CFer deals with being sick differently and everyone has their own level of motivation. it may take him a while to get back on his feet emotionally and mentally and having someone push him will probably not help the situation.
but i'll tell you one thing.... and i'm not saying you're doing this...but being bugged by my mom at age 20 to exericse would give me an aversion to exercise too. every CFer deals with being sick differently and everyone has their own level of motivation. it may take him a while to get back on his feet emotionally and mentally and having someone push him will probably not help the situation.
i agree with liz. it's going to be hard to improve lung function with out exercise and meds compliance.
but i'll tell you one thing.... and i'm not saying you're doing this...but being bugged by my mom at age 20 to exericse would give me an aversion to exercise too. every CFer deals with being sick differently and everyone has their own level of motivation. it may take him a while to get back on his feet emotionally and mentally and having someone push him will probably not help the situation.
but i'll tell you one thing.... and i'm not saying you're doing this...but being bugged by my mom at age 20 to exericse would give me an aversion to exercise too. every CFer deals with being sick differently and everyone has their own level of motivation. it may take him a while to get back on his feet emotionally and mentally and having someone push him will probably not help the situation.
i agree with liz. it's going to be hard to improve lung function with out exercise and meds compliance.
but i'll tell you one thing.... and i'm not saying you're doing this...but being bugged by my mom at age 20 to exericse would give me an aversion to exercise too. every CFer deals with being sick differently and everyone has their own level of motivation. it may take him a while to get back on his feet emotionally and mentally and having someone push him will probably not help the situation.
but i'll tell you one thing.... and i'm not saying you're doing this...but being bugged by my mom at age 20 to exericse would give me an aversion to exercise too. every CFer deals with being sick differently and everyone has their own level of motivation. it may take him a while to get back on his feet emotionally and mentally and having someone push him will probably not help the situation.
Scarlett81
New member
It's very hard b/c on one hand if he doesn't get motivated somehow-it will eventually mean his life-on the other hand, nagging never gets anyone anywhere. Where do you find the balance? Have you had a good open talk with his care team and possibly a therapist/counselor? I was in major denial of my health problems for several years-I need a real kick in the mental butt to help me.
After therapy and 2.5 years of compliance-doing my meds and therapies religiously I'm healthy now. I got my PFTs way up-back from the mid 40s. It can be done. But it takes hard work and a good care team.
After therapy and 2.5 years of compliance-doing my meds and therapies religiously I'm healthy now. I got my PFTs way up-back from the mid 40s. It can be done. But it takes hard work and a good care team.
Scarlett81
New member
It's very hard b/c on one hand if he doesn't get motivated somehow-it will eventually mean his life-on the other hand, nagging never gets anyone anywhere. Where do you find the balance? Have you had a good open talk with his care team and possibly a therapist/counselor? I was in major denial of my health problems for several years-I need a real kick in the mental butt to help me.
After therapy and 2.5 years of compliance-doing my meds and therapies religiously I'm healthy now. I got my PFTs way up-back from the mid 40s. It can be done. But it takes hard work and a good care team.
After therapy and 2.5 years of compliance-doing my meds and therapies religiously I'm healthy now. I got my PFTs way up-back from the mid 40s. It can be done. But it takes hard work and a good care team.
Scarlett81
New member
It's very hard b/c on one hand if he doesn't get motivated somehow-it will eventually mean his life-on the other hand, nagging never gets anyone anywhere. Where do you find the balance? Have you had a good open talk with his care team and possibly a therapist/counselor? I was in major denial of my health problems for several years-I need a real kick in the mental butt to help me.
After therapy and 2.5 years of compliance-doing my meds and therapies religiously I'm healthy now. I got my PFTs way up-back from the mid 40s. It can be done. But it takes hard work and a good care team.
After therapy and 2.5 years of compliance-doing my meds and therapies religiously I'm healthy now. I got my PFTs way up-back from the mid 40s. It can be done. But it takes hard work and a good care team.
I've been down to 24% and been sent for evaluation for lung transplant, the look on the doctors faces when they would come to talk to me about my status after seeing my results from tests and xrays was my wake up call since then I've gotten up to 40% and am out of the tranplant ramge, and have gained some good solid muscle weight that baffled them my last visit which was 2 years after the one that they were freaking out about. It was alot of hard work, I got into the gym and took up wieght lifting cause I just HATE cardio (yes I know we really need to do cardio) and also was tired of my scrawny body. I was weak as ever, people were looking at me in there as if to say "what the hell is this guy doing! he needs to stay in bed all day and eat lots of ice cream before coming here!" but I didn't care I knew what I had to do. I remember strugling to do just the bar on the bench press so I would use the machines, that was how weak I was! And all through workouts I'd be caughing to bits. Now I am benching 1 1/2 times my body weight on a regular basis, sometimes more! And I have a nice muscular body now, that's the motivation.
And I still belive I can improve more on my lung function cause I'm not very good or consistent with my airway clearance, its just hard to fit everything into one day, I work fulltime and sometimes overtime too, so I'm currently trying to get funding for a vest to help me with the therapy.
Anyway enough rambling from me now, I do believe and have proven that it's possible to improve your lung function, but it's not easy and take takes alot of hard work and discipline.
And I still belive I can improve more on my lung function cause I'm not very good or consistent with my airway clearance, its just hard to fit everything into one day, I work fulltime and sometimes overtime too, so I'm currently trying to get funding for a vest to help me with the therapy.
Anyway enough rambling from me now, I do believe and have proven that it's possible to improve your lung function, but it's not easy and take takes alot of hard work and discipline.
I've been down to 24% and been sent for evaluation for lung transplant, the look on the doctors faces when they would come to talk to me about my status after seeing my results from tests and xrays was my wake up call since then I've gotten up to 40% and am out of the tranplant ramge, and have gained some good solid muscle weight that baffled them my last visit which was 2 years after the one that they were freaking out about. It was alot of hard work, I got into the gym and took up wieght lifting cause I just HATE cardio (yes I know we really need to do cardio) and also was tired of my scrawny body. I was weak as ever, people were looking at me in there as if to say "what the hell is this guy doing! he needs to stay in bed all day and eat lots of ice cream before coming here!" but I didn't care I knew what I had to do. I remember strugling to do just the bar on the bench press so I would use the machines, that was how weak I was! And all through workouts I'd be caughing to bits. Now I am benching 1 1/2 times my body weight on a regular basis, sometimes more! And I have a nice muscular body now, that's the motivation.
And I still belive I can improve more on my lung function cause I'm not very good or consistent with my airway clearance, its just hard to fit everything into one day, I work fulltime and sometimes overtime too, so I'm currently trying to get funding for a vest to help me with the therapy.
Anyway enough rambling from me now, I do believe and have proven that it's possible to improve your lung function, but it's not easy and take takes alot of hard work and discipline.
And I still belive I can improve more on my lung function cause I'm not very good or consistent with my airway clearance, its just hard to fit everything into one day, I work fulltime and sometimes overtime too, so I'm currently trying to get funding for a vest to help me with the therapy.
Anyway enough rambling from me now, I do believe and have proven that it's possible to improve your lung function, but it's not easy and take takes alot of hard work and discipline.
I've been down to 24% and been sent for evaluation for lung transplant, the look on the doctors faces when they would come to talk to me about my status after seeing my results from tests and xrays was my wake up call since then I've gotten up to 40% and am out of the tranplant ramge, and have gained some good solid muscle weight that baffled them my last visit which was 2 years after the one that they were freaking out about. It was alot of hard work, I got into the gym and took up wieght lifting cause I just HATE cardio (yes I know we really need to do cardio) and also was tired of my scrawny body. I was weak as ever, people were looking at me in there as if to say "what the hell is this guy doing! he needs to stay in bed all day and eat lots of ice cream before coming here!" but I didn't care I knew what I had to do. I remember strugling to do just the bar on the bench press so I would use the machines, that was how weak I was! And all through workouts I'd be caughing to bits. Now I am benching 1 1/2 times my body weight on a regular basis, sometimes more! And I have a nice muscular body now, that's the motivation.
And I still belive I can improve more on my lung function cause I'm not very good or consistent with my airway clearance, its just hard to fit everything into one day, I work fulltime and sometimes overtime too, so I'm currently trying to get funding for a vest to help me with the therapy.
Anyway enough rambling from me now, I do believe and have proven that it's possible to improve your lung function, but it's not easy and take takes alot of hard work and discipline.
And I still belive I can improve more on my lung function cause I'm not very good or consistent with my airway clearance, its just hard to fit everything into one day, I work fulltime and sometimes overtime too, so I'm currently trying to get funding for a vest to help me with the therapy.
Anyway enough rambling from me now, I do believe and have proven that it's possible to improve your lung function, but it's not easy and take takes alot of hard work and discipline.
princessjdc
New member
I agree with everyone on here, I have brought my pfts up from 65% to 89% and will see if it has risen more next thursday at my apoinntment. I knew I had very little scarring so I also knew that I could blow alot more out then what I was doing, and thanks to Hypertonic Saline (I praise this stuff) I was able to get them higher. My motivation was my first picc line thats when I started to do my meds/treatments all the time and then my second motivation was when my doc told me that my pft was 65%.
princessjdc
New member
I agree with everyone on here, I have brought my pfts up from 65% to 89% and will see if it has risen more next thursday at my apoinntment. I knew I had very little scarring so I also knew that I could blow alot more out then what I was doing, and thanks to Hypertonic Saline (I praise this stuff) I was able to get them higher. My motivation was my first picc line thats when I started to do my meds/treatments all the time and then my second motivation was when my doc told me that my pft was 65%.
princessjdc
New member
I agree with everyone on here, I have brought my pfts up from 65% to 89% and will see if it has risen more next thursday at my apoinntment. I knew I had very little scarring so I also knew that I could blow alot more out then what I was doing, and thanks to Hypertonic Saline (I praise this stuff) I was able to get them higher. My motivation was my first picc line thats when I started to do my meds/treatments all the time and then my second motivation was when my doc told me that my pft was 65%.
stickylungshehe
New member
My Lung function has gone up from 48% to 76%
stickylungshehe
New member
My Lung function has gone up from 48% to 76%