can someone help with these questions?

[mammabettybear5]

hi my name is betty i have 5 children my 2 oldest boys have cf,shawn was diagnosed at 2 months of age he is now 12,he has been very sick all his life usually in the hospitol with pick twice a year ,and last year we moved from nh to ark for the better climate for him,its been relly good for him except i dont care for his new doctor,when the boys were doing their pfts i just happened to look in shawns folder and saw some things in his lungs that conserened me ,,relly scared the *** out of me.he has Chronic S. aureas,,H.parainfluenzae,,P. aeruginosa and B. gladiolo pulmanary infection,when i asked his doctor he didnt seem worried about it,but everything i find on the internet is very scary do any of you have these things or your children and do you know what i can espect in the future for him hes so small now and doesnt gain weight , im relly scared now and could relly use some advice from you guys thanks so much

 

[NoDayButToday]

Well S Aereas is simple staph I believe. P Aeruginosa is the most common strain of pseudomonas (I think thats the common one), so many CFers have it and while it obviously needs treatment and monitoring, it isn't a death sentence or anything. The other two you mentioned I haven't heard of. If you don't like this doctor, why can't you switch?

 

[anonymous]

coll, you are right S. Aeraus is Staph that is common in a lot of CFers and P. Aeruginosa is Pseudomonas that almost all CFers I have ever encountered culture. As far as the other two, I am not too familiar with them-maybe somebody else on this board can shed some light on them but have you considered switching CF doctors? You have to be with a doctor that makes you comfortable, try www.cff.org to se if you can find another center in you area.


Julie (wife to Mark 24w/CF)

 

[mammabettybear5]

thanks so much for the info i just called the cf foundation but the next closest cf center is 200 miles away so im calling our hospitol to see if theres a nother doctor we can see again thanks <img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[seasprite]

H. parainfluenzae is short for Hemophilus parainfluenzae and B. gladioli is Burkholderia gladioli, which is not the same as cepacia, though obviously related. I don't think there is any clear picture yet of what effect colonization by these bacteria might have on the long-term course of cf.

Bambi, mom of Jordan, 16 w cf

 

[HollyCatheryn]

I know that when I am cultured I usually show up more than a dozen strains of various bacteria. Some are cousins of others that I have. But, even with all of these bacteria, I am pretty healthy (FEV1 - mid-90's) and am resistant to few antibiotics. I'd do a web search on those particular bacteria and their relationship to CF. There are many bacteria that people without CF breathe in and out every day and are completely unaffected by. People with CF breathe in all the same stuff, but lots of it doesn't get exhaled the same way. Quite a few of these bugs are fairly harmless and are just a fact of life in the world.