Can we get better or there's no way back?

M

mom2lillian

New member
I re-iterate what has been said

Actual DAMAGE can't be reversed however there is NO WAY to tell what % is damage and what % is mucous, plugs, inflammation etc until you put in some time

Excercise, adherence to therapies, nutrition, and the like can go a LONG way to improving your lungs a huge % when it may be believed it is damage when in fact it is inflammation and sputum. If you are doing everythign perfectly and there is not change over course of a long time then it may be safe to assume that lung function is lost otherwise there is hope.

When I was dx my #'s were in 60's. I immediately started proper adherence to <u>all therapeis </u>and by years end I was at 100% lung function and at dx that was not though possible since it was ASSUMED it was DAMAGE from 20+years of no treatments. Of course I still have bronchiectasis damage but functions are great. I realize this is not normal and I have a 'mild' case but I am only using it as an example to show that you just can't ASSUME it's damage and give up.
 
M

mom2lillian

New member
I re-iterate what has been said

Actual DAMAGE can't be reversed however there is NO WAY to tell what % is damage and what % is mucous, plugs, inflammation etc until you put in some time

Excercise, adherence to therapies, nutrition, and the like can go a LONG way to improving your lungs a huge % when it may be believed it is damage when in fact it is inflammation and sputum. If you are doing everythign perfectly and there is not change over course of a long time then it may be safe to assume that lung function is lost otherwise there is hope.

When I was dx my #'s were in 60's. I immediately started proper adherence to <u>all therapeis </u>and by years end I was at 100% lung function and at dx that was not though possible since it was ASSUMED it was DAMAGE from 20+years of no treatments. Of course I still have bronchiectasis damage but functions are great. I realize this is not normal and I have a 'mild' case but I am only using it as an example to show that you just can't ASSUME it's damage and give up.
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ender</b></i>

I am a firm believer that if you try hard enough, to a certain point, you can get better.</end quote></div>


those thousands of people who have died of CF much sure have been slackers....
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ender</b></i>

I am a firm believer that if you try hard enough, to a certain point, you can get better.</end quote></div>


those thousands of people who have died of CF much sure have been slackers....
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ender</b></i>

I am a firm believer that if you try hard enough, to a certain point, you can get better.</end quote></div>


those thousands of people who have died of CF much sure have been slackers....
 
C

Chaggie

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ender</b></i>



I am a firm believer that if you try hard enough, to a certain point, you can get better.</end quote></div>





those thousands of people who have died of CF much sure have been slackers....</end quote></div>

That's what the "to a certain point" qualifyer is for.
 
C

Chaggie

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ender</b></i>



I am a firm believer that if you try hard enough, to a certain point, you can get better.</end quote></div>





those thousands of people who have died of CF much sure have been slackers....</end quote></div>

That's what the "to a certain point" qualifyer is for.
 
C

Chaggie

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ender</b></i>



I am a firm believer that if you try hard enough, to a certain point, you can get better.</end quote></div>





those thousands of people who have died of CF much sure have been slackers....</end quote></div>

That's what the "to a certain point" qualifyer is for.
 
M

Markus

Guest
Once there is scar tissue there is not much you can do but with mucus plugs a good diet and exercise can help some. Last year my FEV1 was at 61% and now its back up to 75% even after my last few trips to the ER and the blood. I was happy to see it was up.
 
M

Markus

Guest
Once there is scar tissue there is not much you can do but with mucus plugs a good diet and exercise can help some. Last year my FEV1 was at 61% and now its back up to 75% even after my last few trips to the ER and the blood. I was happy to see it was up.
 
M

Markus

Guest
Once there is scar tissue there is not much you can do but with mucus plugs a good diet and exercise can help some. Last year my FEV1 was at 61% and now its back up to 75% even after my last few trips to the ER and the blood. I was happy to see it was up.
 
L

Landy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ender</b></i>

Why do i even bother here anymore...</end quote></div>

Please stick around.
Sometimes I think she just tries to get a rise out of people, like I did back in middle school.....or she is terribly pessimistic. And, of course I am in the denial group somehow.
Don't let it bother you. It's really too bad that we can't speak freely here with out someone analyzing every single word we say, looking for something, anything to dispute.<img src="i/expressions/face-icon-small-disgusted.gif" border="0">

Have a nice day<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

Landy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ender</b></i>

Why do i even bother here anymore...</end quote></div>

Please stick around.
Sometimes I think she just tries to get a rise out of people, like I did back in middle school.....or she is terribly pessimistic. And, of course I am in the denial group somehow.
Don't let it bother you. It's really too bad that we can't speak freely here with out someone analyzing every single word we say, looking for something, anything to dispute.<img src="i/expressions/face-icon-small-disgusted.gif" border="0">

Have a nice day<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

Landy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ender</b></i>

Why do i even bother here anymore...</end quote></div>

Please stick around.
Sometimes I think she just tries to get a rise out of people, like I did back in middle school.....or she is terribly pessimistic. And, of course I am in the denial group somehow.
Don't let it bother you. It's really too bad that we can't speak freely here with out someone analyzing every single word we say, looking for something, anything to dispute.<img src="i/expressions/face-icon-small-disgusted.gif" border="0">

Have a nice day<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
K

Kelli

New member
Hey Vera,
I did't read all of the posts, but for me I raised my PFT from a 39 to a 59% with exercise. I go to the gym 3 times a week and it literally does make me feel a ton better. So if that is an option for you, I'd say go for it!
Kelli
29
 
K

Kelli

New member
Hey Vera,
I did't read all of the posts, but for me I raised my PFT from a 39 to a 59% with exercise. I go to the gym 3 times a week and it literally does make me feel a ton better. So if that is an option for you, I'd say go for it!
Kelli
29
 
K

Kelli

New member
Hey Vera,
I did't read all of the posts, but for me I raised my PFT from a 39 to a 59% with exercise. I go to the gym 3 times a week and it literally does make me feel a ton better. So if that is an option for you, I'd say go for it!
Kelli
29
 
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