Can we select who our son sees at CF Clinic?

[SARAHSARAH253]

Hi there,
Well a year ago our insurance company started refusing to pay for our sons dietician, and social worker. We decided back then we would see the social worker once a year, and continue to pay fordietician every time we came to clinic. At our last CF appointment my husband took our son. Which is a change, because I normally take him in. At that appointment my sons social worker added herself back on for the visit. Today I got the reminder call for Clinic next week, and I asked who was all scheduled to see my son. They listed everyone (Including the social worker), and I reminded them we don't need to see the social worker at this time. I just wanted to see if there are others that refuse part of the team. Our social worker freaks my son out. He goes on high alert and has been afraid of her. It's been the same thing every time since he was a baby, he starts crying when she enters the room. (I know it's not nice) Last visit was better because she brought him a new toy. I don't gain anything from her. She always tells me "Your income is to high, and here are some webstites fore support". That's it!! Plus her comment to me when he was a baby "Are you suffering from a post-partom". OMG, I have never wanted to slap someone so bad in my life. I thought you’re the social worker. Have you know compassion for what were going through. Hard to explain I was furious. Is reasonable to only ask to see her once a year?

Thanks,
Sarah

 

[SARAHSARAH253]

Hi there,
Well a year ago our insurance company started refusing to pay for our sons dietician, and social worker. We decided back then we would see the social worker once a year, and continue to pay fordietician every time we came to clinic. At our last CF appointment my husband took our son. Which is a change, because I normally take him in. At that appointment my sons social worker added herself back on for the visit. Today I got the reminder call for Clinic next week, and I asked who was all scheduled to see my son. They listed everyone (Including the social worker), and I reminded them we don't need to see the social worker at this time. I just wanted to see if there are others that refuse part of the team. Our social worker freaks my son out. He goes on high alert and has been afraid of her. It's been the same thing every time since he was a baby, he starts crying when she enters the room. (I know it's not nice) Last visit was better because she brought him a new toy. I don't gain anything from her. She always tells me "Your income is to high, and here are some webstites fore support". That's it!! Plus her comment to me when he was a baby "Are you suffering from a post-partom". OMG, I have never wanted to slap someone so bad in my life. I thought you’re the social worker. Have you know compassion for what were going through. Hard to explain I was furious. Is reasonable to only ask to see her once a year?

Thanks,
Sarah

 

[Anomie]

We only saw our social worker in the hospital after our daughter's diagnosis. Now he only shows up at clinic appointments if we request his presence like to ask about SSI. We don't like our dietician either. She makes rude comments to us and gives real ambiguous answers to all of our questions. I would think you'd be well within your right to insist that he doesn't show up at appointments considering he's not a medical doctor and not vital to your child's care.

 

[Anomie]

We only saw our social worker in the hospital after our daughter's diagnosis. Now he only shows up at clinic appointments if we request his presence like to ask about SSI. We don't like our dietician either. She makes rude comments to us and gives real ambiguous answers to all of our questions. I would think you'd be well within your right to insist that he doesn't show up at appointments considering he's not a medical doctor and not vital to your child's care.

 

[ehtansky21]

Sounds like we have similar social workers, Sarah <img src="i/expressions/face-icon-small-smile.gif" border="0"> Yes, we have opted out of seeing social workers. I usually just tell our nurse, who we would like to see.

blessings,
missa

 

[ehtansky21]

Sounds like we have similar social workers, Sarah <img src="i/expressions/face-icon-small-smile.gif" border="0"> Yes, we have opted out of seeing social workers. I usually just tell our nurse, who we would like to see.

blessings,
missa

 

[Mommafirst]

You have the right to refuse if you are paying for it and you don't feel its worth it. I LOVE our social worker. She has a great rapport with my daughter and I often request her to come when I know its going to be a tough visit for us. I'm sorry your social worker isn't helpful, what a shame.

 

[Mommafirst]

You have the right to refuse if you are paying for it and you don't feel its worth it. I LOVE our social worker. She has a great rapport with my daughter and I often request her to come when I know its going to be a tough visit for us. I'm sorry your social worker isn't helpful, what a shame.

 

[Printer]

Everyone above has already said it, You only need to see the people that you want to see. Write to the Clinic and state that you do not wish to see the Social Worker and should he come into a visit he will do so without being paid,

Bill

 

[Printer]

Everyone above has already said it, You only need to see the people that you want to see. Write to the Clinic and state that you do not wish to see the Social Worker and should he come into a visit he will do so without being paid,

Bill

 

[Ratatosk]

I swear our old clinic was the same. Except We disliked the sw. She always was condescending and asked if ds was developmentally delayed. She also told us we earned too much money. We found out after ds was 3 that cfers are covered under medical assistance regardless of income to age 3. The dietician always told us we didn't need to feed him such a high calories diet, but was the only thing keeping him above the 50th percentile

 

[Ratatosk]

I swear our old clinic was the same. Except We disliked the sw. She always was condescending and asked if ds was developmentally delayed. She also told us we earned too much money. We found out after ds was 3 that cfers are covered under medical assistance regardless of income to age 3. The dietician always told us we didn't need to feed him such a high calories diet, but was the only thing keeping him above the 50th percentile

 

[hmw]

Fortunately the entire team is covered under our insurance at this time. The social worker is covered for clinic visits and there is no additional charge if we see her outside of clinic either, so i am not sure how pulmonary sets up billing for her specifically. Our social worker is very good, though, and she has been very helpful and I wish all the kids could have someone as helpful as her. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hate hearing about some of them out there- why work at a children's hospital if you clearly have no rapport with children or empathy for med needs parents?!

For is- our worker's role for EMILY is very clear at this point. They are there for us parents, but even if at this time there isn't much they can do for us, it's good to maintain a relationship with them because the child with the illness is going to have issues as they grow that they can use the help with and it's easier to get that help from a familiar face.

The nutritionist- I really liked the first one we had. At that time Emily was in growth failure and we really were trying one thing after another to get her growing, and then she had the tube placed etc. So we needed good support. We have had a new one for a while and I could take her or leave her. She is ok. I am sure she could be more supportive but the need hasn't been there too much. Our pt has been fantastic, I have very much enjoyed her taking a more active role in clinic visits. She works with Emily on her huffing and some breathing techniques they want her working on, practices Acapella with her, and works with us when Emily has been really sick to tweak treatment sessions for most benefit. The nurse we see the least at visits but talk to a lot over the phone, she helps with insurance issues, HHC stuff, referrals to other specialists and getting appts for us if needed, and is the one we talk to the most when Emily is sick. Overall, it's been as Emily has grown and her cf has progressed that we have come to NEED all the individual team members more.

Something I do need to say, based on an extremely painful first year of motherhood that may have been different had anyone EVER said anything to me- i am really glad, even if her bedside manner was less than perfect, that the social worker DID ask about postpartum depression, even though it pissed you off. It affects a staggering percentage of mothers, but still has a stigma about it. It's a difficult topic at best given far too little attention. in the presence of chronic illness it is even more common and IMO it would be irresponsible not to ask about.

 

[hmw]

Fortunately the entire team is covered under our insurance at this time. The social worker is covered for clinic visits and there is no additional charge if we see her outside of clinic either, so i am not sure how pulmonary sets up billing for her specifically. Our social worker is very good, though, and she has been very helpful and I wish all the kids could have someone as helpful as her. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I hate hearing about some of them out there- why work at a children's hospital if you clearly have no rapport with children or empathy for med needs parents?!

For is- our worker's role for EMILY is very clear at this point. They are there for us parents, but even if at this time there isn't much they can do for us, it's good to maintain a relationship with them because the child with the illness is going to have issues as they grow that they can use the help with and it's easier to get that help from a familiar face.

The nutritionist- I really liked the first one we had. At that time Emily was in growth failure and we really were trying one thing after another to get her growing, and then she had the tube placed etc. So we needed good support. We have had a new one for a while and I could take her or leave her. She is ok. I am sure she could be more supportive but the need hasn't been there too much. Our pt has been fantastic, I have very much enjoyed her taking a more active role in clinic visits. She works with Emily on her huffing and some breathing techniques they want her working on, practices Acapella with her, and works with us when Emily has been really sick to tweak treatment sessions for most benefit. The nurse we see the least at visits but talk to a lot over the phone, she helps with insurance issues, HHC stuff, referrals to other specialists and getting appts for us if needed, and is the one we talk to the most when Emily is sick. Overall, it's been as Emily has grown and her cf has progressed that we have come to NEED all the individual team members more.

Something I do need to say, based on an extremely painful first year of motherhood that may have been different had anyone EVER said anything to me- i am really glad, even if her bedside manner was less than perfect, that the social worker DID ask about postpartum depression, even though it pissed you off. It affects a staggering percentage of mothers, but still has a stigma about it. It's a difficult topic at best given far too little attention. in the presence of chronic illness it is even more common and IMO it would be irresponsible not to ask about.