can you help?

nikaepink

New member
oops, those last two posts were me, forgot to sign in- sorry! and im going to be a nurse- oh dear!
and i just found out that port glasgow is indeed not too far from galsgow, and again- oops, sorry!
 

julie

New member
I'd be happy to answer questions for you. I'm the wife of a wonderful man who happens to have CF. But before I email you, I wanted to find out if you have a list of specific questions and also if you are looking for family members of CFers of a certain age group (a parent vice a wife, girlfriend, boyfriend....).
 

julie

New member
I'd be happy to answer questions for you. I'm the wife of a wonderful man who happens to have CF. But before I email you, I wanted to find out if you have a list of specific questions and also if you are looking for family members of CFers of a certain age group (a parent vice a wife, girlfriend, boyfriend....).
 

julie

New member
I'd be happy to answer questions for you. I'm the wife of a wonderful man who happens to have CF. But before I email you, I wanted to find out if you have a list of specific questions and also if you are looking for family members of CFers of a certain age group (a parent vice a wife, girlfriend, boyfriend....).
 

anonymous

New member
hi there, julie, thanks for getting in touch, i am not looking for a specific age group or family memeber, i would like to know how it affects all members of the family, i had a friend who suffered from cystic fibrosis and i am going to speak to his girlfriend and also a family friend who has two daughters with cf, i am just really looking to find out if there are points which keep arising about how family members cope, things like when it was diagnosed (if you knew him then) and how u feel about the treatment he is recieving, how is it for you? do you find it difficult to cope at times or even accept it at times? and also i would like to know about support services available, do you use them? have they helped? and is there any support needs you or your husband feel that are still unmet or could be improved?
sorry i realise its a lot of questions but just answer what you can.
i appreciate it
Nikae x
 

anonymous

New member
hi there, julie, thanks for getting in touch, i am not looking for a specific age group or family memeber, i would like to know how it affects all members of the family, i had a friend who suffered from cystic fibrosis and i am going to speak to his girlfriend and also a family friend who has two daughters with cf, i am just really looking to find out if there are points which keep arising about how family members cope, things like when it was diagnosed (if you knew him then) and how u feel about the treatment he is recieving, how is it for you? do you find it difficult to cope at times or even accept it at times? and also i would like to know about support services available, do you use them? have they helped? and is there any support needs you or your husband feel that are still unmet or could be improved?
sorry i realise its a lot of questions but just answer what you can.
i appreciate it
Nikae x
 

anonymous

New member
hi there, julie, thanks for getting in touch, i am not looking for a specific age group or family memeber, i would like to know how it affects all members of the family, i had a friend who suffered from cystic fibrosis and i am going to speak to his girlfriend and also a family friend who has two daughters with cf, i am just really looking to find out if there are points which keep arising about how family members cope, things like when it was diagnosed (if you knew him then) and how u feel about the treatment he is recieving, how is it for you? do you find it difficult to cope at times or even accept it at times? and also i would like to know about support services available, do you use them? have they helped? and is there any support needs you or your husband feel that are still unmet or could be improved?
sorry i realise its a lot of questions but just answer what you can.
i appreciate it
Nikae x
 

nikaepink

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

hi there, julie, thanks for getting in touch, i am not looking for a specific age group or family memeber, i would like to know how it affects all members of the family, i had a friend who suffered from cystic fibrosis and i am going to speak to his girlfriend and also a family friend who has two daughters with cf, i am just really looking to find out if there are points which keep arising about how family members cope, things like when it was diagnosed (if you knew him then) and how u feel about the treatment he is recieving, how is it for you? do you find it difficult to cope at times or even accept it at times? and also i would like to know about support services available, do you use them? have they helped? and is there any support needs you or your husband feel that are still unmet or could be improved?

sorry i realise its a lot of questions but just answer what you can.

i appreciate it

Nikae x</end quote></div>
sorry guys, forgot to sign in AGAIN. i'll get the hang of it eventually
 

nikaepink

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

hi there, julie, thanks for getting in touch, i am not looking for a specific age group or family memeber, i would like to know how it affects all members of the family, i had a friend who suffered from cystic fibrosis and i am going to speak to his girlfriend and also a family friend who has two daughters with cf, i am just really looking to find out if there are points which keep arising about how family members cope, things like when it was diagnosed (if you knew him then) and how u feel about the treatment he is recieving, how is it for you? do you find it difficult to cope at times or even accept it at times? and also i would like to know about support services available, do you use them? have they helped? and is there any support needs you or your husband feel that are still unmet or could be improved?

sorry i realise its a lot of questions but just answer what you can.

i appreciate it

Nikae x</end quote></div>
sorry guys, forgot to sign in AGAIN. i'll get the hang of it eventually
 

nikaepink

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

hi there, julie, thanks for getting in touch, i am not looking for a specific age group or family memeber, i would like to know how it affects all members of the family, i had a friend who suffered from cystic fibrosis and i am going to speak to his girlfriend and also a family friend who has two daughters with cf, i am just really looking to find out if there are points which keep arising about how family members cope, things like when it was diagnosed (if you knew him then) and how u feel about the treatment he is recieving, how is it for you? do you find it difficult to cope at times or even accept it at times? and also i would like to know about support services available, do you use them? have they helped? and is there any support needs you or your husband feel that are still unmet or could be improved?

sorry i realise its a lot of questions but just answer what you can.

i appreciate it

Nikae x</end quote></div>
sorry guys, forgot to sign in AGAIN. i'll get the hang of it eventually
 

dyza

New member
Hi again just sent you that e-mail ipromised also another one containing a letter from the butterfly trust. Hope you recieved it as I really dont know what I am doing on a computer, its kind of trial and error with me lol<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

dyza

New member
Hi again just sent you that e-mail ipromised also another one containing a letter from the butterfly trust. Hope you recieved it as I really dont know what I am doing on a computer, its kind of trial and error with me lol<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

dyza

New member
Hi again just sent you that e-mail ipromised also another one containing a letter from the butterfly trust. Hope you recieved it as I really dont know what I am doing on a computer, its kind of trial and error with me lol<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

julie

New member
Those are some good questions you posted. I'll send you an email answering some of them today/this evening.
 

julie

New member
Those are some good questions you posted. I'll send you an email answering some of them today/this evening.
 

julie

New member
Those are some good questions you posted. I'll send you an email answering some of them today/this evening.
 

nikaepink

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dyza</b></i>

Hi again just sent you that e-mail ipromised also another one containing a letter from the butterfly trust. Hope you recieved it as I really dont know what I am doing on a computer, its kind of trial and error with me lol<img src="i/expressions/face-icon-small-happy.gif" border="0"></end quote></div>

hey dyza, well in that case you did very well, lol. thanks a million!
 
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