Hi !
For those of you who have used or are using Cayston, have you found it better than TOBI (for mucoid PA) ? What side effects did you get (same as TOBI : altered voice, bronchospasm, tightness, etc. ?) ? No studies have been done with Cayston for drug interactions ... Should I be worried even if the ingredient in Cayston has been around for a while ? It seems to be a shorter treatment time than other nebbed antibios (2-3 min), even if it's taken 3 times a day. I think I read somewhere that you need the Altera (Pari) with Cayston ... Is that the compressor and the nebulizer ? How long do we need to take Cayston (6-12 months?) ? Has it been proven to work even with the biofilm that is around mucoid PA (TOBI has I think) ?
Like some of you know, I just started TOBI and am having trouble tolerating it so my lung spec. told me about Cayston ...
RDT.
For those of you who have used or are using Cayston, have you found it better than TOBI (for mucoid PA) ? What side effects did you get (same as TOBI : altered voice, bronchospasm, tightness, etc. ?) ? No studies have been done with Cayston for drug interactions ... Should I be worried even if the ingredient in Cayston has been around for a while ? It seems to be a shorter treatment time than other nebbed antibios (2-3 min), even if it's taken 3 times a day. I think I read somewhere that you need the Altera (Pari) with Cayston ... Is that the compressor and the nebulizer ? How long do we need to take Cayston (6-12 months?) ? Has it been proven to work even with the biofilm that is around mucoid PA (TOBI has I think) ?
Like some of you know, I just started TOBI and am having trouble tolerating it so my lung spec. told me about Cayston ...
RDT.