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Cepacia Protocol
- Thread starter anonymous
- Start date
My two pet pieves are: being put in a waiting room and using pft equipment used by people that culture MRSA and/or cepacia (I'm sure the list is even longer than this).
The CFF sent me the document I wanted named 'Infection Control Recommendations Consensus Conference.pdf' and unfortunately or fortunately neither of these things are banned. There are recommendations (3 feet apart, using disposable mouthpieces, etc.). I want them to say that each clinic needs to have two pft machines. One for those that only culture PA and one for all others. The 'other' machine should be a portable machine that is brought around into the rooms of those with cepacia, mrsa, etc. I also want them to ban CF patients in waiting rooms. I mean give me a break restaurants don't even make you do it any more - you give them your cell # and they call you or you get a pager. I was surprised that the .pdf I mentioned spoke of the pager method. Anyone's clinic give you a pager so you don't have to stay so close to the CF area. What about the cell phone routine?
Thanks for letting me spout.
The CFF sent me the document I wanted named 'Infection Control Recommendations Consensus Conference.pdf' and unfortunately or fortunately neither of these things are banned. There are recommendations (3 feet apart, using disposable mouthpieces, etc.). I want them to say that each clinic needs to have two pft machines. One for those that only culture PA and one for all others. The 'other' machine should be a portable machine that is brought around into the rooms of those with cepacia, mrsa, etc. I also want them to ban CF patients in waiting rooms. I mean give me a break restaurants don't even make you do it any more - you give them your cell # and they call you or you get a pager. I was surprised that the .pdf I mentioned spoke of the pager method. Anyone's clinic give you a pager so you don't have to stay so close to the CF area. What about the cell phone routine?
Thanks for letting me spout.
My two pet pieves are: being put in a waiting room and using pft equipment used by people that culture MRSA and/or cepacia (I'm sure the list is even longer than this).
The CFF sent me the document I wanted named 'Infection Control Recommendations Consensus Conference.pdf' and unfortunately or fortunately neither of these things are banned. There are recommendations (3 feet apart, using disposable mouthpieces, etc.). I want them to say that each clinic needs to have two pft machines. One for those that only culture PA and one for all others. The 'other' machine should be a portable machine that is brought around into the rooms of those with cepacia, mrsa, etc. I also want them to ban CF patients in waiting rooms. I mean give me a break restaurants don't even make you do it any more - you give them your cell # and they call you or you get a pager. I was surprised that the .pdf I mentioned spoke of the pager method. Anyone's clinic give you a pager so you don't have to stay so close to the CF area. What about the cell phone routine?
Thanks for letting me spout.
The CFF sent me the document I wanted named 'Infection Control Recommendations Consensus Conference.pdf' and unfortunately or fortunately neither of these things are banned. There are recommendations (3 feet apart, using disposable mouthpieces, etc.). I want them to say that each clinic needs to have two pft machines. One for those that only culture PA and one for all others. The 'other' machine should be a portable machine that is brought around into the rooms of those with cepacia, mrsa, etc. I also want them to ban CF patients in waiting rooms. I mean give me a break restaurants don't even make you do it any more - you give them your cell # and they call you or you get a pager. I was surprised that the .pdf I mentioned spoke of the pager method. Anyone's clinic give you a pager so you don't have to stay so close to the CF area. What about the cell phone routine?
Thanks for letting me spout.
We still have a community waiting room, but patients can now choose as to whether or not they want to stay there and visit or be assigned their own room. We opt for our own room 'cuz otherwise, the other patients all sit in the waiting room until they're called to see the next healthcare professional in the same room that 5-10 other patients have already been in that day.
Last summer we arrived at our appointment and after 45 minutes of waiting in the hallway next to the waiting room, we left and wrote letters to the doctor explaining that we weren't comfortable with the situation. So they said next time one of us could register, while the other would wait in the car or in the main clinic with DS until the room was available. We arrived and the receptionist put us in a room ASAP. I had to leave early for a meeting and was surprised at how very few people opted for the private room. Most were hanging out in the community waiting room -- kids playing with the toys and each other... I wouldn't be surprised if we were the only ones who had our own room. I don't think a lot of the patients are informed about cross contamination issues.
One thing I'm still a bit concerned with is that DS is still in diapers, so we haven't had to take him down the hall, thru the waiting room to the public bathroom. Also, Xray has this bizarro wooden chair thing they put all the kids in instead of laying them on an exam table, I think we'll have to have a chat about that if they decide to try and take a chest xray in that thing. And so far DS hasn't had to go to the pulmo lab. I'll just have to keep an eagle eye on things, make sure doctors wash their hands, wipe off equipment, etc. Figure we'll bring along some antibacterial cleaning supplies and hand wipes. Liza
Last summer we arrived at our appointment and after 45 minutes of waiting in the hallway next to the waiting room, we left and wrote letters to the doctor explaining that we weren't comfortable with the situation. So they said next time one of us could register, while the other would wait in the car or in the main clinic with DS until the room was available. We arrived and the receptionist put us in a room ASAP. I had to leave early for a meeting and was surprised at how very few people opted for the private room. Most were hanging out in the community waiting room -- kids playing with the toys and each other... I wouldn't be surprised if we were the only ones who had our own room. I don't think a lot of the patients are informed about cross contamination issues.
One thing I'm still a bit concerned with is that DS is still in diapers, so we haven't had to take him down the hall, thru the waiting room to the public bathroom. Also, Xray has this bizarro wooden chair thing they put all the kids in instead of laying them on an exam table, I think we'll have to have a chat about that if they decide to try and take a chest xray in that thing. And so far DS hasn't had to go to the pulmo lab. I'll just have to keep an eagle eye on things, make sure doctors wash their hands, wipe off equipment, etc. Figure we'll bring along some antibacterial cleaning supplies and hand wipes. Liza
We still have a community waiting room, but patients can now choose as to whether or not they want to stay there and visit or be assigned their own room. We opt for our own room 'cuz otherwise, the other patients all sit in the waiting room until they're called to see the next healthcare professional in the same room that 5-10 other patients have already been in that day.
Last summer we arrived at our appointment and after 45 minutes of waiting in the hallway next to the waiting room, we left and wrote letters to the doctor explaining that we weren't comfortable with the situation. So they said next time one of us could register, while the other would wait in the car or in the main clinic with DS until the room was available. We arrived and the receptionist put us in a room ASAP. I had to leave early for a meeting and was surprised at how very few people opted for the private room. Most were hanging out in the community waiting room -- kids playing with the toys and each other... I wouldn't be surprised if we were the only ones who had our own room. I don't think a lot of the patients are informed about cross contamination issues.
One thing I'm still a bit concerned with is that DS is still in diapers, so we haven't had to take him down the hall, thru the waiting room to the public bathroom. Also, Xray has this bizarro wooden chair thing they put all the kids in instead of laying them on an exam table, I think we'll have to have a chat about that if they decide to try and take a chest xray in that thing. And so far DS hasn't had to go to the pulmo lab. I'll just have to keep an eagle eye on things, make sure doctors wash their hands, wipe off equipment, etc. Figure we'll bring along some antibacterial cleaning supplies and hand wipes. Liza
Last summer we arrived at our appointment and after 45 minutes of waiting in the hallway next to the waiting room, we left and wrote letters to the doctor explaining that we weren't comfortable with the situation. So they said next time one of us could register, while the other would wait in the car or in the main clinic with DS until the room was available. We arrived and the receptionist put us in a room ASAP. I had to leave early for a meeting and was surprised at how very few people opted for the private room. Most were hanging out in the community waiting room -- kids playing with the toys and each other... I wouldn't be surprised if we were the only ones who had our own room. I don't think a lot of the patients are informed about cross contamination issues.
One thing I'm still a bit concerned with is that DS is still in diapers, so we haven't had to take him down the hall, thru the waiting room to the public bathroom. Also, Xray has this bizarro wooden chair thing they put all the kids in instead of laying them on an exam table, I think we'll have to have a chat about that if they decide to try and take a chest xray in that thing. And so far DS hasn't had to go to the pulmo lab. I'll just have to keep an eagle eye on things, make sure doctors wash their hands, wipe off equipment, etc. Figure we'll bring along some antibacterial cleaning supplies and hand wipes. Liza
<blockquote>Quote<br><hr><i>Originally posted by: <b>LouLou</b></i><br>
I want them to say that each clinic needs to have two pft machines. One for those that only culture PA and one for all others. The 'other' machine should be a portable machine that is brought around into the rooms of those with cepacia, mrsa, etc.
________________________________________________________________________________
Here's my opinion on your proposal. I have MRSA so does that mean it's OK for me to use the "other" machine to get exposed to cepacia and possibly other bugs??? What about the folks that have cepacia, using the "other" machine & possibly getting MRSA--that's the last thing they need too.
I don't know the answer. In a perfect world, they would have numerous PFT machines: one for pseudomonas patients, one for MRSA patients, one for cepacia, etc, etc, etc. What would <i>really</i>
be cool, but totally unrealistic is each of us have our own PFT machines. Maybe by 2050 it will be that way-lol...wish I could be here to see it!
I want them to say that each clinic needs to have two pft machines. One for those that only culture PA and one for all others. The 'other' machine should be a portable machine that is brought around into the rooms of those with cepacia, mrsa, etc.
________________________________________________________________________________
Here's my opinion on your proposal. I have MRSA so does that mean it's OK for me to use the "other" machine to get exposed to cepacia and possibly other bugs??? What about the folks that have cepacia, using the "other" machine & possibly getting MRSA--that's the last thing they need too.
I don't know the answer. In a perfect world, they would have numerous PFT machines: one for pseudomonas patients, one for MRSA patients, one for cepacia, etc, etc, etc. What would <i>really</i>
be cool, but totally unrealistic is each of us have our own PFT machines. Maybe by 2050 it will be that way-lol...wish I could be here to see it!
<blockquote>Quote<br><hr><i>Originally posted by: <b>LouLou</b></i><br>
I want them to say that each clinic needs to have two pft machines. One for those that only culture PA and one for all others. The 'other' machine should be a portable machine that is brought around into the rooms of those with cepacia, mrsa, etc.
________________________________________________________________________________
Here's my opinion on your proposal. I have MRSA so does that mean it's OK for me to use the "other" machine to get exposed to cepacia and possibly other bugs??? What about the folks that have cepacia, using the "other" machine & possibly getting MRSA--that's the last thing they need too.
I don't know the answer. In a perfect world, they would have numerous PFT machines: one for pseudomonas patients, one for MRSA patients, one for cepacia, etc, etc, etc. What would <i>really</i>
be cool, but totally unrealistic is each of us have our own PFT machines. Maybe by 2050 it will be that way-lol...wish I could be here to see it!
I want them to say that each clinic needs to have two pft machines. One for those that only culture PA and one for all others. The 'other' machine should be a portable machine that is brought around into the rooms of those with cepacia, mrsa, etc.
________________________________________________________________________________
Here's my opinion on your proposal. I have MRSA so does that mean it's OK for me to use the "other" machine to get exposed to cepacia and possibly other bugs??? What about the folks that have cepacia, using the "other" machine & possibly getting MRSA--that's the last thing they need too.
I don't know the answer. In a perfect world, they would have numerous PFT machines: one for pseudomonas patients, one for MRSA patients, one for cepacia, etc, etc, etc. What would <i>really</i>
be cool, but totally unrealistic is each of us have our own PFT machines. Maybe by 2050 it will be that way-lol...wish I could be here to see it!