CF adults life
- Thread starter Nuca
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FFXyojimboFFX
Guest
the only thing i have noticed is that as i grow older my CF only gets worse when i'm depressed or sad when i'm in a cheerful/happy mood you could not even tell i have CF
Hi Nuca,
I am a 60 y/o female w/ CF, living in New York State, USA .. I have been married for almost 23 years & have 4 sons & 3 grandchildren. I was a late diagnosis @ 44 y/o..
My sister was 50 the year we got dxd & passed that year from breast cancer. We had lots of health problems growing up, hers were worse than mine. She had 2 lung surgeries & coughed up blood for 35 yrs & they didnt suspect cf <img src="i/expressions/face-icon-small-sad.gif" border="0"> I had more GI problems, 4 GI surgeries & several hospitalizations .. Other health things going on too.
As far as being an adult w/ cf , I kinda think it is like getting older & feeling the effects of old age. My non cf friends complain as much as me at times lol..
I take taking care of my health very seriously , I want to be here for myself & my family as long as possible !!
I have a strong faith in God & have a loving & supportive family to help me along this road of CF life. I am very grateful for CF.com for the love & support I receive here.
I hope all is well with you & that I have answered some of your questions..
If you have any other questions dont hesitate to ask.. T
ake care <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
I am a 60 y/o female w/ CF, living in New York State, USA .. I have been married for almost 23 years & have 4 sons & 3 grandchildren. I was a late diagnosis @ 44 y/o..
My sister was 50 the year we got dxd & passed that year from breast cancer. We had lots of health problems growing up, hers were worse than mine. She had 2 lung surgeries & coughed up blood for 35 yrs & they didnt suspect cf <img src="i/expressions/face-icon-small-sad.gif" border="0"> I had more GI problems, 4 GI surgeries & several hospitalizations .. Other health things going on too.
As far as being an adult w/ cf , I kinda think it is like getting older & feeling the effects of old age. My non cf friends complain as much as me at times lol..
I take taking care of my health very seriously , I want to be here for myself & my family as long as possible !!
I have a strong faith in God & have a loving & supportive family to help me along this road of CF life. I am very grateful for CF.com for the love & support I receive here.
I hope all is well with you & that I have answered some of your questions..
If you have any other questions dont hesitate to ask.. T
ake care <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
W
welshwitch
Guest
Life goes on. It will not stop because you have CF. Having CF doesn't give you an out, or an excuse....it just means you will have to grab life for what it is and enjoy every minute of it!
Having CF for me means not putting up with a lot of the mundane. I have a "seize the day" mentality. Be it with my job, my friendships, my partner....I won't settle for anything less than extraordinary!
On a practical level, you will learn that you also have to accept that you have CF. This can take years. Once you do, though, your commitment to your health will increase and you will fight for every day. My CF doesn't seem to dominate my life, but I put a lot of work into it to maintain my health. Along with the meds, I exercise and eat right too. All the work I put in on my end helps loads.
All in all I am not going anywhere anytime soon, so I might as well enjoy it <img src="i/expressions/face-icon-small-smile.gif" border="0">
Having CF for me means not putting up with a lot of the mundane. I have a "seize the day" mentality. Be it with my job, my friendships, my partner....I won't settle for anything less than extraordinary!
On a practical level, you will learn that you also have to accept that you have CF. This can take years. Once you do, though, your commitment to your health will increase and you will fight for every day. My CF doesn't seem to dominate my life, but I put a lot of work into it to maintain my health. Along with the meds, I exercise and eat right too. All the work I put in on my end helps loads.
All in all I am not going anywhere anytime soon, so I might as well enjoy it <img src="i/expressions/face-icon-small-smile.gif" border="0">
musclemania70
New member
Everyone's attitude about their health is different. Some people like to keep it private and not tell anyone about it for fear of being treated weird or helpless. Others like to shout it to the mountaintops and share their experiences in the hopes of helping others and being proud of who they are. There is no right way or wrong way. I would say as an adult to someone younger like you--take your health in your own hands. Do your research. Talk to others (like this forum) and if you don't like an answer from your doctor, don't be afraid to find a second opinion. YOUR DOCTOR DOES NOT HAVE CF. You are your best judge. Learn to listen to your body and at the same time DOING EVERYTHING in your power to stay healthy and be responsible.
hello, nuca! i'm just 24, and though maybe not completely an "adult," i can tell you things are looking good <img src="i/expressions/face-icon-small-smile.gif" border="0"> i was diagnosed at 16 and had a very hard time with the diagnosis. unfortunately i didn't have emotional support and so i fell into denial and depression. i was also very sick and in and out of the hospital a lot. luckily i have gotten myself on track and i'm taking care of myself quite well and still improving. i work with a therapist to work through a lot of emotions i had and still have. cf can be scary to think about. the biggest, most important thing is to be positive. that has helped me get this far, after so many years of feeling in despair. once you focus on your life and incorporate cf (instead of making cf the only thing you focus on), you will find that you can have quite a normal life! i encourage you to be positive and strive for your goals, regardless of your condition. best of luck to you <img src="i/expressions/face-icon-small-smile.gif" border="0">
also, i have more recently been excersizing a lot - i swim- and eating better, which has also helped improve my health, in addition to doing treatment and taking my meds.
also, i have more recently been excersizing a lot - i swim- and eating better, which has also helped improve my health, in addition to doing treatment and taking my meds.
My name is Nutsa . I am from Georgia. I am 15 years old, I am diagnosed with Cystic Fibrosis since eight month and now I have serious lung problems and disease is progressed. My lung problems opposes my dreams, to become an actress. I love singing, but when the breath is difficult I cant singing. I am always funny, but now I cant smile, because I think about my problems and it is not easy to smile. my feeling's about this is very difficult. I also writing poetry and little stories.
thank you everyone response me
thank you everyone response me
beautifulsoul
Super Moderator
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Tisha</b></i> Hi Nutsa! Life goes on! Don't let CF stop you. I fulfilled my dream of going to university in the United States and get a degree (I live in Spain). I have acted in theatre and have been singing on the radio. Follow your dreams!</end quote>
Very Ambitious Tisha! Very happy you are able to do what you love. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Very Ambitious Tisha! Very happy you are able to do what you love. <img src="i/expressions/face-icon-small-smile.gif" border="0">
dream2live
New member
<strong>First of all, be yourself!!!! There are so many different degrees of severity of CF. Such as, I have the Double Delta gene (which is the worst ones to have). Most ppl that have that gene combo don't make it out of their 20's and here I am 43 years old. Surround yourself with positive and supportive friends, and u will love this CF blog site. </strong>
<strong>We are here for each other and sometimes know more what to do than the doctor.</strong>
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<strong>We are here for each other and sometimes know more what to do than the doctor.</strong>
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