cf and celiac?

[creation301]

<img src="i/expressions/face-icon-small-sad.gif" border="0">Just curious how common cf and celiac is? I was quoted 1 in 5 will have both. We have not had the best odds so far with other heath issues, so I wouldn't be to surprised.

She is already allergic to everything under the sun... so.. we are praying that God would choose not to give her this burden along with cf, and the allergies she already has (to milk, beef, pork, soy, eggs, corn, almonds). Not to mention the cruel issue of trying to gain weight on a major allergy-free diet.

Anyway, just curious if anyone here has both? They want to test our daughter for it due to the fact that she is also allergic to all (wheat, oats, rye, barley) gluten contained grains.

Would love to hear if anyone has any insight on this.

Frustrated and discouraged mom-
Tiffany<img src="i/expressions/face-icon-small-frown.gif" border="0">

 

[creation301]

<img src="i/expressions/face-icon-small-sad.gif" border="0">Just curious how common cf and celiac is? I was quoted 1 in 5 will have both. We have not had the best odds so far with other heath issues, so I wouldn't be to surprised.

She is already allergic to everything under the sun... so.. we are praying that God would choose not to give her this burden along with cf, and the allergies she already has (to milk, beef, pork, soy, eggs, corn, almonds). Not to mention the cruel issue of trying to gain weight on a major allergy-free diet.

Anyway, just curious if anyone here has both? They want to test our daughter for it due to the fact that she is also allergic to all (wheat, oats, rye, barley) gluten contained grains.

Would love to hear if anyone has any insight on this.

Frustrated and discouraged mom-
Tiffany<img src="i/expressions/face-icon-small-frown.gif" border="0">

 

[creation301]

<img src="i/expressions/face-icon-small-sad.gif" border="0">Just curious how common cf and celiac is? I was quoted 1 in 5 will have both. We have not had the best odds so far with other heath issues, so I wouldn't be to surprised.

She is already allergic to everything under the sun... so.. we are praying that God would choose not to give her this burden along with cf, and the allergies she already has (to milk, beef, pork, soy, eggs, corn, almonds). Not to mention the cruel issue of trying to gain weight on a major allergy-free diet.

Anyway, just curious if anyone here has both? They want to test our daughter for it due to the fact that she is also allergic to all (wheat, oats, rye, barley) gluten contained grains.

Would love to hear if anyone has any insight on this.

Frustrated and discouraged mom-
Tiffany<img src="i/expressions/face-icon-small-frown.gif" border="0">

 

[creation301]

<img src="i/expressions/face-icon-small-sad.gif" border="0">Just curious how common cf and celiac is? I was quoted 1 in 5 will have both. We have not had the best odds so far with other heath issues, so I wouldn't be to surprised.

She is already allergic to everything under the sun... so.. we are praying that God would choose not to give her this burden along with cf, and the allergies she already has (to milk, beef, pork, soy, eggs, corn, almonds). Not to mention the cruel issue of trying to gain weight on a major allergy-free diet.

Anyway, just curious if anyone here has both? They want to test our daughter for it due to the fact that she is also allergic to all (wheat, oats, rye, barley) gluten contained grains.

Would love to hear if anyone has any insight on this.

Frustrated and discouraged mom-
Tiffany<img src="i/expressions/face-icon-small-frown.gif" border="0">

 

[creation301]

<img src="i/expressions/face-icon-small-sad.gif" border="0">Just curious how common cf and celiac is? I was quoted 1 in 5 will have both. We have not had the best odds so far with other heath issues, so I wouldn't be to surprised.

She is already allergic to everything under the sun... so.. we are praying that God would choose not to give her this burden along with cf, and the allergies she already has (to milk, beef, pork, soy, eggs, corn, almonds). Not to mention the cruel issue of trying to gain weight on a major allergy-free diet.

Anyway, just curious if anyone here has both? They want to test our daughter for it due to the fact that she is also allergic to all (wheat, oats, rye, barley) gluten contained grains.

Would love to hear if anyone has any insight on this.

Frustrated and discouraged mom-
Tiffany<img src="i/expressions/face-icon-small-frown.gif" border="0">

 

[creation301]

<img src="i/expressions/face-icon-small-sad.gif" border="0">Just curious how common cf and celiac is? I was quoted 1 in 5 will have both. We have not had the best odds so far with other heath issues, so I wouldn't be to surprised.

She is already allergic to everything under the sun... so.. we are praying that God would choose not to give her this burden along with cf, and the allergies she already has (to milk, beef, pork, soy, eggs, corn, almonds). Not to mention the cruel issue of trying to gain weight on a major allergy-free diet.

Anyway, just curious if anyone here has both? They want to test our daughter for it due to the fact that she is also allergic to all (wheat, oats, rye, barley) gluten contained grains.

Would love to hear if anyone has any insight on this.

Frustrated and discouraged mom-
Tiffany<img src="i/expressions/face-icon-small-frown.gif" border="0">

 

[AnD]

I don't know anything about celiac and cf, except for what little I've read. My best friend had a baby with gluten intolerance though, and while she thankfully out grew it, was amazing what a difference it made in her baby! If my friend messed up and ate something with gluten in it, it was shocking how fast her (breast fed) baby went from happy baby to a screaming, unhappy baby (not to mention heartbreaking and guilt inducing for her).

Both my best friend and her oldest daughter got tested for celiac after this with the 2nd child, and her daughter came back negative, and my friend's test came back inconclusive, but doubtful.

I would still say go ahead and get the test- if it comes back positive or probable for celiac, then at least you know what you are up against, and as they say, knowledge <i>is </i>power! Hopefully, she will outgrow a lot of these allergies- I did (eggs, cows milk, cats, dogs, etc.), and now only test as allergic for a few things.

 

[AnD]

I don't know anything about celiac and cf, except for what little I've read. My best friend had a baby with gluten intolerance though, and while she thankfully out grew it, was amazing what a difference it made in her baby! If my friend messed up and ate something with gluten in it, it was shocking how fast her (breast fed) baby went from happy baby to a screaming, unhappy baby (not to mention heartbreaking and guilt inducing for her).

Both my best friend and her oldest daughter got tested for celiac after this with the 2nd child, and her daughter came back negative, and my friend's test came back inconclusive, but doubtful.

I would still say go ahead and get the test- if it comes back positive or probable for celiac, then at least you know what you are up against, and as they say, knowledge <i>is </i>power! Hopefully, she will outgrow a lot of these allergies- I did (eggs, cows milk, cats, dogs, etc.), and now only test as allergic for a few things.

 

[AnD]

I don't know anything about celiac and cf, except for what little I've read. My best friend had a baby with gluten intolerance though, and while she thankfully out grew it, was amazing what a difference it made in her baby! If my friend messed up and ate something with gluten in it, it was shocking how fast her (breast fed) baby went from happy baby to a screaming, unhappy baby (not to mention heartbreaking and guilt inducing for her).

Both my best friend and her oldest daughter got tested for celiac after this with the 2nd child, and her daughter came back negative, and my friend's test came back inconclusive, but doubtful.

I would still say go ahead and get the test- if it comes back positive or probable for celiac, then at least you know what you are up against, and as they say, knowledge <i>is </i>power! Hopefully, she will outgrow a lot of these allergies- I did (eggs, cows milk, cats, dogs, etc.), and now only test as allergic for a few things.

 

[AnD]

I don't know anything about celiac and cf, except for what little I've read. My best friend had a baby with gluten intolerance though, and while she thankfully out grew it, was amazing what a difference it made in her baby! If my friend messed up and ate something with gluten in it, it was shocking how fast her (breast fed) baby went from happy baby to a screaming, unhappy baby (not to mention heartbreaking and guilt inducing for her).

Both my best friend and her oldest daughter got tested for celiac after this with the 2nd child, and her daughter came back negative, and my friend's test came back inconclusive, but doubtful.

I would still say go ahead and get the test- if it comes back positive or probable for celiac, then at least you know what you are up against, and as they say, knowledge <i>is </i>power! Hopefully, she will outgrow a lot of these allergies- I did (eggs, cows milk, cats, dogs, etc.), and now only test as allergic for a few things.

 

[AnD]

I don't know anything about celiac and cf, except for what little I've read. My best friend had a baby with gluten intolerance though, and while she thankfully out grew it, was amazing what a difference it made in her baby! If my friend messed up and ate something with gluten in it, it was shocking how fast her (breast fed) baby went from happy baby to a screaming, unhappy baby (not to mention heartbreaking and guilt inducing for her).

Both my best friend and her oldest daughter got tested for celiac after this with the 2nd child, and her daughter came back negative, and my friend's test came back inconclusive, but doubtful.

I would still say go ahead and get the test- if it comes back positive or probable for celiac, then at least you know what you are up against, and as they say, knowledge <i>is </i>power! Hopefully, she will outgrow a lot of these allergies- I did (eggs, cows milk, cats, dogs, etc.), and now only test as allergic for a few things.

 

[lilismom]

Lili was tested for celiacs disease before she was diagnosed with cf because it can cause malabsorbtion issues as well. She didn't have a clear marker in her blood for it but there was some type of gluten intolerance there. we tried the wheat free diet and her digestion improved a lot. After cf diagnosis we were told that now that she was taking enzymes she should be able to tolerate wheat.

We went back to a normal diet and she was doing ok but after reading some posts on here I decided to cut it out again and her digestion seems 100% better. She is gaining weight more quickly than before and seems happier.

We have a clinic visit tomorrow and they will run tests to determine if she is allergic to anything else.

 

[lilismom]

Lili was tested for celiacs disease before she was diagnosed with cf because it can cause malabsorbtion issues as well. She didn't have a clear marker in her blood for it but there was some type of gluten intolerance there. we tried the wheat free diet and her digestion improved a lot. After cf diagnosis we were told that now that she was taking enzymes she should be able to tolerate wheat.

We went back to a normal diet and she was doing ok but after reading some posts on here I decided to cut it out again and her digestion seems 100% better. She is gaining weight more quickly than before and seems happier.

We have a clinic visit tomorrow and they will run tests to determine if she is allergic to anything else.

 

[lilismom]

Lili was tested for celiacs disease before she was diagnosed with cf because it can cause malabsorbtion issues as well. She didn't have a clear marker in her blood for it but there was some type of gluten intolerance there. we tried the wheat free diet and her digestion improved a lot. After cf diagnosis we were told that now that she was taking enzymes she should be able to tolerate wheat.

We went back to a normal diet and she was doing ok but after reading some posts on here I decided to cut it out again and her digestion seems 100% better. She is gaining weight more quickly than before and seems happier.

We have a clinic visit tomorrow and they will run tests to determine if she is allergic to anything else.

 

[lilismom]

Lili was tested for celiacs disease before she was diagnosed with cf because it can cause malabsorbtion issues as well. She didn't have a clear marker in her blood for it but there was some type of gluten intolerance there. we tried the wheat free diet and her digestion improved a lot. After cf diagnosis we were told that now that she was taking enzymes she should be able to tolerate wheat.

We went back to a normal diet and she was doing ok but after reading some posts on here I decided to cut it out again and her digestion seems 100% better. She is gaining weight more quickly than before and seems happier.

We have a clinic visit tomorrow and they will run tests to determine if she is allergic to anything else.

 

[lilismom]

Lili was tested for celiacs disease before she was diagnosed with cf because it can cause malabsorbtion issues as well. She didn't have a clear marker in her blood for it but there was some type of gluten intolerance there. we tried the wheat free diet and her digestion improved a lot. After cf diagnosis we were told that now that she was taking enzymes she should be able to tolerate wheat.

We went back to a normal diet and she was doing ok but after reading some posts on here I decided to cut it out again and her digestion seems 100% better. She is gaining weight more quickly than before and seems happier.

We have a clinic visit tomorrow and they will run tests to determine if she is allergic to anything else.

 

[Alyssa]

I don't know the numbers either, but have read something along the lines of "if you have CF, you are 5 times more likely to have Celiac" Don't quote me on that, but that's what I remember.

Our daughter was tested for Celiac, both blood test and biopsy. She is negative, but she has eaten a wheat free diet for several years now because she feels better when she doesn't eat wheat.

For what it's worth, our GI doc said the blood test is 85% accurate. If you get a negative on the blood test and want to know for sure you aren't missing that 15% do the colonoscopy for the biopsy.

 

[Alyssa]

I don't know the numbers either, but have read something along the lines of "if you have CF, you are 5 times more likely to have Celiac" Don't quote me on that, but that's what I remember.

Our daughter was tested for Celiac, both blood test and biopsy. She is negative, but she has eaten a wheat free diet for several years now because she feels better when she doesn't eat wheat.

For what it's worth, our GI doc said the blood test is 85% accurate. If you get a negative on the blood test and want to know for sure you aren't missing that 15% do the colonoscopy for the biopsy.

 

[Alyssa]

I don't know the numbers either, but have read something along the lines of "if you have CF, you are 5 times more likely to have Celiac" Don't quote me on that, but that's what I remember.

Our daughter was tested for Celiac, both blood test and biopsy. She is negative, but she has eaten a wheat free diet for several years now because she feels better when she doesn't eat wheat.

For what it's worth, our GI doc said the blood test is 85% accurate. If you get a negative on the blood test and want to know for sure you aren't missing that 15% do the colonoscopy for the biopsy.

 

[Alyssa]

I don't know the numbers either, but have read something along the lines of "if you have CF, you are 5 times more likely to have Celiac" Don't quote me on that, but that's what I remember.

Our daughter was tested for Celiac, both blood test and biopsy. She is negative, but she has eaten a wheat free diet for several years now because she feels better when she doesn't eat wheat.

For what it's worth, our GI doc said the blood test is 85% accurate. If you get a negative on the blood test and want to know for sure you aren't missing that 15% do the colonoscopy for the biopsy.