my son is 16 and has cf also has diabetes and a mickey button. He is feeling really isolated we go to clinic once a month and he has no contact with other teens with simalar problems. other than his younger brother. They don't talk about it very much. Is there anyone who can help with some advice for my son or me to help him with all of these challanges to get them working and no be so very overwhelming to him?? please
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
cf and hving diabetes
- Thread starter anonymous
- Start date
Even though it's not face to face contact, have you tried to get him on this site to the teen section? CF of course doesn't ever get better, but most times things get socially better as they grow up. The age he is at right now is full of judgemental other teens not knowing what they want in life, not knowing their own issues and/or how to deal with them and a lot of times they are mean, agressive and make hurtful comments. i know it doesn't help now, but these teens will grow up emotionally and as the years go on he will make friends who are past the point of needing to judge others and be rude because they can't handle their own life. I believe that aspect of "getting better" socially, usually improves with age. Tell him to hold on, and just as a start get him off this site if you can
If the diabetes is an issue, you may want to consider getting an insulin pump (if he's insulin dependent). I was diagnosed with CF related diabetes 7 years ago, did the insulin shots, the whole thing. I slowly became less compliant with the shots because they were too much of a pain in the butt. And my health definitely suffered from that. About 3 months ago my doctor was able to get me an insulin pump and it has completely changed the way I take care of myself. I only have to give myself a shot once every 4 days, just to insert the catheter - and it doesn't even hurt. The pump looks like a pager, so most people don't even know I have it. I don't have to draw up my insulin in the middle of a crowded restaurant or excuse myself to go into the bathroom to do it. I have more freedom with want I want to eat, which is so important in CFers. Being more independent will definitely help any 16 year old feel less isolated from other people.
i have the CF diabetes...well im borderline..id LOVE to talk to your son, ive never talked to anybody else who had CF and i really think it would help me out emotionaly and maybe it would help him out too <img src="i/expressions/face-icon-small-smile.gif" border="0"> my name is Brandi and im 14...my AOL sn is BabyCynamin please have him talk to me sometime you dont know how much it would mean to me <img src="i/expressions/face-icon-small-smile.gif" border="0">
Hi...My name is Brian. I am a 16 year old male with cf and diabetes also. I would really like to talk to your son some time my e-mail address is bflanagan@direcway.com... Maybe I could help him because I can relate to what he's going through. It was sure hard for me when I found out i had cfrd. But I am doing alot better now with my health...If you are interested e-mail me or reply... Thanks...