E
entropy
Guest
@ falloutboygurl16
My mother treated us like "sick children" growing up. Our CF was like the pink elephant in the room. Naturally little kids don't want to feel isolated like that. We put up defense mechanisms and tried to hide our CF to seem more normal because we were always made to feel that we weren't normal. As I get older I despise people who take such lengths to seem "normal." Especially in the media, it's so twisted and backwards. Last time I was in the hospital my room's TV was stuck on MTV. I kept waking up out of sedation in the middle of the night to these twisted reality shows about people that live in Las Vegas or something whose sole purpose in life is seemingly to make others think they're adequate. There I was, intubated, watching a guy with a mohawk have a nervous breakdown over what kind of purse he was going to buy. I was vicariously living life through this program, forced to watch this garbage, too sedated to know how to change the channel. My only emotion was pure disgust. These guys have their health, are blessed with longevity so long as they don't do anything too radical like become addicted to drugs or commit suicide. They take their health for granted and wrap themselves up into this cocoon of artificial happiness derived from meaningless substance like a purse that others like them will envy. I realized that without your health, you have nothing. You're a vegetable, good for nothing, relying on nurses to change your diaper and clean your excrement. The kind of people on those "reality" TV shows don't realize that. Everyone who is born has the burden of losing their health eventually, whether it be from old age or a disease. Only people who die unexpectedly in accidents, like car wrecks and such, bypass this fate. At the end of it all, what do they have? A collection of nice shoes and purses? Do they have a loving family or meaningful friends? While in the hospital, I was alone a lot of the time. My parents work and live hours away from that hospital. Some times I would have a caring nurse who would rub my shoulder or take my hand and talk. I realized that this was what life is about; to be touched, to know someone cares. Empathy, compassion, affection. All of the material possessions in the world mean nothing if you're alone. People lose touch with REALITY. Before all of our modern conveniences and technology all humans had was their family and friends. Society is so backwards now, in the face of all of this "progress" we are becoming more and more isolated, dooming ourselves to an unfulfilling and regretful end. In some ways I'm glad that I have CF. At a young age I have gone through a lot, respectively, and I've been shown things that are supposed to remain hidden until one truly realizes the value of life through time and life experience. People with CF are forced to live their lives faster than the average healthy person.
@ MaksNana
Sorry if you find my picture spooky. The first time I saw this picture it struck me as powerful. For me, it left an impression of angst, rage, and sorrow. I think it's a powerful image, spooky or not
My sister was the most gentle soul I've ever met. Only the good or really bad die young, and she truly a good person. I hope that, in some way, her story can help someone in a similar condition realize what harm they're doing to themselves and the pain they will put their family through at the end of it all.
Sorry for such a long rant at the beginning. One thing led to another.
My mother treated us like "sick children" growing up. Our CF was like the pink elephant in the room. Naturally little kids don't want to feel isolated like that. We put up defense mechanisms and tried to hide our CF to seem more normal because we were always made to feel that we weren't normal. As I get older I despise people who take such lengths to seem "normal." Especially in the media, it's so twisted and backwards. Last time I was in the hospital my room's TV was stuck on MTV. I kept waking up out of sedation in the middle of the night to these twisted reality shows about people that live in Las Vegas or something whose sole purpose in life is seemingly to make others think they're adequate. There I was, intubated, watching a guy with a mohawk have a nervous breakdown over what kind of purse he was going to buy. I was vicariously living life through this program, forced to watch this garbage, too sedated to know how to change the channel. My only emotion was pure disgust. These guys have their health, are blessed with longevity so long as they don't do anything too radical like become addicted to drugs or commit suicide. They take their health for granted and wrap themselves up into this cocoon of artificial happiness derived from meaningless substance like a purse that others like them will envy. I realized that without your health, you have nothing. You're a vegetable, good for nothing, relying on nurses to change your diaper and clean your excrement. The kind of people on those "reality" TV shows don't realize that. Everyone who is born has the burden of losing their health eventually, whether it be from old age or a disease. Only people who die unexpectedly in accidents, like car wrecks and such, bypass this fate. At the end of it all, what do they have? A collection of nice shoes and purses? Do they have a loving family or meaningful friends? While in the hospital, I was alone a lot of the time. My parents work and live hours away from that hospital. Some times I would have a caring nurse who would rub my shoulder or take my hand and talk. I realized that this was what life is about; to be touched, to know someone cares. Empathy, compassion, affection. All of the material possessions in the world mean nothing if you're alone. People lose touch with REALITY. Before all of our modern conveniences and technology all humans had was their family and friends. Society is so backwards now, in the face of all of this "progress" we are becoming more and more isolated, dooming ourselves to an unfulfilling and regretful end. In some ways I'm glad that I have CF. At a young age I have gone through a lot, respectively, and I've been shown things that are supposed to remain hidden until one truly realizes the value of life through time and life experience. People with CF are forced to live their lives faster than the average healthy person.
@ MaksNana
Sorry if you find my picture spooky. The first time I saw this picture it struck me as powerful. For me, it left an impression of angst, rage, and sorrow. I think it's a powerful image, spooky or not
My sister was the most gentle soul I've ever met. Only the good or really bad die young, and she truly a good person. I hope that, in some way, her story can help someone in a similar condition realize what harm they're doing to themselves and the pain they will put their family through at the end of it all.
Sorry for such a long rant at the beginning. One thing led to another.