CF Care

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LuraGirl26</b></i>

I have no new clinic to go to anymore. There is only one CF center in our town. The doctors who dx me will not see me anymore becuase that was when I was a kid.



And yes I did have mrsa and yes I did think that they where going to put me on IV's becuase in the past when I had it on my face that is what they did.



I have no where to go for care anymore. I did what I could and I don't know of anywhere or anything to try anymore.</end quote></div>

Then you might need to travel for care. I think a good portion of us travel some kind of distance. Not everyone is fortunate to have one in town. Some of us travel hours for our CF care. Here is the link to CF Centers. You need to take the bull by the horns & get to another clinic.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cfcenters.cfm
">http://www.cysticfibrosis.com/cfcenters.cfm
</a>
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LuraGirl26</b></i>

I have no new clinic to go to anymore. There is only one CF center in our town. The doctors who dx me will not see me anymore becuase that was when I was a kid.



And yes I did have mrsa and yes I did think that they where going to put me on IV's becuase in the past when I had it on my face that is what they did.



I have no where to go for care anymore. I did what I could and I don't know of anywhere or anything to try anymore.</end quote></div>

Then you might need to travel for care. I think a good portion of us travel some kind of distance. Not everyone is fortunate to have one in town. Some of us travel hours for our CF care. Here is the link to CF Centers. You need to take the bull by the horns & get to another clinic.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cfcenters.cfm
">http://www.cysticfibrosis.com/cfcenters.cfm
</a>
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LuraGirl26</b></i>

I have no new clinic to go to anymore. There is only one CF center in our town. The doctors who dx me will not see me anymore becuase that was when I was a kid.



And yes I did have mrsa and yes I did think that they where going to put me on IV's becuase in the past when I had it on my face that is what they did.



I have no where to go for care anymore. I did what I could and I don't know of anywhere or anything to try anymore.</end quote></div>

Then you might need to travel for care. I think a good portion of us travel some kind of distance. Not everyone is fortunate to have one in town. Some of us travel hours for our CF care. Here is the link to CF Centers. You need to take the bull by the horns & get to another clinic.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cfcenters.cfm
">http://www.cysticfibrosis.com/cfcenters.cfm
</a>
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LuraGirl26</b></i>

I have no new clinic to go to anymore. There is only one CF center in our town. The doctors who dx me will not see me anymore becuase that was when I was a kid.



And yes I did have mrsa and yes I did think that they where going to put me on IV's becuase in the past when I had it on my face that is what they did.



I have no where to go for care anymore. I did what I could and I don't know of anywhere or anything to try anymore.</end quote>

Then you might need to travel for care. I think a good portion of us travel some kind of distance. Not everyone is fortunate to have one in town. Some of us travel hours for our CF care. Here is the link to CF Centers. You need to take the bull by the horns & get to another clinic.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cfcenters.cfm
">http://www.cysticfibrosis.com/cfcenters.cfm
</a>
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LuraGirl26</b></i>
<br />
<br />I have no new clinic to go to anymore. There is only one CF center in our town. The doctors who dx me will not see me anymore becuase that was when I was a kid.
<br />
<br />
<br />
<br />And yes I did have mrsa and yes I did think that they where going to put me on IV's becuase in the past when I had it on my face that is what they did.
<br />
<br />
<br />
<br />I have no where to go for care anymore. I did what I could and I don't know of anywhere or anything to try anymore.</end quote>
<br />
<br />Then you might need to travel for care. I think a good portion of us travel some kind of distance. Not everyone is fortunate to have one in town. Some of us travel hours for our CF care. Here is the link to CF Centers. You need to take the bull by the horns & get to another clinic.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/cfcenters.cfm
">http://www.cysticfibrosis.com/cfcenters.cfm
</a><br />
<br />
 

JustDucky

New member
I am one such person...any specialist that I see is a minimum of a hour and a half away, my new neurologist is nearly 3 hours away. You have to do what is best for you...even if it means traveling. Get copies of your medical records from your old CF doctor and bring them with you. Good luck. Jenn
 

JustDucky

New member
I am one such person...any specialist that I see is a minimum of a hour and a half away, my new neurologist is nearly 3 hours away. You have to do what is best for you...even if it means traveling. Get copies of your medical records from your old CF doctor and bring them with you. Good luck. Jenn
 

JustDucky

New member
I am one such person...any specialist that I see is a minimum of a hour and a half away, my new neurologist is nearly 3 hours away. You have to do what is best for you...even if it means traveling. Get copies of your medical records from your old CF doctor and bring them with you. Good luck. Jenn
 

JustDucky

New member
I am one such person...any specialist that I see is a minimum of a hour and a half away, my new neurologist is nearly 3 hours away. You have to do what is best for you...even if it means traveling. Get copies of your medical records from your old CF doctor and bring them with you. Good luck. Jenn
 

JustDucky

New member
I am one such person...any specialist that I see is a minimum of a hour and a half away, my new neurologist is nearly 3 hours away. You have to do what is best for you...even if it means traveling. Get copies of your medical records from your old CF doctor and bring them with you. Good luck. Jenn
 

Ratatosk

Administrator
Staff member
We travel 250 miles 2-4 times a year for our son's care. A couple weeks ago, our doctor had concerns and we took a last minute day trip down to the City for some tests. Just something we gotta do to keep him healthy.
 

Ratatosk

Administrator
Staff member
We travel 250 miles 2-4 times a year for our son's care. A couple weeks ago, our doctor had concerns and we took a last minute day trip down to the City for some tests. Just something we gotta do to keep him healthy.
 

Ratatosk

Administrator
Staff member
We travel 250 miles 2-4 times a year for our son's care. A couple weeks ago, our doctor had concerns and we took a last minute day trip down to the City for some tests. Just something we gotta do to keep him healthy.
 

Ratatosk

Administrator
Staff member
We travel 250 miles 2-4 times a year for our son's care. A couple weeks ago, our doctor had concerns and we took a last minute day trip down to the City for some tests. Just something we gotta do to keep him healthy.
 

Ratatosk

Administrator
Staff member
We travel 250 miles 2-4 times a year for our son's care. A couple weeks ago, our doctor had concerns and we took a last minute day trip down to the City for some tests. Just something we gotta do to keep him healthy.
 
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