CF Center Woes

V

valigirl21

Guest
Pam, he does not have a difinitive dx b/c of the absence of the mutations, he has LOTS of symptomology, i.e. FTT, PI, chronic lung issues, so I don't know what the hold-up is w/ dx. His pulm keeps saying he's 1 criteria away from dx...whatever that means.

Mel, there are two in my area, but this doc is the best, and the doc at the other clinic is a...rude.

Heather, thanks for the reminder. I saw that about the conference and I completely forgot. I will call again next week.

Like I said, this doc consulted with my son's GI, and its at her insistance that heis being treated "as if" he has CF b/c she believes he does. Thanks everyone who offered there insight and support thus far.
 
V

valigirl21

Guest
Pam, he does not have a difinitive dx b/c of the absence of the mutations, he has LOTS of symptomology, i.e. FTT, PI, chronic lung issues, so I don't know what the hold-up is w/ dx. His pulm keeps saying he's 1 criteria away from dx...whatever that means.

Mel, there are two in my area, but this doc is the best, and the doc at the other clinic is a...rude.

Heather, thanks for the reminder. I saw that about the conference and I completely forgot. I will call again next week.

Like I said, this doc consulted with my son's GI, and its at her insistance that heis being treated "as if" he has CF b/c she believes he does. Thanks everyone who offered there insight and support thus far.
 
V

valigirl21

Guest
Pam, he does not have a difinitive dx b/c of the absence of the mutations, he has LOTS of symptomology, i.e. FTT, PI, chronic lung issues, so I don't know what the hold-up is w/ dx. His pulm keeps saying he's 1 criteria away from dx...whatever that means.

Mel, there are two in my area, but this doc is the best, and the doc at the other clinic is a...rude.

Heather, thanks for the reminder. I saw that about the conference and I completely forgot. I will call again next week.

Like I said, this doc consulted with my son's GI, and its at her insistance that heis being treated "as if" he has CF b/c she believes he does. Thanks everyone who offered there insight and support thus far.
 
V

valigirl21

Guest
Pam, he does not have a difinitive dx b/c of the absence of the mutations, he has LOTS of symptomology, i.e. FTT, PI, chronic lung issues, so I don't know what the hold-up is w/ dx. His pulm keeps saying he's 1 criteria away from dx...whatever that means.

Mel, there are two in my area, but this doc is the best, and the doc at the other clinic is a...rude.

Heather, thanks for the reminder. I saw that about the conference and I completely forgot. I will call again next week.

Like I said, this doc consulted with my son's GI, and its at her insistance that heis being treated "as if" he has CF b/c she believes he does. Thanks everyone who offered there insight and support thus far.
 
V

valigirl21

Guest
Pam, he does not have a difinitive dx b/c of the absence of the mutations, he has LOTS of symptomology, i.e. FTT, PI, chronic lung issues, so I don't know what the hold-up is w/ dx. His pulm keeps saying he's 1 criteria away from dx...whatever that means.
<br />
<br />Mel, there are two in my area, but this doc is the best, and the doc at the other clinic is a...rude.
<br />
<br />Heather, thanks for the reminder. I saw that about the conference and I completely forgot. I will call again next week.
<br />
<br />Like I said, this doc consulted with my son's GI, and its at her insistance that heis being treated "as if" he has CF b/c she believes he does. Thanks everyone who offered there insight and support thus far.
 
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