Thanks for all the responses. It gives me some options to think about. I did call the CFF today and they said it is each local chapter who lists the CF Centers on the website and she told me to call the Ft Worth chapter. I called there and was told it was not them, but the national office who lists them... you know how that game goes...pass the blame back and forth. Anyway, she was very nice and told me that the dr from Fort Worth travels to Midland regularly to see the patients there. She gave me the number to the clinic in Ft. Worth. I called there and was told that no, they don't see patients in Midland but they do see them in Abilene (go figure...at this point I am so confused I don't know what to think)...
As far as the San Antonio clinic, that is where we currently go. I did mapquest it and it seemed to be much further from Midland that Dallas. As far as the problems that I've had with San Antonio go, they have nothing to do with the actual dr. I really like her a lot. It's some of the other staff I have had issues with. Careless handling of things and never returning calls are a big issue for me. I think we probably see the same ENT you were talking about as he takes care of most of the CF patients in the area. I do really like him too. That is one of the bad things about moving.
Right now everything is up in the air as far as where we will go. The nurse coordinator from Ft Worth is supposed to call me tomorrow and that should give me a bunch more info.
Oh, and as far as Dr. Bray in Midland goes, four different staff members told me he does not see CF patients. The last girl I talked to said she asked Dr. Bray himself just to be positive and he said no. And the number you gave, 1-800-SLEEP... well, there aren't enough numbers there... But I have called his office several times already.
Thanks again everyone.
