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CF chat rooms
- Thread starter Daverog
- Start date
AbsintheSorrow
New member
That link didn't work. Can you look at it again and see if it's right? I'd love to find a CF chat. Tanx.
Hey DeaI read somewhere else where someone called Dea said that "Awareness" is one of the biggest issues re CF. Was that u and if so, I would love to be a part of making people aware but I need some information on why it needs to be heightened and what kind of things are best to share with others and what people with CF can expect once others are more aware. Do u have any examples of what people with CF or carers etc have used to get the message across and raise awareness.ThanksNene
AbsintheSorrow
New member
It needs awareness raised, because though it's not entirely unknown, it's not nearly as well known as cancer, for instance. And the more people that know, the more fund raising we get done, the better medical research we get done. There are a bunch of CF fund raisers done by the CF Foundation. One of which is actually held in May all over the country. Called Great Strides. Look up on the internet, there should be a Great Strides somewhere near you. There's also bike-a-thons, and parties, and blah blah etc.