I'd like to get some of your perspectives on which you prefer - care at a CF clinic or from an individual pulmonoligist. There's a CF Clinin here in Dallas but the soonest they can see my daughter is 4/14 and they only see patients on Tuesdays and Thursdays. If you have a genuine need to see the doctor any other day they send you to the ER. That seems a tad inconvenient to me. Now with the CF clinic there are resident pulmonoligists, a nutrionist and social worker, so you get all those benefits. But on the other hand there's an individual pulmonologist that's been recommended to us as excellent and having a lot of experience with CF. His office is open five days a week. But of course no nutritionist and social worker. Soooo what have you experienced with your own or your children's care? Do you prefer the CF clinic? Is it worth the extra hassel and distance? (I should add the CF clinic is a bit farther away from us).
Thanks,
~Tapestry~
Thanks,
~Tapestry~