CF Clinics (Pediatric) in Southern California

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Heather

Guest
Hi All,<br><br>I'm 30 weeks pregnant with a baby girl who has been diagnosed with CF. We currently live in Los Angeles but may be re-locating to San Diego. I'm looking for input on the quality of care at CF clinics in Southern California. We want a clinic that is aggressive and up-to-date in their thinking. We've met with CHLA (Children's Hospital Los Angeles) and they seem good from our initial conversation but I think it's impossible to judge having never been treated there. <br><br>If anyone has info/opinions regarding one of the following, please share:<br><br>Children's Hospital of Los Angeles<br>UCLA<br>Miller Children's at Long Beach<br>Children's Hospital of Orange County<br>Rady Children's Hospital San Diego<br>Kaiser Permanente Los Angeles<br><br>Any response would be super helpful and appreciated. We need to decide on insurance for the baby and that depends on which clinic we want her to go to.<br><br>Thanks, Heather<br><br><br>
 
H

Heather

Guest
Hi All,<br><br>I'm 30 weeks pregnant with a baby girl who has been diagnosed with CF. We currently live in Los Angeles but may be re-locating to San Diego. I'm looking for input on the quality of care at CF clinics in Southern California. We want a clinic that is aggressive and up-to-date in their thinking. We've met with CHLA (Children's Hospital Los Angeles) and they seem good from our initial conversation but I think it's impossible to judge having never been treated there. <br><br>If anyone has info/opinions regarding one of the following, please share:<br><br>Children's Hospital of Los Angeles<br>UCLA<br>Miller Children's at Long Beach<br>Children's Hospital of Orange County<br>Rady Children's Hospital San Diego<br>Kaiser Permanente Los Angeles<br><br>Any response would be super helpful and appreciated. We need to decide on insurance for the baby and that depends on which clinic we want her to go to.<br><br>Thanks, Heather<br><br><br>
 
H

Heather

Guest
Hi All,<br><br>I'm 30 weeks pregnant with a baby girl who has been diagnosed with CF. We currently live in Los Angeles but may be re-locating to San Diego. I'm looking for input on the quality of care at CF clinics in Southern California. We want a clinic that is aggressive and up-to-date in their thinking. We've met with CHLA (Children's Hospital Los Angeles) and they seem good from our initial conversation but I think it's impossible to judge having never been treated there. <br><br>If anyone has info/opinions regarding one of the following, please share:<br><br>Children's Hospital of Los Angeles<br>UCLA<br>Miller Children's at Long Beach<br>Children's Hospital of Orange County<br>Rady Children's Hospital San Diego<br>Kaiser Permanente Los Angeles<br><br>Any response would be super helpful and appreciated. We need to decide on insurance for the baby and that depends on which clinic we want her to go to.<br><br>Thanks, Heather<br><br><br>
 
J

JohnWayne

New member
Hello. We live in Southern California and have a two year old son with CF. He also has DF508 and R1162X. Our son is seen by the CF clinic at Kaiser Permanente in Los Angeles. We're very happy with them. Our son is doing great. If you would like to send me a message, I can give you more details.

All the best to you.
 
J

JohnWayne

New member
Hello. We live in Southern California and have a two year old son with CF. He also has DF508 and R1162X. Our son is seen by the CF clinic at Kaiser Permanente in Los Angeles. We're very happy with them. Our son is doing great. If you would like to send me a message, I can give you more details.

All the best to you.
 
J

JohnWayne

New member
Hello. We live in Southern California and have a two year old son with CF. He also has DF508 and R1162X. Our son is seen by the CF clinic at Kaiser Permanente in Los Angeles. We're very happy with them. Our son is doing great. If you would like to send me a message, I can give you more details.
<br />
<br />All the best to you.
 
E

edan

Guest
Hi. Sorry I haven't responded to your pm. I will write to you personally now.
 
E

edan

Guest
Hi. Sorry I haven't responded to your pm. I will write to you personally now.
 
E

edan

Guest
Hi. Sorry I haven't responded to your pm. I will write to you personally now.
<br />
 
F

froggymama

New member
Heather,

Congrats on your soon-to-be-here baby! We live in Los Angeles and my daughter was diagnosed and treated at CHLA for five years. However this year we just switched to Miller Childrens. I could not be happier with her care now. They are aggressive and informative, they take the time to talk to you, they have an incredible team approach. CHLA, although they have great docs, the clinic was disorganized and just filling a prescription took hours out of my day and unreturned calls. Also, Miller Childrens has an incredible GI doc who is also an Allergist. Feel free to contact me privately too. I've met so many lovely moms and dads of kids with CF in the LA area. Best of luck with the rest of your pregnancy and welcome. Elise
 
F

froggymama

New member
Heather,

Congrats on your soon-to-be-here baby! We live in Los Angeles and my daughter was diagnosed and treated at CHLA for five years. However this year we just switched to Miller Childrens. I could not be happier with her care now. They are aggressive and informative, they take the time to talk to you, they have an incredible team approach. CHLA, although they have great docs, the clinic was disorganized and just filling a prescription took hours out of my day and unreturned calls. Also, Miller Childrens has an incredible GI doc who is also an Allergist. Feel free to contact me privately too. I've met so many lovely moms and dads of kids with CF in the LA area. Best of luck with the rest of your pregnancy and welcome. Elise
 
F

froggymama

New member
Heather,
<br />
<br />Congrats on your soon-to-be-here baby! We live in Los Angeles and my daughter was diagnosed and treated at CHLA for five years. However this year we just switched to Miller Childrens. I could not be happier with her care now. They are aggressive and informative, they take the time to talk to you, they have an incredible team approach. CHLA, although they have great docs, the clinic was disorganized and just filling a prescription took hours out of my day and unreturned calls. Also, Miller Childrens has an incredible GI doc who is also an Allergist. Feel free to contact me privately too. I've met so many lovely moms and dads of kids with CF in the LA area. Best of luck with the rest of your pregnancy and welcome. Elise
 
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