Hey everyone,
Let me give some info about me my name is Ali and I'm a 29 male and had double lung transplant on Jan. 28, 2008 at UCSF in San Francisco. My older brother and I both have cystic Firbrosis but he past away when he was 20 in 1997. I start on the list about 4 years ago when my lung capacity went down to 20%. I was still able to work and care for my wife and two kids. In June 2007 my lung capacity came down to 8% and I went on full time oxygen and I couldn't work any more and all I did is just be stuck at home doing meds all day which I was use too. I worked out on the treadmill as much as I can which I think helped me alot even though I went very slow on it. I don't remember for some reason but my wife told me on January 21st this year 2008 my lungs were bleeding and I went to hospital and I had to go on life support and get on ecmo. My carbondyoxide was over 200% and the doctors did not know if they should do the surgery but I passed the test they gave me. Everone had UCSF said they had never seen a patient with carbondyoxide over 200% before??? I guess my lungs finally gave up and the person who donated their lungs save my family and I. They told be that I can write a letter in few months so I can give the donating family time to grieve. I want to thank them so much!!! Anyways enough about me, the question I wanted to ask everyone is what kind of diet to you eat. I try to eat very healty but I'm always wanting to know other cf patients that have been pretty healthy for a long time if its there diet?
Thank you very much for taking the time,
Ali Keyghobadi
29 CF male
Tracy Ca
Let me give some info about me my name is Ali and I'm a 29 male and had double lung transplant on Jan. 28, 2008 at UCSF in San Francisco. My older brother and I both have cystic Firbrosis but he past away when he was 20 in 1997. I start on the list about 4 years ago when my lung capacity went down to 20%. I was still able to work and care for my wife and two kids. In June 2007 my lung capacity came down to 8% and I went on full time oxygen and I couldn't work any more and all I did is just be stuck at home doing meds all day which I was use too. I worked out on the treadmill as much as I can which I think helped me alot even though I went very slow on it. I don't remember for some reason but my wife told me on January 21st this year 2008 my lungs were bleeding and I went to hospital and I had to go on life support and get on ecmo. My carbondyoxide was over 200% and the doctors did not know if they should do the surgery but I passed the test they gave me. Everone had UCSF said they had never seen a patient with carbondyoxide over 200% before??? I guess my lungs finally gave up and the person who donated their lungs save my family and I. They told be that I can write a letter in few months so I can give the donating family time to grieve. I want to thank them so much!!! Anyways enough about me, the question I wanted to ask everyone is what kind of diet to you eat. I try to eat very healty but I'm always wanting to know other cf patients that have been pretty healthy for a long time if its there diet?
Thank you very much for taking the time,
Ali Keyghobadi
29 CF male
Tracy Ca