CF & DIOS...Do you have it?

V

Vampy

New member
do you? its called Distal Intestinal Obstruction Syndrom. ppl with cf get it,
i have it, but i need all the information you guys may know about it. i tried researching it and dont really understand it i just know its bad. its acted up worse this year then all the years put together, last time they were talkin about surgery.
please help out with any info or personal experiances
 
V

Vampy

New member
do you? its called Distal Intestinal Obstruction Syndrom. ppl with cf get it,
i have it, but i need all the information you guys may know about it. i tried researching it and dont really understand it i just know its bad. its acted up worse this year then all the years put together, last time they were talkin about surgery.
please help out with any info or personal experiances
 
V

Vampy

New member
do you? its called Distal Intestinal Obstruction Syndrom. ppl with cf get it,
i have it, but i need all the information you guys may know about it. i tried researching it and dont really understand it i just know its bad. its acted up worse this year then all the years put together, last time they were talkin about surgery.
please help out with any info or personal experiances
 
V

Vampy

New member
do you? its called Distal Intestinal Obstruction Syndrom. ppl with cf get it,
i have it, but i need all the information you guys may know about it. i tried researching it and dont really understand it i just know its bad. its acted up worse this year then all the years put together, last time they were talkin about surgery.
please help out with any info or personal experiances
 
V

Vampy

New member
do you? its called Distal Intestinal Obstruction Syndrom. ppl with cf get it,
<br />i have it, but i need all the information you guys may know about it. i tried researching it and dont really understand it i just know its bad. its acted up worse this year then all the years put together, last time they were talkin about surgery.
<br />please help out with any info or personal experiances
 
C

chrissyd

New member
DIOS (previously known as meconium ileus equivalent, MIE) is a unique condition to cystic fibrosis. It occurs due to the accumulation of viscous mucous and faecal material in the terminal ileum, caecum and ascending colon. Typically patients develop progressive symptoms of recurrent colicky abdominal pain, bloating, nausea and anorexia, and signs of small intestinal obstruction. It has not been described in other forms of pancreatic insufficiency although it has been reported in patients with cystic fibrosis who are pancreatic sufficient and have normal fat absorption.
(Daniel Peckham and Alison Morton. July, 2003)
///////////////////////////////
Symptoms of DIOS include crampy abdominal pain, vomiting, and a palpable mass in the abdomen. X-rays of the abdomen may reveal stool in the colon and air-fluid levels in the small bowel. Surgery is often required to relieve the obstruction. However, if there is no sign of bowel rupture, a more conservative approach may be attempted. Restricting oral intake, placement of a nasogastric tube for decompression of the stomach and proximal intestines, and administration of laxatives and enemas may resolve the obstruction without the need for surgery. Individuals prone to DIOS tend to be at risk for repeated episodes and often require maintenance therapy with pancreatic enzyme replacement and stool softeners.
(from wikipedia)
//////////////////////////////////////////////

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ayubmed.edu.pk/JAMC/PAST/19-1/16%20Uzma%20Shah.pdf">more info here</a>

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
DIOS (previously known as meconium ileus equivalent, MIE) is a unique condition to cystic fibrosis. It occurs due to the accumulation of viscous mucous and faecal material in the terminal ileum, caecum and ascending colon. Typically patients develop progressive symptoms of recurrent colicky abdominal pain, bloating, nausea and anorexia, and signs of small intestinal obstruction. It has not been described in other forms of pancreatic insufficiency although it has been reported in patients with cystic fibrosis who are pancreatic sufficient and have normal fat absorption.
(Daniel Peckham and Alison Morton. July, 2003)
///////////////////////////////
Symptoms of DIOS include crampy abdominal pain, vomiting, and a palpable mass in the abdomen. X-rays of the abdomen may reveal stool in the colon and air-fluid levels in the small bowel. Surgery is often required to relieve the obstruction. However, if there is no sign of bowel rupture, a more conservative approach may be attempted. Restricting oral intake, placement of a nasogastric tube for decompression of the stomach and proximal intestines, and administration of laxatives and enemas may resolve the obstruction without the need for surgery. Individuals prone to DIOS tend to be at risk for repeated episodes and often require maintenance therapy with pancreatic enzyme replacement and stool softeners.
(from wikipedia)
//////////////////////////////////////////////

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ayubmed.edu.pk/JAMC/PAST/19-1/16%20Uzma%20Shah.pdf">more info here</a>

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
DIOS (previously known as meconium ileus equivalent, MIE) is a unique condition to cystic fibrosis. It occurs due to the accumulation of viscous mucous and faecal material in the terminal ileum, caecum and ascending colon. Typically patients develop progressive symptoms of recurrent colicky abdominal pain, bloating, nausea and anorexia, and signs of small intestinal obstruction. It has not been described in other forms of pancreatic insufficiency although it has been reported in patients with cystic fibrosis who are pancreatic sufficient and have normal fat absorption.
(Daniel Peckham and Alison Morton. July, 2003)
///////////////////////////////
Symptoms of DIOS include crampy abdominal pain, vomiting, and a palpable mass in the abdomen. X-rays of the abdomen may reveal stool in the colon and air-fluid levels in the small bowel. Surgery is often required to relieve the obstruction. However, if there is no sign of bowel rupture, a more conservative approach may be attempted. Restricting oral intake, placement of a nasogastric tube for decompression of the stomach and proximal intestines, and administration of laxatives and enemas may resolve the obstruction without the need for surgery. Individuals prone to DIOS tend to be at risk for repeated episodes and often require maintenance therapy with pancreatic enzyme replacement and stool softeners.
(from wikipedia)
//////////////////////////////////////////////

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ayubmed.edu.pk/JAMC/PAST/19-1/16%20Uzma%20Shah.pdf">more info here</a>

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
DIOS (previously known as meconium ileus equivalent, MIE) is a unique condition to cystic fibrosis. It occurs due to the accumulation of viscous mucous and faecal material in the terminal ileum, caecum and ascending colon. Typically patients develop progressive symptoms of recurrent colicky abdominal pain, bloating, nausea and anorexia, and signs of small intestinal obstruction. It has not been described in other forms of pancreatic insufficiency although it has been reported in patients with cystic fibrosis who are pancreatic sufficient and have normal fat absorption.
(Daniel Peckham and Alison Morton. July, 2003)
///////////////////////////////
Symptoms of DIOS include crampy abdominal pain, vomiting, and a palpable mass in the abdomen. X-rays of the abdomen may reveal stool in the colon and air-fluid levels in the small bowel. Surgery is often required to relieve the obstruction. However, if there is no sign of bowel rupture, a more conservative approach may be attempted. Restricting oral intake, placement of a nasogastric tube for decompression of the stomach and proximal intestines, and administration of laxatives and enemas may resolve the obstruction without the need for surgery. Individuals prone to DIOS tend to be at risk for repeated episodes and often require maintenance therapy with pancreatic enzyme replacement and stool softeners.
(from wikipedia)
//////////////////////////////////////////////

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ayubmed.edu.pk/JAMC/PAST/19-1/16%20Uzma%20Shah.pdf">more info here</a>

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
DIOS (previously known as meconium ileus equivalent, MIE) is a unique condition to cystic fibrosis. It occurs due to the accumulation of viscous mucous and faecal material in the terminal ileum, caecum and ascending colon. Typically patients develop progressive symptoms of recurrent colicky abdominal pain, bloating, nausea and anorexia, and signs of small intestinal obstruction. It has not been described in other forms of pancreatic insufficiency although it has been reported in patients with cystic fibrosis who are pancreatic sufficient and have normal fat absorption.
<br />(Daniel Peckham and Alison Morton. July, 2003)
<br />///////////////////////////////
<br />Symptoms of DIOS include crampy abdominal pain, vomiting, and a palpable mass in the abdomen. X-rays of the abdomen may reveal stool in the colon and air-fluid levels in the small bowel. Surgery is often required to relieve the obstruction. However, if there is no sign of bowel rupture, a more conservative approach may be attempted. Restricting oral intake, placement of a nasogastric tube for decompression of the stomach and proximal intestines, and administration of laxatives and enemas may resolve the obstruction without the need for surgery. Individuals prone to DIOS tend to be at risk for repeated episodes and often require maintenance therapy with pancreatic enzyme replacement and stool softeners.
<br />(from wikipedia)
<br />//////////////////////////////////////////////
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.ayubmed.edu.pk/JAMC/PAST/19-1/16%20Uzma%20Shah.pdf">more info here</a>
<br />
<br /><img src="i/expressions/rose.gif" border="0">
<br />
 
S

Sakem

New member
My son had it, 4 years ago, 3 times to ER, before they finally diagnoised it correctly...he did not have to have surgery, stayed on liquid diet for about 3 days and it resolved on it's own...he has not had any prob w/ it, except for occasional constipation which is relieved w/ taking mirilax when he starts getting stomach cramps
 
S

Sakem

New member
My son had it, 4 years ago, 3 times to ER, before they finally diagnoised it correctly...he did not have to have surgery, stayed on liquid diet for about 3 days and it resolved on it's own...he has not had any prob w/ it, except for occasional constipation which is relieved w/ taking mirilax when he starts getting stomach cramps
 
S

Sakem

New member
My son had it, 4 years ago, 3 times to ER, before they finally diagnoised it correctly...he did not have to have surgery, stayed on liquid diet for about 3 days and it resolved on it's own...he has not had any prob w/ it, except for occasional constipation which is relieved w/ taking mirilax when he starts getting stomach cramps
 
S

Sakem

New member
My son had it, 4 years ago, 3 times to ER, before they finally diagnoised it correctly...he did not have to have surgery, stayed on liquid diet for about 3 days and it resolved on it's own...he has not had any prob w/ it, except for occasional constipation which is relieved w/ taking mirilax when he starts getting stomach cramps
 
S

Sakem

New member
My son had it, 4 years ago, 3 times to ER, before they finally diagnoised it correctly...he did not have to have surgery, stayed on liquid diet for about 3 days and it resolved on it's own...he has not had any prob w/ it, except for occasional constipation which is relieved w/ taking mirilax when he starts getting stomach cramps
 
B

bagged2drag

Active member
Got it and got it bad. I get obstructed very frequently, doesn't matter my diet anymore. I had surgery 3 times, last time there was an excess of scar tissue that they had to cut out. Now I have problems even more frequently, am almost always in pain. Have probably been in the hospital at least 15 times for it throughout my life, maybe more. Can't take Miralax every day though because I am already not formed ever. I go from loose (almost all the time) straight to obstructed, seldom a "normal" day anymore. All I can suggest is this: Keep a large quantity of Miralax at home all the time, if you start having a problem, aggressively address it sooner than later, don't wait a day or so to figure out if you are obstructed. I usually will take a serving or two of Miralax every half hour if I can tolerate it. I like to mix it with cranberry or apple juice. If the obstruction is bad enough, you will surely keel over in pain, and will even start throwing up whatever fluids you take in. If you are at that point, I suggest going in, as the docs can help out.

Sounds horrible I know, but ya kind of get used to it. I definitely hope it is not that bad with you, and really wish you luck in getting it controlled.
 
B

bagged2drag

Active member
Got it and got it bad. I get obstructed very frequently, doesn't matter my diet anymore. I had surgery 3 times, last time there was an excess of scar tissue that they had to cut out. Now I have problems even more frequently, am almost always in pain. Have probably been in the hospital at least 15 times for it throughout my life, maybe more. Can't take Miralax every day though because I am already not formed ever. I go from loose (almost all the time) straight to obstructed, seldom a "normal" day anymore. All I can suggest is this: Keep a large quantity of Miralax at home all the time, if you start having a problem, aggressively address it sooner than later, don't wait a day or so to figure out if you are obstructed. I usually will take a serving or two of Miralax every half hour if I can tolerate it. I like to mix it with cranberry or apple juice. If the obstruction is bad enough, you will surely keel over in pain, and will even start throwing up whatever fluids you take in. If you are at that point, I suggest going in, as the docs can help out.

Sounds horrible I know, but ya kind of get used to it. I definitely hope it is not that bad with you, and really wish you luck in getting it controlled.
 
B

bagged2drag

Active member
Got it and got it bad. I get obstructed very frequently, doesn't matter my diet anymore. I had surgery 3 times, last time there was an excess of scar tissue that they had to cut out. Now I have problems even more frequently, am almost always in pain. Have probably been in the hospital at least 15 times for it throughout my life, maybe more. Can't take Miralax every day though because I am already not formed ever. I go from loose (almost all the time) straight to obstructed, seldom a "normal" day anymore. All I can suggest is this: Keep a large quantity of Miralax at home all the time, if you start having a problem, aggressively address it sooner than later, don't wait a day or so to figure out if you are obstructed. I usually will take a serving or two of Miralax every half hour if I can tolerate it. I like to mix it with cranberry or apple juice. If the obstruction is bad enough, you will surely keel over in pain, and will even start throwing up whatever fluids you take in. If you are at that point, I suggest going in, as the docs can help out.

Sounds horrible I know, but ya kind of get used to it. I definitely hope it is not that bad with you, and really wish you luck in getting it controlled.
 
B

bagged2drag

Active member
Got it and got it bad. I get obstructed very frequently, doesn't matter my diet anymore. I had surgery 3 times, last time there was an excess of scar tissue that they had to cut out. Now I have problems even more frequently, am almost always in pain. Have probably been in the hospital at least 15 times for it throughout my life, maybe more. Can't take Miralax every day though because I am already not formed ever. I go from loose (almost all the time) straight to obstructed, seldom a "normal" day anymore. All I can suggest is this: Keep a large quantity of Miralax at home all the time, if you start having a problem, aggressively address it sooner than later, don't wait a day or so to figure out if you are obstructed. I usually will take a serving or two of Miralax every half hour if I can tolerate it. I like to mix it with cranberry or apple juice. If the obstruction is bad enough, you will surely keel over in pain, and will even start throwing up whatever fluids you take in. If you are at that point, I suggest going in, as the docs can help out.

Sounds horrible I know, but ya kind of get used to it. I definitely hope it is not that bad with you, and really wish you luck in getting it controlled.
 
B

bagged2drag

Active member
Got it and got it bad. I get obstructed very frequently, doesn't matter my diet anymore. I had surgery 3 times, last time there was an excess of scar tissue that they had to cut out. Now I have problems even more frequently, am almost always in pain. Have probably been in the hospital at least 15 times for it throughout my life, maybe more. Can't take Miralax every day though because I am already not formed ever. I go from loose (almost all the time) straight to obstructed, seldom a "normal" day anymore. All I can suggest is this: Keep a large quantity of Miralax at home all the time, if you start having a problem, aggressively address it sooner than later, don't wait a day or so to figure out if you are obstructed. I usually will take a serving or two of Miralax every half hour if I can tolerate it. I like to mix it with cranberry or apple juice. If the obstruction is bad enough, you will surely keel over in pain, and will even start throwing up whatever fluids you take in. If you are at that point, I suggest going in, as the docs can help out.
<br />
<br />Sounds horrible I know, but ya kind of get used to it. I definitely hope it is not that bad with you, and really wish you luck in getting it controlled.
 
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