CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

katlynnsmom

New member
Hello, I do notice an improvement in her....she still has her coughing spells everyday. But she needs to do it to get that mucus up. She has been on the symbicort a few months now...and they put her on the hypertonic saline and Tobi. Which I feel has benefited her. She needed on it long ago. Look into those med's for your 5 yr. old. At least try to get him on the Tobi..every other month..
Goodluck,
Nora
 

katlynnsmom

New member
Hello, I do notice an improvement in her....she still has her coughing spells everyday. But she needs to do it to get that mucus up. She has been on the symbicort a few months now...and they put her on the hypertonic saline and Tobi. Which I feel has benefited her. She needed on it long ago. Look into those med's for your 5 yr. old. At least try to get him on the Tobi..every other month..
Goodluck,
Nora
 

katlynnsmom

New member
Hello, I do notice an improvement in her....she still has her coughing spells everyday. But she needs to do it to get that mucus up. She has been on the symbicort a few months now...and they put her on the hypertonic saline and Tobi. Which I feel has benefited her. She needed on it long ago. Look into those med's for your 5 yr. old. At least try to get him on the Tobi..every other month..
Goodluck,
Nora
 

katlynnsmom

New member
Hello, I do notice an improvement in her....she still has her coughing spells everyday. But she needs to do it to get that mucus up. She has been on the symbicort a few months now...and they put her on the hypertonic saline and Tobi. Which I feel has benefited her. She needed on it long ago. Look into those med's for your 5 yr. old. At least try to get him on the Tobi..every other month..
Goodluck,
Nora
 

katlynnsmom

New member
Hello, I do notice an improvement in her....she still has her coughing spells everyday. But she needs to do it to get that mucus up. She has been on the symbicort a few months now...and they put her on the hypertonic saline and Tobi. Which I feel has benefited her. She needed on it long ago. Look into those med's for your 5 yr. old. At least try to get him on the Tobi..every other month..
<br /> Goodluck,
<br /> Nora
 

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>HDsMom</b></i>
Nightwriter - your poste made me realize my dr is probably right about the asthma. This whole damn apartment is carpeted (supposedly less than a year old), we have central air (replaced the filter when we moved in), and I bought an air purifier, it's not enough for the whole house though and it gunks up fast). I'm afraid this decrease in health is related to this apartment - allergies or asthma. We already use dye free detergents, (I've been using bleach products for cleaning though), and I can't rip up the carpet here because we rent <img src=""> and I'm stuck in this lease until the end of March. Even if I could beak it, i don't have the down payment to move in somewhere else at the moment. Do you think him switching the pulmicort to symbicort will help if it's asthma related to this old apartment? His ped thought he had seasonal allergies this summer, and we already know he's allergic to dogs (hives) and was given liquid clariton to take anytime we may end up being near dogs...are allergies and asthma treated the same way?

</end quote></div>

I also live with carpetting and rent so I can't do anything about it. There are other things that can be done. My son wcf and I are both doing very well and gradually continue to get better because of all the other things we do. The list is very long, so I would encourage you to check out my website if you are interested:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthgazelle.org">Health Gazelle</a>

Good luck with this.
 

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>HDsMom</b></i>
Nightwriter - your poste made me realize my dr is probably right about the asthma. This whole damn apartment is carpeted (supposedly less than a year old), we have central air (replaced the filter when we moved in), and I bought an air purifier, it's not enough for the whole house though and it gunks up fast). I'm afraid this decrease in health is related to this apartment - allergies or asthma. We already use dye free detergents, (I've been using bleach products for cleaning though), and I can't rip up the carpet here because we rent <img src=""> and I'm stuck in this lease until the end of March. Even if I could beak it, i don't have the down payment to move in somewhere else at the moment. Do you think him switching the pulmicort to symbicort will help if it's asthma related to this old apartment? His ped thought he had seasonal allergies this summer, and we already know he's allergic to dogs (hives) and was given liquid clariton to take anytime we may end up being near dogs...are allergies and asthma treated the same way?

</end quote></div>

I also live with carpetting and rent so I can't do anything about it. There are other things that can be done. My son wcf and I are both doing very well and gradually continue to get better because of all the other things we do. The list is very long, so I would encourage you to check out my website if you are interested:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthgazelle.org">Health Gazelle</a>

Good luck with this.
 

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>HDsMom</b></i>
Nightwriter - your poste made me realize my dr is probably right about the asthma. This whole damn apartment is carpeted (supposedly less than a year old), we have central air (replaced the filter when we moved in), and I bought an air purifier, it's not enough for the whole house though and it gunks up fast). I'm afraid this decrease in health is related to this apartment - allergies or asthma. We already use dye free detergents, (I've been using bleach products for cleaning though), and I can't rip up the carpet here because we rent <img src=""> and I'm stuck in this lease until the end of March. Even if I could beak it, i don't have the down payment to move in somewhere else at the moment. Do you think him switching the pulmicort to symbicort will help if it's asthma related to this old apartment? His ped thought he had seasonal allergies this summer, and we already know he's allergic to dogs (hives) and was given liquid clariton to take anytime we may end up being near dogs...are allergies and asthma treated the same way?

</end quote></div>

I also live with carpetting and rent so I can't do anything about it. There are other things that can be done. My son wcf and I are both doing very well and gradually continue to get better because of all the other things we do. The list is very long, so I would encourage you to check out my website if you are interested:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthgazelle.org">Health Gazelle</a>

Good luck with this.
 

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>HDsMom</b></i>
Nightwriter - your poste made me realize my dr is probably right about the asthma. This whole damn apartment is carpeted (supposedly less than a year old), we have central air (replaced the filter when we moved in), and I bought an air purifier, it's not enough for the whole house though and it gunks up fast). I'm afraid this decrease in health is related to this apartment - allergies or asthma. We already use dye free detergents, (I've been using bleach products for cleaning though), and I can't rip up the carpet here because we rent <img src=""> and I'm stuck in this lease until the end of March. Even if I could beak it, i don't have the down payment to move in somewhere else at the moment. Do you think him switching the pulmicort to symbicort will help if it's asthma related to this old apartment? His ped thought he had seasonal allergies this summer, and we already know he's allergic to dogs (hives) and was given liquid clariton to take anytime we may end up being near dogs...are allergies and asthma treated the same way?

</end quote>

I also live with carpetting and rent so I can't do anything about it. There are other things that can be done. My son wcf and I are both doing very well and gradually continue to get better because of all the other things we do. The list is very long, so I would encourage you to check out my website if you are interested:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthgazelle.org">Health Gazelle</a>

Good luck with this.
 

MicheleGazelle

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>HDsMom</b></i>
<br />Nightwriter - your poste made me realize my dr is probably right about the asthma. This whole damn apartment is carpeted (supposedly less than a year old), we have central air (replaced the filter when we moved in), and I bought an air purifier, it's not enough for the whole house though and it gunks up fast). I'm afraid this decrease in health is related to this apartment - allergies or asthma. We already use dye free detergents, (I've been using bleach products for cleaning though), and I can't rip up the carpet here because we rent <img src=""> and I'm stuck in this lease until the end of March. Even if I could beak it, i don't have the down payment to move in somewhere else at the moment. Do you think him switching the pulmicort to symbicort will help if it's asthma related to this old apartment? His ped thought he had seasonal allergies this summer, and we already know he's allergic to dogs (hives) and was given liquid clariton to take anytime we may end up being near dogs...are allergies and asthma treated the same way?
<br />
<br /></end quote>
<br />
<br />I also live with carpetting and rent so I can't do anything about it. There are other things that can be done. My son wcf and I are both doing very well and gradually continue to get better because of all the other things we do. The list is very long, so I would encourage you to check out my website if you are interested:
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.healthgazelle.org">Health Gazelle</a>
<br />
<br />Good luck with this.
 

flatfordl

New member
Oh that sounds horrible!! If you are going to try a new CF clinic in TN.(I would) the knoxville clinic at Childrens Hospital is awesome! I am not sure how much further that is from Nashville for you but I love our clinic and our doctors!

Keep us up to date!
 

flatfordl

New member
Oh that sounds horrible!! If you are going to try a new CF clinic in TN.(I would) the knoxville clinic at Childrens Hospital is awesome! I am not sure how much further that is from Nashville for you but I love our clinic and our doctors!

Keep us up to date!
 

flatfordl

New member
Oh that sounds horrible!! If you are going to try a new CF clinic in TN.(I would) the knoxville clinic at Childrens Hospital is awesome! I am not sure how much further that is from Nashville for you but I love our clinic and our doctors!

Keep us up to date!
 

flatfordl

New member
Oh that sounds horrible!! If you are going to try a new CF clinic in TN.(I would) the knoxville clinic at Childrens Hospital is awesome! I am not sure how much further that is from Nashville for you but I love our clinic and our doctors!

Keep us up to date!
 

flatfordl

New member
Oh that sounds horrible!! If you are going to try a new CF clinic in TN.(I would) the knoxville clinic at Childrens Hospital is awesome! I am not sure how much further that is from Nashville for you but I love our clinic and our doctors!
<br />
<br />Keep us up to date!
 
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