CF effects all aspects of your life?

[Andrea2XCFers]

You have gotten a lot of different responses, but I'll add mine, anyway. Of course CF will affect you emotionally and spiritually. I'm a mom of two boys (young men, now) with CF and it's taken over all of our family's lives! How can it not? Does that mean we spend all day in the dumps? NO. Does it mean we stop doing what we love? NO. Does it make everything take on a different, deeper meaning? YOU BETTER BELIEVE IT! Since September 16, 1996, I have not had one moment where I don't regard things through the CF lens. Often, groups of parents will joke about being grandparents someday, and tease my boys about 30th high school reunions. I immediately think: Will we see those things? Will my boys have families? Will they see 50, or 30, or 25? My son wants to be a cop, and I think "Can a cop have CF?" If I verbalized those thoughts everytime I have them, my friends and coworkers would disown me. Usually, my closest friends will say (after) "you know, I wondered how you took that conversation, because I thought of your boys." Your real friends will tell you when it's time to change the subject; but they'll also hold you tight during the dark and scary times, when your thoughts and fears run wild. Chin up, keep fighting, and try not to share your innermost self with people who will hurt you like that. You are not alone!

 

[Andrea2XCFers]

You have gotten a lot of different responses, but I'll add mine, anyway. Of course CF will affect you emotionally and spiritually. I'm a mom of two boys (young men, now) with CF and it's taken over all of our family's lives! How can it not? Does that mean we spend all day in the dumps? NO. Does it mean we stop doing what we love? NO. Does it make everything take on a different, deeper meaning? YOU BETTER BELIEVE IT! Since September 16, 1996, I have not had one moment where I don't regard things through the CF lens. Often, groups of parents will joke about being grandparents someday, and tease my boys about 30th high school reunions. I immediately think: Will we see those things? Will my boys have families? Will they see 50, or 30, or 25? My son wants to be a cop, and I think "Can a cop have CF?" If I verbalized those thoughts everytime I have them, my friends and coworkers would disown me. Usually, my closest friends will say (after) "you know, I wondered how you took that conversation, because I thought of your boys." Your real friends will tell you when it's time to change the subject; but they'll also hold you tight during the dark and scary times, when your thoughts and fears run wild. Chin up, keep fighting, and try not to share your innermost self with people who will hurt you like that. You are not alone!

 

[jamoncita]

I agree with what some others have said about CF taking over your mentality; in other words letting CF "define you." Obviously CF is a part of you and determines much of what you do, but maybe your friend perceives that you are allowing it to keep you down in certain (perhaps many) ways and that CF if preventing you from doing things you want to do with your life because your focus is solely or primarily on CF, which is limiting in a lot of ways. I'm not saying this is the case, but it's certainly the way I viewed CF in my life for a looong, long while, so... there you have my two cents! Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[jamoncita]

I agree with what some others have said about CF taking over your mentality; in other words letting CF "define you." Obviously CF is a part of you and determines much of what you do, but maybe your friend perceives that you are allowing it to keep you down in certain (perhaps many) ways and that CF if preventing you from doing things you want to do with your life because your focus is solely or primarily on CF, which is limiting in a lot of ways. I'm not saying this is the case, but it's certainly the way I viewed CF in my life for a looong, long while, so... there you have my two cents! Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[jamoncita]

I agree with what some others have said about CF taking over your mentality; in other words letting CF "define you." Obviously CF is a part of you and determines much of what you do, but maybe your friend perceives that you are allowing it to keep you down in certain (perhaps many) ways and that CF if preventing you from doing things you want to do with your life because your focus is solely or primarily on CF, which is limiting in a lot of ways. I'm not saying this is the case, but it's certainly the way I viewed CF in my life for a looong, long while, so... there you have my two cents! Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[beleache]

Hey Carrie, <div><br></div><div> This person sounds like an idiot !!  I would love to use stronger language here..  </div><div><br></div><div>Yes, Cf does affect every part of my life but it does not mean I dont enjoy being alive..  We are not talking about having a common cold..</div><div><br></div><div>Can there be some tough times ?  Yes, but there are also some very wonderful times.  If I were you, I wouldn't waste my breath (no pun intended) on this jerk .. </div><div><br></div><div>  Take care  <3  joni</div>

 

[beleache]

Hey Carrie,<br>This person sounds like an idiot !! I would love to use stronger language here.. <br>Yes, Cf does affect every part of my life but it does not mean I dont enjoy being alive.. We are not talking about having a common cold..<br>Can there be some tough times ? Yes, but there are also some very wonderful times. If I were you, I wouldn't waste my breath (no pun intended) on this jerk ..<br> Take care <3 joni

 

[beleache]

Hey Carrie,<br>This person sounds like an idiot !! I would love to use stronger language here.. <br>Yes, Cf does affect every part of my life but it does not mean I dont enjoy being alive.. We are not talking about having a common cold..<br>Can there be some tough times ? Yes, but there are also some very wonderful times. If I were you, I wouldn't waste my breath (no pun intended) on this jerk ..<br> Take care <3 joni

 

[jessykt]

I think they are trying to encourage you to live out your dreams to your best ability and not use cf as a way to not live life. Sure, cf is difficult, but if you find something in life that you really live for and strive for, cf will go to the back burner-that's how you live life without letting cf control you. You may need to make adjustments for your health, but doing your activities the best you can, and you keep doing them, that's when YOU win.

I LOVE to volunteer. Being a volunteer defines me. Over the years I've had to adjust what kind of positions I take, and sometimes I do have to stop and catch my breath, eat a snack, get some sugar, but it certainly isn't what defines me.

Another example for you: my sister-in-law is claiming to have POTS. I certainly am no expert on the subject. I will say that I do think she's let it define her and she's given her life over to the "condition." She cancels family functions, birthday get togethers, holidays, girls weekend, etc. I feel like she is addicted to attention. Now, we all know that with cf you can have a fantastic day and a bout with nausea or low blood sugar can wipe you out for the rest of the day, but I try my darndest to keep my commitments, something I feel that she doesn't do because she is letting an illness take over every aspect of her life.

That's what I would take from a conversation with someone who said this to me. Hopefully by now you've discovered that yourself and have found many other things besides cf that define you! Good luck!

 

[jessykt]

I think they are trying to encourage you to live out your dreams to your best ability and not use cf as a way to not live life. Sure, cf is difficult, but if you find something in life that you really live for and strive for, cf will go to the back burner-that's how you live life without letting cf control you. You may need to make adjustments for your health, but doing your activities the best you can, and you keep doing them, that's when YOU win.

I LOVE to volunteer. Being a volunteer defines me. Over the years I've had to adjust what kind of positions I take, and sometimes I do have to stop and catch my breath, eat a snack, get some sugar, but it certainly isn't what defines me.

Another example for you: my sister-in-law is claiming to have POTS. I certainly am no expert on the subject. I will say that I do think she's let it define her and she's given her life over to the "condition." She cancels family functions, birthday get togethers, holidays, girls weekend, etc. I feel like she is addicted to attention. Now, we all know that with cf you can have a fantastic day and a bout with nausea or low blood sugar can wipe you out for the rest of the day, but I try my darndest to keep my commitments, something I feel that she doesn't do because she is letting an illness take over every aspect of her life.

That's what I would take from a conversation with someone who said this to me. Hopefully by now you've discovered that yourself and have found many other things besides cf that define you! Good luck!

 

[jessykt]

I think they are trying to encourage you to live out your dreams to your best ability and not use cf as a way to not live life. Sure, cf is difficult, but if you find something in life that you really live for and strive for, cf will go to the back burner-that's how you live life without letting cf control you. You may need to make adjustments for your health, but doing your activities the best you can, and you keep doing them, that's when YOU win.
<br />
<br />I LOVE to volunteer. Being a volunteer defines me. Over the years I've had to adjust what kind of positions I take, and sometimes I do have to stop and catch my breath, eat a snack, get some sugar, but it certainly isn't what defines me.
<br />
<br />Another example for you: my sister-in-law is claiming to have POTS. I certainly am no expert on the subject. I will say that I do think she's let it define her and she's given her life over to the "condition." She cancels family functions, birthday get togethers, holidays, girls weekend, etc. I feel like she is addicted to attention. Now, we all know that with cf you can have a fantastic day and a bout with nausea or low blood sugar can wipe you out for the rest of the day, but I try my darndest to keep my commitments, something I feel that she doesn't do because she is letting an illness take over every aspect of her life.
<br />
<br />That's what I would take from a conversation with someone who said this to me. Hopefully by now you've discovered that yourself and have found many other things besides cf that define you! Good luck!

 

[Treble]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BelEAche</b></i>

Hey Carrie, <div>
</div><div> This person sounds like an idiot !!  I would love to use stronger language here..  </div><div>
</div><div>Yes, Cf does affect every part of my life but it does not mean I dont enjoy being alive..  We are not talking about having a common cold..</div><div>
</div><div>Can there be some tough times ?  Yes, but there are also some very wonderful times.  If I were you, I wouldn't waste my breath (no pun intended) on this jerk .. </div><div>
</div><div>  Take care  <3  joni</div></end quote></div>

<div><br></div><div>This.</div><div><br></div><div>Some people are just retarded.</div>

 

[Treble]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BelEAche</b></i>

Hey Carrie,
This person sounds like an idiot !! I would love to use stronger language here..
Yes, Cf does affect every part of my life but it does not mean I dont enjoy being alive.. We are not talking about having a common cold..
Can there be some tough times ? Yes, but there are also some very wonderful times. If I were you, I wouldn't waste my breath (no pun intended) on this jerk ..
Take care <3 joni</end quote>

<br>This.<br>Some people are just retarded.

 

[Treble]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BelEAche</b></i>

Hey Carrie,
This person sounds like an idiot !! I would love to use stronger language here..
Yes, Cf does affect every part of my life but it does not mean I dont enjoy being alive.. We are not talking about having a common cold..
Can there be some tough times ? Yes, but there are also some very wonderful times. If I were you, I wouldn't waste my breath (no pun intended) on this jerk ..
Take care <3 joni</end quote>

<br>This.<br>Some people are just retarded.

 

[mamerth]

I have lots of things that define me beside my CF... I can sew, embroidery, and knit... and I love doing it. I have been able to make things for family and friends. I cook and bake. Just the name a few things...

The person who questioned me doesn't know me very well.

 

[mamerth]

I have lots of things that define me beside my CF... I can sew, embroidery, and knit... and I love doing it. I have been able to make things for family and friends. I cook and bake. Just the name a few things...

The person who questioned me doesn't know me very well.

 

[mamerth]

I have lots of things that define me beside my CF... I can sew, embroidery, and knit... and I love doing it. I have been able to make things for family and friends. I cook and bake. Just the name a few things...
<br />
<br />The person who questioned me doesn't know me very well.