CF Handbook ?

[Jane]

Does anyone know of a different (better?) book on CF for families. We have always had the Orenstein "Guide...", but wondered if there was something other people use.
thanks

 

[Jane]

Does anyone know of a different (better?) book on CF for families. We have always had the Orenstein "Guide...", but wondered if there was something other people use.
thanks

 

[Faust]

Take care of yourself, have fun, laugh and love a lot, and enjoy what life you have.

 

[Faust]

Take care of yourself, have fun, laugh and love a lot, and enjoy what life you have.

 

[JazzysMom]

If you go onto the home page of this forum, they have a spot to click on where a bunch of books & references listed along with some info about each.

 

[JazzysMom]

If you go onto the home page of this forum, they have a spot to click on where a bunch of books & references listed along with some info about each.

 

[JennifersHope]

I am thinking this is the same one but when I first went to the CF center, the social worker gave me this book called "Cystic Fibrosis Third Edition A guide for Patient and Family" the author is David Orenstein.... which leads me to think it is the same one you have..

To be honest this book is thicker then a bible, and I haven't read to much of it because it still overwhelmes me and I get anxiety when I read it..... A different book I have that I did read some of is

"Now That I Have CF" Information for Men and Women Diagnosed As Adults.... Of course it only applies really if you were dx as an adult....I don't know of any other books, I haven't researched it to much....

Let me know if you find something good,

Jennifer

 

[JennifersHope]

I am thinking this is the same one but when I first went to the CF center, the social worker gave me this book called "Cystic Fibrosis Third Edition A guide for Patient and Family" the author is David Orenstein.... which leads me to think it is the same one you have..

To be honest this book is thicker then a bible, and I haven't read to much of it because it still overwhelmes me and I get anxiety when I read it..... A different book I have that I did read some of is

"Now That I Have CF" Information for Men and Women Diagnosed As Adults.... Of course it only applies really if you were dx as an adult....I don't know of any other books, I haven't researched it to much....

Let me know if you find something good,

Jennifer

 

[Jane]

Thanks Melissa, I'll look.

Jennifer, the book is really thick and scarey, to be honest, we use it more for medical terms and such. We got it free once as a promotion for something.

Sean, That's the best advice EVER!

 

[Jane]

Thanks Melissa, I'll look.

Jennifer, the book is really thick and scarey, to be honest, we use it more for medical terms and such. We got it free once as a promotion for something.

Sean, That's the best advice EVER!

 

[Vampy]

i asked for a book to show rory one day and they gave me this huge binder full of everything u can think of about cf, how to feed a baby with cf, and what not it was awsome i read it alot. it makes me more comfortable about having a baby and they might have cf

 

[Vampy]

i asked for a book to show rory one day and they gave me this huge binder full of everything u can think of about cf, how to feed a baby with cf, and what not it was awsome i read it alot. it makes me more comfortable about having a baby and they might have cf