CF Interactions

2

2perfectboys

Guest
I see, thanks for expalining that. Yeah the Cepacia thing sure changed a lot and scares me to death. I am hoping my boy can make it another 10 years w/o psedo, but I know the odds are against him.... I am not at all a germ freek, I don't go around asking family members if they are sick befire we go or they come over, cause I figure the common colds and viruses are all over, but the older he gets and stays in excellent health, the more of a worry wart I become. He has a boy in his class that he really likes, and this boy has brothers and sisters w/ CF, while I know he can't go over that and play, I even wonder if he could pick up something from this nonCF boy that is one him....I know that may be extreme, CF just plays head games with u sometimes
thanks again
Lori
 
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Allisa35

Member
I had never even heard of CFers needing to stay away from other CFers until my sister's last hospital stay when the RT told her about a friend of her's that had CF. They got talking about the topic. Both my sister and I have CF and we are always around each other. We probably see each other at least once every two weeks or so. We've never made any attempts to stay away from each other (or other CFers). Neither one of us are "social butterflies" anyway and we don't really know anybody else that has CF except one person, so it doesn't really effect us too much. I personally think that it's each individual's choice. I, as an adult, would not limit myself to being around others with CF (except, of course, if I was sick at the time). I think, as an adult, it is your choice to make. But I think by putting those restrictions on us, it is making us to feel more isolated from one another. At least that is my perspective on it.
 
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Allisa35

Member
I had never even heard of CFers needing to stay away from other CFers until my sister's last hospital stay when the RT told her about a friend of her's that had CF. They got talking about the topic. Both my sister and I have CF and we are always around each other. We probably see each other at least once every two weeks or so. We've never made any attempts to stay away from each other (or other CFers). Neither one of us are "social butterflies" anyway and we don't really know anybody else that has CF except one person, so it doesn't really effect us too much. I personally think that it's each individual's choice. I, as an adult, would not limit myself to being around others with CF (except, of course, if I was sick at the time). I think, as an adult, it is your choice to make. But I think by putting those restrictions on us, it is making us to feel more isolated from one another. At least that is my perspective on it.
 
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Allisa35

Member
I had never even heard of CFers needing to stay away from other CFers until my sister's last hospital stay when the RT told her about a friend of her's that had CF. They got talking about the topic. Both my sister and I have CF and we are always around each other. We probably see each other at least once every two weeks or so. We've never made any attempts to stay away from each other (or other CFers). Neither one of us are "social butterflies" anyway and we don't really know anybody else that has CF except one person, so it doesn't really effect us too much. I personally think that it's each individual's choice. I, as an adult, would not limit myself to being around others with CF (except, of course, if I was sick at the time). I think, as an adult, it is your choice to make. But I think by putting those restrictions on us, it is making us to feel more isolated from one another. At least that is my perspective on it.
 
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donnadee

New member
I never knew that we were not supposed to be around other CF'ers. I love this site, I learn so much that my doc has never told me.
 
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donnadee

New member
I never knew that we were not supposed to be around other CF'ers. I love this site, I learn so much that my doc has never told me.
 
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donnadee

New member
I never knew that we were not supposed to be around other CF'ers. I love this site, I learn so much that my doc has never told me.
 
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tammykrumrey

Guest
Even with siblings it is suggested that the kids do their vest and nebbed treatments in seperate bedrooms. That does not happen in my house! My girls do not have TVs in their rooms, and they enjoy watching it when doing their treatments. Not only that, sometimes they like to sit and play games together while doing the vest. They still sleep together also, even though they both have their own seperate bedrooms. It is so hard to think about keeping them apart. When they were toddlers they constantly stole each others binkies, even in their sleep. YUCKY! No real harm done. The do both culture MRSA, but only one has started culturing PA (that was three months ago). I am sure it is only a matter of time before the other starts culturing it also...I just know how special the relationship between my sister and I has been, and I don't want them to miss out on it because of CF.
We do keep my girls away from my nephew wCF, which began when he started culturing B.Cepacia about 6 years ago. And they know to stay away from the other CF child in their school.
 
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tammykrumrey

Guest
Even with siblings it is suggested that the kids do their vest and nebbed treatments in seperate bedrooms. That does not happen in my house! My girls do not have TVs in their rooms, and they enjoy watching it when doing their treatments. Not only that, sometimes they like to sit and play games together while doing the vest. They still sleep together also, even though they both have their own seperate bedrooms. It is so hard to think about keeping them apart. When they were toddlers they constantly stole each others binkies, even in their sleep. YUCKY! No real harm done. The do both culture MRSA, but only one has started culturing PA (that was three months ago). I am sure it is only a matter of time before the other starts culturing it also...I just know how special the relationship between my sister and I has been, and I don't want them to miss out on it because of CF.
We do keep my girls away from my nephew wCF, which began when he started culturing B.Cepacia about 6 years ago. And they know to stay away from the other CF child in their school.
 
T

tammykrumrey

Guest
Even with siblings it is suggested that the kids do their vest and nebbed treatments in seperate bedrooms. That does not happen in my house! My girls do not have TVs in their rooms, and they enjoy watching it when doing their treatments. Not only that, sometimes they like to sit and play games together while doing the vest. They still sleep together also, even though they both have their own seperate bedrooms. It is so hard to think about keeping them apart. When they were toddlers they constantly stole each others binkies, even in their sleep. YUCKY! No real harm done. The do both culture MRSA, but only one has started culturing PA (that was three months ago). I am sure it is only a matter of time before the other starts culturing it also...I just know how special the relationship between my sister and I has been, and I don't want them to miss out on it because of CF.
We do keep my girls away from my nephew wCF, which began when he started culturing B.Cepacia about 6 years ago. And they know to stay away from the other CF child in their school.
 
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