Dr Lisa, I think what you are doing is absolutely fantastic and I am thrilled that someone in the medical profession has taken an interest in this topic and is ACTIVELY doing something about it!
You don't seem one to get discouraged but I still feel the need to state it because I felt the anon. poster was quite rude, specifically in that last post. Please don't let some of the rude comments like that, which DO float around this board, discourage you from posting subsequent surveys on this stie, asking further questions, or visiting and reading. I personally believe what you are doing is incredibly valuable to the CF community and am thrilled by your survey.
I had this huge paragraph written and my computer battery died... I a far too tired to retype it but the general idea was this. 8 years ago my husband was given the somewhat horifficy, life changing, and petentionally harmful (mainly psychologically) news in what I would consider anything but a sensitive and informative manner (as he relays to me, I wasn't there). Since then, so much more has been discovered and there are many more resources that can be utilized. In these times, so many CF clinics are actually located at or very near large hospitals. These hospitals are very likely to have infertility clinics, OBGYN clinics and reproductive doctors/clinics-I can't begin to understand why clinics that treat teens and adults haven't established a close relationship with one of the aforementioned clinics/specialities. They have dieticians that come into clinic visits, social workers, RT?s, nurses and of course the doctors?. Why not an infertility specialist at some point? Especially if the person is expressing and interest in the topic of reproduction and sexuality.
-annon. poster SURVEY monkey is a credible company where people pay to create and utilize assistance in creating productive, in depth surveys for various purposes. Next time before you criticize someone who is inadvertantely assisting you, it might be wise of you to do a tad more research. Quite franly I am surprised that the Doctorlisa even gave you the courtsey of a response but that just goes to show me-and anyone else that she is indeed professional. And did you even look at the questions contained within the survey before you complained about the company base that the survey was created with?
You may remove your foot from your mouth now.
