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CF Liver Disease - Any Therapies in the Pipeline
- Thread starter BlueTurtle
- Start date
Hi Uli,
Yep, we've been tested for that and our daughter also has alpha-1 antitrypsin deficiency. Very unlucky indeed. Our clinic said she was a one in a million! Our GI doc thinks her liver problems are more CF related because of the way the biopsy appears, but you can't ever be sure. Good point to bring up, Uli.
Yep, we've been tested for that and our daughter also has alpha-1 antitrypsin deficiency. Very unlucky indeed. Our clinic said she was a one in a million! Our GI doc thinks her liver problems are more CF related because of the way the biopsy appears, but you can't ever be sure. Good point to bring up, Uli.
Hi Uli,
Yep, we've been tested for that and our daughter also has alpha-1 antitrypsin deficiency. Very unlucky indeed. Our clinic said she was a one in a million! Our GI doc thinks her liver problems are more CF related because of the way the biopsy appears, but you can't ever be sure. Good point to bring up, Uli.
Yep, we've been tested for that and our daughter also has alpha-1 antitrypsin deficiency. Very unlucky indeed. Our clinic said she was a one in a million! Our GI doc thinks her liver problems are more CF related because of the way the biopsy appears, but you can't ever be sure. Good point to bring up, Uli.
Hi Uli,
Yep, we've been tested for that and our daughter also has alpha-1 antitrypsin deficiency. Very unlucky indeed. Our clinic said she was a one in a million! Our GI doc thinks her liver problems are more CF related because of the way the biopsy appears, but you can't ever be sure. Good point to bring up, Uli.
Yep, we've been tested for that and our daughter also has alpha-1 antitrypsin deficiency. Very unlucky indeed. Our clinic said she was a one in a million! Our GI doc thinks her liver problems are more CF related because of the way the biopsy appears, but you can't ever be sure. Good point to bring up, Uli.
Uli,
Leila does not receive Prolastin because of her age. It doesn't treat the liver disease and according to her docs we shouldn't see lung problems from the A1AT until she is older. She is the most severe form, PiZZ, so I imagine that we'll use it eventually. I'm not really sure at what age, though. How do you know about A1AT?
Leila does not receive Prolastin because of her age. It doesn't treat the liver disease and according to her docs we shouldn't see lung problems from the A1AT until she is older. She is the most severe form, PiZZ, so I imagine that we'll use it eventually. I'm not really sure at what age, though. How do you know about A1AT?
Uli,
Leila does not receive Prolastin because of her age. It doesn't treat the liver disease and according to her docs we shouldn't see lung problems from the A1AT until she is older. She is the most severe form, PiZZ, so I imagine that we'll use it eventually. I'm not really sure at what age, though. How do you know about A1AT?
Leila does not receive Prolastin because of her age. It doesn't treat the liver disease and according to her docs we shouldn't see lung problems from the A1AT until she is older. She is the most severe form, PiZZ, so I imagine that we'll use it eventually. I'm not really sure at what age, though. How do you know about A1AT?
Uli,
Leila does not receive Prolastin because of her age. It doesn't treat the liver disease and according to her docs we shouldn't see lung problems from the A1AT until she is older. She is the most severe form, PiZZ, so I imagine that we'll use it eventually. I'm not really sure at what age, though. How do you know about A1AT?
Leila does not receive Prolastin because of her age. It doesn't treat the liver disease and according to her docs we shouldn't see lung problems from the A1AT until she is older. She is the most severe form, PiZZ, so I imagine that we'll use it eventually. I'm not really sure at what age, though. How do you know about A1AT?