Cf Medical Bills

CowTown

New member
I live in California and there's a State funded program that covers about 8 different illnesses, and CF is one them. Without them, I'd be up the creek! I don't have any idea how people do it who live outside CA. That's crazy money and it boggles my mind.
 

CowTown

New member
I live in California and there's a State funded program that covers about 8 different illnesses, and CF is one them. Without them, I'd be up the creek! I don't have any idea how people do it who live outside CA. That's crazy money and it boggles my mind.
 

wuffles

New member
Australia has a system called PBS which means we get reduced-rate prescriptions. The most you will pay for MOST prescriptions is AU$30. Some people have a concession card (for example if they are receiving disability pension) which means each prescription costs around AU$5.

We also have Medicare, which subsidises doctor's visits. There are Medicare and PBS Safety Nets which mean once you spend a certain amount (AU$600-$800/year) on medication or Medicare-approved services, you pay a reduced amount.

Our public hospital system is generally cheap. Private insurance can be expensive but is often the only way you can guarantee hospital admissions when you need it!

In saying that, though, it's still pretty expensive. I spend *just* under the PBS Safety Net in medication, but my biggest expense comes from items that aren't covered like vitamins, nasal spray, specialist appointments.
 

wuffles

New member
Australia has a system called PBS which means we get reduced-rate prescriptions. The most you will pay for MOST prescriptions is AU$30. Some people have a concession card (for example if they are receiving disability pension) which means each prescription costs around AU$5.

We also have Medicare, which subsidises doctor's visits. There are Medicare and PBS Safety Nets which mean once you spend a certain amount (AU$600-$800/year) on medication or Medicare-approved services, you pay a reduced amount.

Our public hospital system is generally cheap. Private insurance can be expensive but is often the only way you can guarantee hospital admissions when you need it!

In saying that, though, it's still pretty expensive. I spend *just* under the PBS Safety Net in medication, but my biggest expense comes from items that aren't covered like vitamins, nasal spray, specialist appointments.
 

anonymous

New member
Does anyone know of any programs in the U.S. that will cover you even if you HAVE insurances? Like, to help with copays and stuff the insurance won't cover? Just curious. I am a resident of ND, but live in NV.
Good for those of you who have you meds covered! What a blessing! My meds add up to nearly $2,000 + a month.... I know I talk bad about insurance companies, but I am so greatful they cover most of my costs.
Sonia
 

anonymous

New member
Does anyone know of any programs in the U.S. that will cover you even if you HAVE insurances? Like, to help with copays and stuff the insurance won't cover? Just curious. I am a resident of ND, but live in NV.
Good for those of you who have you meds covered! What a blessing! My meds add up to nearly $2,000 + a month.... I know I talk bad about insurance companies, but I am so greatful they cover most of my costs.
Sonia
 

anonymous

New member
my son has private health insurance through my husbands employer. we pay 100 dollars a week for a family of 4. he also is covered by children with special health needs until he is i think 18, unless we go over the income guideline which i think is 46,000. they cover copays, deductibles on anything that is cf related. he is also covered under a free care program at the local hospital. his ped works for the hospital so all of the copays for her are covered as well as anything done in the hospital. i found out about this after we were denied medicaid because we make too much money.. the free care has been really helpful though because he sees his pediatritan WAY more than the cf clinic and the copays were eating us alive.......



Melissa mom to dylan 7 no cf and caleb 4wcf
 

anonymous

New member
my son has private health insurance through my husbands employer. we pay 100 dollars a week for a family of 4. he also is covered by children with special health needs until he is i think 18, unless we go over the income guideline which i think is 46,000. they cover copays, deductibles on anything that is cf related. he is also covered under a free care program at the local hospital. his ped works for the hospital so all of the copays for her are covered as well as anything done in the hospital. i found out about this after we were denied medicaid because we make too much money.. the free care has been really helpful though because he sees his pediatritan WAY more than the cf clinic and the copays were eating us alive.......



Melissa mom to dylan 7 no cf and caleb 4wcf
 

dezilou0619

New member
Forgive me I do not know how to address you,

I need to know what the name of the program you are on in CA. You see my son, Dustin is 3 now, and he is going next thursday for his sweat test. I carry the CF gene, and we do not know about his father. We got a divorce when Dustin was a year old, and he is no longer in the picture. I live in Modesto, CA. Any help you could give me would be great. I just don't know what to ask for, or what to do if... I just need to be prepaired that is all.

Thanks,

Desiree
 

dezilou0619

New member
Forgive me I do not know how to address you,

I need to know what the name of the program you are on in CA. You see my son, Dustin is 3 now, and he is going next thursday for his sweat test. I carry the CF gene, and we do not know about his father. We got a divorce when Dustin was a year old, and he is no longer in the picture. I live in Modesto, CA. Any help you could give me would be great. I just don't know what to ask for, or what to do if... I just need to be prepaired that is all.

Thanks,

Desiree
 

Brad

New member
<img src="i/expressions/face-icon-small-blush.gif" border="0"> Hello I live in the US. Virginia.
Lucky for me I do work and have Health Insurance, for now....

I was out of work a few years back, not insured, no programs for meds here.
I was lucky during that time that I stayed well and didn't need much more
than my Nebs, I was able to get those with the help of a family member who
also hac Cf.

I don't know what I am going to do when the times comes that I can't work

Maybe I will move to Canada <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

Brad

New member
<img src="i/expressions/face-icon-small-blush.gif" border="0"> Hello I live in the US. Virginia.
Lucky for me I do work and have Health Insurance, for now....

I was out of work a few years back, not insured, no programs for meds here.
I was lucky during that time that I stayed well and didn't need much more
than my Nebs, I was able to get those with the help of a family member who
also hac Cf.

I don't know what I am going to do when the times comes that I can't work

Maybe I will move to Canada <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

CowTown

New member
Hi Desiree,
As a youngster to when I was 21, I was on private insurance and then later as a dependant on my mom's insurance. Once you are 21, you're eligible for GHPP (Genitically Handicapped Persons Program) if your primary residence is California. I'm not sure what they offer or if they offer any coverage if you are under 21. Here is their web site: http://www.dhs.ca.gov/pcfh/cms/ghpp/

I've found that the nurses at CF clinics have a lot of helpful information when it comes to where to turn. You could ask them if GHPP doesn't work out for you. Good Luck, and hopefully Dustin's sweat test turns out negative.

Kelly
 

CowTown

New member
Hi Desiree,
As a youngster to when I was 21, I was on private insurance and then later as a dependant on my mom's insurance. Once you are 21, you're eligible for GHPP (Genitically Handicapped Persons Program) if your primary residence is California. I'm not sure what they offer or if they offer any coverage if you are under 21. Here is their web site: http://www.dhs.ca.gov/pcfh/cms/ghpp/

I've found that the nurses at CF clinics have a lot of helpful information when it comes to where to turn. You could ask them if GHPP doesn't work out for you. Good Luck, and hopefully Dustin's sweat test turns out negative.

Kelly
 
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