Ok, a couple of updates today. I still have not received any voice mails. I would really love to add this personal touch to the song, which is really coming together well. I will re-post some of the questions to make it easier for you to think of something to say. State your name and answer one of the following:
1. How have you overcome CF and done something you never thought you would/could?
2. How has having a child with CF affected your life?
3. Has having CF made you push yourself harder to accomplish your goals? What are those goals?
4. Do you want to remember a person who lost their battle with CF?
5. If you are a healthcare professional, tell us about your passion for helping to keep people with CF healthy.
6: What does having CF mean to you?
7: What are some ways CF affects your life?
8: If you could summarize the full experience of having CF in a few words, what would you say?
The number to call is 814-395-2873, leave a voicemail. Don't worry about screwing up, we will edit out mistakes.
The second announcement is that the funds generated by the song will go to the Kevin A Pryzbyl Breathe Easy Foundation, which helps families and patients with CF pay for medications, hospital bills, etc. Kevin is one of our own here on the forum, so we are excited to be able to help out his cause, which benefits CFers directly.
We will be recording in the studio starting on the 19th.
I'm going to add a poll to this post to find out whether there is any actual interest from anybody in helping out with this project. If there isn't interest I'll quit bugging everyone and focus more of my energy on other tasks to be done.
I do have to say that I'm rather disappointed at the lack of involvement thus far. Entropy and I have put a lot of work into this and it really stings when people don't seem to care. Maybe everyone thought that it was never going to come to fruition, because it did take a while to get things moving. But rest assured that we will have everything wrapped by mid march or so and will then start the promotion and marketing phase.
This could be a huge opportunity to help our fellow CFers who are having financial troubles. There are almost 12,000 registered users on this forum, multiply that by their friends and family, all the docs, nurses and respiratory techs at all the CF clinics across the US and $1 a song and, well, you do the math.
Thank you in advance for your support.
1. How have you overcome CF and done something you never thought you would/could?
2. How has having a child with CF affected your life?
3. Has having CF made you push yourself harder to accomplish your goals? What are those goals?
4. Do you want to remember a person who lost their battle with CF?
5. If you are a healthcare professional, tell us about your passion for helping to keep people with CF healthy.
6: What does having CF mean to you?
7: What are some ways CF affects your life?
8: If you could summarize the full experience of having CF in a few words, what would you say?
The number to call is 814-395-2873, leave a voicemail. Don't worry about screwing up, we will edit out mistakes.
The second announcement is that the funds generated by the song will go to the Kevin A Pryzbyl Breathe Easy Foundation, which helps families and patients with CF pay for medications, hospital bills, etc. Kevin is one of our own here on the forum, so we are excited to be able to help out his cause, which benefits CFers directly.
We will be recording in the studio starting on the 19th.
I'm going to add a poll to this post to find out whether there is any actual interest from anybody in helping out with this project. If there isn't interest I'll quit bugging everyone and focus more of my energy on other tasks to be done.
I do have to say that I'm rather disappointed at the lack of involvement thus far. Entropy and I have put a lot of work into this and it really stings when people don't seem to care. Maybe everyone thought that it was never going to come to fruition, because it did take a while to get things moving. But rest assured that we will have everything wrapped by mid march or so and will then start the promotion and marketing phase.
This could be a huge opportunity to help our fellow CFers who are having financial troubles. There are almost 12,000 registered users on this forum, multiply that by their friends and family, all the docs, nurses and respiratory techs at all the CF clinics across the US and $1 a song and, well, you do the math.
Thank you in advance for your support.