My dd had a sweat test 2 years ago which turned out to be a borderline reading of 41. After 2 years of ongoing stomach issues and chronic cough I began some extensive research into her old records and as I did research I realized that her test fell into the borderline range and demanded that she is retested. Her levels came back borderline the second time with a 43. I am currently waiting for a pre-authorization from my insurance to do the genetic testing, but in the mean time I am researching and panicking. She also had a fecal Calprotectin test to measure inflammation in GI tract, and the results revealed an 164. Normal readings are >50. Indicative of IBD. My question is why is her CF levels borderline if she doesn't have CF? Is there something else that would cause elevated sweat chloride? Has anyone gotten borderline readings and turned out to not have CF? I am so confused, helpless, and overwhelmed.. any support and advice is VERY much welcomed!! ~Tiffany<img src="i/expressions/face-icon-small-confused.gif" border="0">
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
CF or No CF? desperate for advice.. anyone?!
- Thread starter makahfili
- Start date
My dd had a sweat test 2 years ago which turned out to be a borderline reading of 41. After 2 years of ongoing stomach issues and chronic cough I began some extensive research into her old records and as I did research I realized that her test fell into the borderline range and demanded that she is retested. Her levels came back borderline the second time with a 43. I am currently waiting for a pre-authorization from my insurance to do the genetic testing, but in the mean time I am researching and panicking. She also had a fecal Calprotectin test to measure inflammation in GI tract, and the results revealed an 164. Normal readings are >50. Indicative of IBD. My question is why is her CF levels borderline if she doesn't have CF? Is there something else that would cause elevated sweat chloride? Has anyone gotten borderline readings and turned out to not have CF? I am so confused, helpless, and overwhelmed.. any support and advice is VERY much welcomed!! ~Tiffany<img src="i/expressions/face-icon-small-confused.gif" border="0">
My dd had a sweat test 2 years ago which turned out to be a borderline reading of 41. After 2 years of ongoing stomach issues and chronic cough I began some extensive research into her old records and as I did research I realized that her test fell into the borderline range and demanded that she is retested. Her levels came back borderline the second time with a 43. I am currently waiting for a pre-authorization from my insurance to do the genetic testing, but in the mean time I am researching and panicking. She also had a fecal Calprotectin test to measure inflammation in GI tract, and the results revealed an 164. Normal readings are >50. Indicative of IBD. My question is why is her CF levels borderline if she doesn't have CF? Is there something else that would cause elevated sweat chloride? Has anyone gotten borderline readings and turned out to not have CF? I am so confused, helpless, and overwhelmed.. any support and advice is VERY much welcomed!! ~Tiffany<img src="i/expressions/face-icon-small-confused.gif" border="0">
My dd had a sweat test 2 years ago which turned out to be a borderline reading of 41. After 2 years of ongoing stomach issues and chronic cough I began some extensive research into her old records and as I did research I realized that her test fell into the borderline range and demanded that she is retested. Her levels came back borderline the second time with a 43. I am currently waiting for a pre-authorization from my insurance to do the genetic testing, but in the mean time I am researching and panicking. She also had a fecal Calprotectin test to measure inflammation in GI tract, and the results revealed an 164. Normal readings are >50. Indicative of IBD. My question is why is her CF levels borderline if she doesn't have CF? Is there something else that would cause elevated sweat chloride? Has anyone gotten borderline readings and turned out to not have CF? I am so confused, helpless, and overwhelmed.. any support and advice is VERY much welcomed!! ~Tiffany<img src="i/expressions/face-icon-small-confused.gif" border="0">
My dd had a sweat test 2 years ago which turned out to be a borderline reading of 41. After 2 years of ongoing stomach issues and chronic cough I began some extensive research into her old records and as I did research I realized that her test fell into the borderline range and demanded that she is retested. Her levels came back borderline the second time with a 43. I am currently waiting for a pre-authorization from my insurance to do the genetic testing, but in the mean time I am researching and panicking. She also had a fecal Calprotectin test to measure inflammation in GI tract, and the results revealed an 164. Normal readings are >50. Indicative of IBD. My question is why is her CF levels borderline if she doesn't have CF? Is there something else that would cause elevated sweat chloride? Has anyone gotten borderline readings and turned out to not have CF? I am so confused, helpless, and overwhelmed.. any support and advice is VERY much welcomed!! ~Tiffany<img src="i/expressions/face-icon-small-confused.gif" border="0">
First of all welcome, if it turns out your daughter has CF, know that you will have a family that will welcome & support you.
That said, there is not going to be any way to know without the genetic testing. The results are inconclusive as you have figured out. While stressful, this is not abnormal <img src="i/expressions/face-icon-small-sad.gif" border="0"> You don't mention any symptoms, but I'm assuming you/the Dr's are seeing enough to question CF so don't let up until they give you a clear answer.
You asked about the sweat test. Unfortunately, there may be no reason for the results if it is not CF. Sweat test results are notoriously unstable, there is a lot to do with the person testing. Borderline just means they didn't get a clear picture either way.
I will cross my fingers your insurance goes with the genetic screening so you will know for sure either way.
That said, there is not going to be any way to know without the genetic testing. The results are inconclusive as you have figured out. While stressful, this is not abnormal <img src="i/expressions/face-icon-small-sad.gif" border="0"> You don't mention any symptoms, but I'm assuming you/the Dr's are seeing enough to question CF so don't let up until they give you a clear answer.
You asked about the sweat test. Unfortunately, there may be no reason for the results if it is not CF. Sweat test results are notoriously unstable, there is a lot to do with the person testing. Borderline just means they didn't get a clear picture either way.
I will cross my fingers your insurance goes with the genetic screening so you will know for sure either way.
First of all welcome, if it turns out your daughter has CF, know that you will have a family that will welcome & support you.
That said, there is not going to be any way to know without the genetic testing. The results are inconclusive as you have figured out. While stressful, this is not abnormal <img src="i/expressions/face-icon-small-sad.gif" border="0"> You don't mention any symptoms, but I'm assuming you/the Dr's are seeing enough to question CF so don't let up until they give you a clear answer.
You asked about the sweat test. Unfortunately, there may be no reason for the results if it is not CF. Sweat test results are notoriously unstable, there is a lot to do with the person testing. Borderline just means they didn't get a clear picture either way.
I will cross my fingers your insurance goes with the genetic screening so you will know for sure either way.
That said, there is not going to be any way to know without the genetic testing. The results are inconclusive as you have figured out. While stressful, this is not abnormal <img src="i/expressions/face-icon-small-sad.gif" border="0"> You don't mention any symptoms, but I'm assuming you/the Dr's are seeing enough to question CF so don't let up until they give you a clear answer.
You asked about the sweat test. Unfortunately, there may be no reason for the results if it is not CF. Sweat test results are notoriously unstable, there is a lot to do with the person testing. Borderline just means they didn't get a clear picture either way.
I will cross my fingers your insurance goes with the genetic screening so you will know for sure either way.
First of all welcome, if it turns out your daughter has CF, know that you will have a family that will welcome & support you.
That said, there is not going to be any way to know without the genetic testing. The results are inconclusive as you have figured out. While stressful, this is not abnormal <img src="i/expressions/face-icon-small-sad.gif" border="0"> You don't mention any symptoms, but I'm assuming you/the Dr's are seeing enough to question CF so don't let up until they give you a clear answer.
You asked about the sweat test. Unfortunately, there may be no reason for the results if it is not CF. Sweat test results are notoriously unstable, there is a lot to do with the person testing. Borderline just means they didn't get a clear picture either way.
I will cross my fingers your insurance goes with the genetic screening so you will know for sure either way.
That said, there is not going to be any way to know without the genetic testing. The results are inconclusive as you have figured out. While stressful, this is not abnormal <img src="i/expressions/face-icon-small-sad.gif" border="0"> You don't mention any symptoms, but I'm assuming you/the Dr's are seeing enough to question CF so don't let up until they give you a clear answer.
You asked about the sweat test. Unfortunately, there may be no reason for the results if it is not CF. Sweat test results are notoriously unstable, there is a lot to do with the person testing. Borderline just means they didn't get a clear picture either way.
I will cross my fingers your insurance goes with the genetic screening so you will know for sure either way.
First of all welcome, if it turns out your daughter has CF, know that you will have a family that will welcome & support you.
That said, there is not going to be any way to know without the genetic testing. The results are inconclusive as you have figured out. While stressful, this is not abnormal <img src="i/expressions/face-icon-small-sad.gif" border="0"> You don't mention any symptoms, but I'm assuming you/the Dr's are seeing enough to question CF so don't let up until they give you a clear answer.
You asked about the sweat test. Unfortunately, there may be no reason for the results if it is not CF. Sweat test results are notoriously unstable, there is a lot to do with the person testing. Borderline just means they didn't get a clear picture either way.
I will cross my fingers your insurance goes with the genetic screening so you will know for sure either way.
That said, there is not going to be any way to know without the genetic testing. The results are inconclusive as you have figured out. While stressful, this is not abnormal <img src="i/expressions/face-icon-small-sad.gif" border="0"> You don't mention any symptoms, but I'm assuming you/the Dr's are seeing enough to question CF so don't let up until they give you a clear answer.
You asked about the sweat test. Unfortunately, there may be no reason for the results if it is not CF. Sweat test results are notoriously unstable, there is a lot to do with the person testing. Borderline just means they didn't get a clear picture either way.
I will cross my fingers your insurance goes with the genetic screening so you will know for sure either way.
First of all welcome, if it turns out your daughter has CF, know that you will have a family that will welcome & support you.
<br />
<br />That said, there is not going to be any way to know without the genetic testing. The results are inconclusive as you have figured out. While stressful, this is not abnormal <img src="i/expressions/face-icon-small-sad.gif" border="0"> You don't mention any symptoms, but I'm assuming you/the Dr's are seeing enough to question CF so don't let up until they give you a clear answer.
<br />
<br />You asked about the sweat test. Unfortunately, there may be no reason for the results if it is not CF. Sweat test results are notoriously unstable, there is a lot to do with the person testing. Borderline just means they didn't get a clear picture either way.
<br />
<br />I will cross my fingers your insurance goes with the genetic screening so you will know for sure either way.
<br />
<br />That said, there is not going to be any way to know without the genetic testing. The results are inconclusive as you have figured out. While stressful, this is not abnormal <img src="i/expressions/face-icon-small-sad.gif" border="0"> You don't mention any symptoms, but I'm assuming you/the Dr's are seeing enough to question CF so don't let up until they give you a clear answer.
<br />
<br />You asked about the sweat test. Unfortunately, there may be no reason for the results if it is not CF. Sweat test results are notoriously unstable, there is a lot to do with the person testing. Borderline just means they didn't get a clear picture either way.
<br />
<br />I will cross my fingers your insurance goes with the genetic screening so you will know for sure either way.
thank you so much for the response. She has very bad GI problems. Chronic constipation, and abdominal pain daily. We have been battling this her whole life but been getting the run around with docs. I too have suffered through chronic abdominal pain, biliary sludging, enlarged liver, pancreatic symptoms my whole life. On top of all this, she has had chronic lung problems. Diagnosed with asthma originally, but doesn't seem to be the problem. Brochitis often, croup, pnemonia, among other issues. Her stomach has gotten so bad at one time, she was projectile vomiting, screaming in pain. Like I said we have gotten the run around. My youngest had meconium at birth and pnemonia at 2 weeks, hospitalized for a week. She has yet to undergo any testing as well as myself... Do these sound CFish? Any advice helps!!!!!!!!!!!!!!!
thank you so much for the response. She has very bad GI problems. Chronic constipation, and abdominal pain daily. We have been battling this her whole life but been getting the run around with docs. I too have suffered through chronic abdominal pain, biliary sludging, enlarged liver, pancreatic symptoms my whole life. On top of all this, she has had chronic lung problems. Diagnosed with asthma originally, but doesn't seem to be the problem. Brochitis often, croup, pnemonia, among other issues. Her stomach has gotten so bad at one time, she was projectile vomiting, screaming in pain. Like I said we have gotten the run around. My youngest had meconium at birth and pnemonia at 2 weeks, hospitalized for a week. She has yet to undergo any testing as well as myself... Do these sound CFish? Any advice helps!!!!!!!!!!!!!!!
thank you so much for the response. She has very bad GI problems. Chronic constipation, and abdominal pain daily. We have been battling this her whole life but been getting the run around with docs. I too have suffered through chronic abdominal pain, biliary sludging, enlarged liver, pancreatic symptoms my whole life. On top of all this, she has had chronic lung problems. Diagnosed with asthma originally, but doesn't seem to be the problem. Brochitis often, croup, pnemonia, among other issues. Her stomach has gotten so bad at one time, she was projectile vomiting, screaming in pain. Like I said we have gotten the run around. My youngest had meconium at birth and pnemonia at 2 weeks, hospitalized for a week. She has yet to undergo any testing as well as myself... Do these sound CFish? Any advice helps!!!!!!!!!!!!!!!
thank you so much for the response. She has very bad GI problems. Chronic constipation, and abdominal pain daily. We have been battling this her whole life but been getting the run around with docs. I too have suffered through chronic abdominal pain, biliary sludging, enlarged liver, pancreatic symptoms my whole life. On top of all this, she has had chronic lung problems. Diagnosed with asthma originally, but doesn't seem to be the problem. Brochitis often, croup, pnemonia, among other issues. Her stomach has gotten so bad at one time, she was projectile vomiting, screaming in pain. Like I said we have gotten the run around. My youngest had meconium at birth and pnemonia at 2 weeks, hospitalized for a week. She has yet to undergo any testing as well as myself... Do these sound CFish? Any advice helps!!!!!!!!!!!!!!!
thank you so much for the response. She has very bad GI problems. Chronic constipation, and abdominal pain daily. We have been battling this her whole life but been getting the run around with docs. I too have suffered through chronic abdominal pain, biliary sludging, enlarged liver, pancreatic symptoms my whole life. On top of all this, she has had chronic lung problems. Diagnosed with asthma originally, but doesn't seem to be the problem. Brochitis often, croup, pnemonia, among other issues. Her stomach has gotten so bad at one time, she was projectile vomiting, screaming in pain. Like I said we have gotten the run around. My youngest had meconium at birth and pnemonia at 2 weeks, hospitalized for a week. She has yet to undergo any testing as well as myself... Do these sound CFish? Any advice helps!!!!!!!!!!!!!!!
Hello & welcome. I'm so sorry that you are struggling like this to find answers. Unfortunately, we see a lot of this around here.
I simply cannot believe that with MI, your youngest wasn't tested for CF. All of the symptoms you've mentioned sound exactly like CF. Push for that genetic testing. Make sure that they test for all known mutations. There are over 1500 of them now.
I hope you can get some answers soon. Keep us posted.
Stacey
I simply cannot believe that with MI, your youngest wasn't tested for CF. All of the symptoms you've mentioned sound exactly like CF. Push for that genetic testing. Make sure that they test for all known mutations. There are over 1500 of them now.
I hope you can get some answers soon. Keep us posted.
Stacey
Hello & welcome. I'm so sorry that you are struggling like this to find answers. Unfortunately, we see a lot of this around here.
I simply cannot believe that with MI, your youngest wasn't tested for CF. All of the symptoms you've mentioned sound exactly like CF. Push for that genetic testing. Make sure that they test for all known mutations. There are over 1500 of them now.
I hope you can get some answers soon. Keep us posted.
Stacey
I simply cannot believe that with MI, your youngest wasn't tested for CF. All of the symptoms you've mentioned sound exactly like CF. Push for that genetic testing. Make sure that they test for all known mutations. There are over 1500 of them now.
I hope you can get some answers soon. Keep us posted.
Stacey
Hello & welcome. I'm so sorry that you are struggling like this to find answers. Unfortunately, we see a lot of this around here.
I simply cannot believe that with MI, your youngest wasn't tested for CF. All of the symptoms you've mentioned sound exactly like CF. Push for that genetic testing. Make sure that they test for all known mutations. There are over 1500 of them now.
I hope you can get some answers soon. Keep us posted.
Stacey
I simply cannot believe that with MI, your youngest wasn't tested for CF. All of the symptoms you've mentioned sound exactly like CF. Push for that genetic testing. Make sure that they test for all known mutations. There are over 1500 of them now.
I hope you can get some answers soon. Keep us posted.
Stacey
Hello & welcome. I'm so sorry that you are struggling like this to find answers. Unfortunately, we see a lot of this around here.
I simply cannot believe that with MI, your youngest wasn't tested for CF. All of the symptoms you've mentioned sound exactly like CF. Push for that genetic testing. Make sure that they test for all known mutations. There are over 1500 of them now.
I hope you can get some answers soon. Keep us posted.
Stacey
I simply cannot believe that with MI, your youngest wasn't tested for CF. All of the symptoms you've mentioned sound exactly like CF. Push for that genetic testing. Make sure that they test for all known mutations. There are over 1500 of them now.
I hope you can get some answers soon. Keep us posted.
Stacey
Hello & welcome. I'm so sorry that you are struggling like this to find answers. Unfortunately, we see a lot of this around here.
<br />
<br />I simply cannot believe that with MI, your youngest wasn't tested for CF. All of the symptoms you've mentioned sound exactly like CF. Push for that genetic testing. Make sure that they test for all known mutations. There are over 1500 of them now.
<br />
<br />I hope you can get some answers soon. Keep us posted.
<br />
<br />
<br />Stacey
<br />
<br />I simply cannot believe that with MI, your youngest wasn't tested for CF. All of the symptoms you've mentioned sound exactly like CF. Push for that genetic testing. Make sure that they test for all known mutations. There are over 1500 of them now.
<br />
<br />I hope you can get some answers soon. Keep us posted.
<br />
<br />
<br />Stacey