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CF or Primary Ciliary Dyskinesia? New to mucus clearing disorders.
- Thread starter Beccamom
- Start date
No I did not get a private message. Thanks your trying to help me. My daughter got admitted to the hospital today. I think that only happened because she coughed till she threw up all night. Her pulmonologist did come to see her and she is getting IV antibiotics and started Chest PT which I will be trained to do tomorrow. I feel like this doctor is taking her care seriously and treating her like CF.
No I did not get a private message. Thanks your trying to help me. My daughter got admitted to the hospital today. I think that only happened because she coughed till she threw up all night. Her pulmonologist did come to see her and she is getting IV antibiotics and started Chest PT which I will be trained to do tomorrow. I feel like this doctor is taking her care seriously and treating her like CF.
No I did not get a private message. Thanks your trying to help me. My daughter got admitted to the hospital today. I think that only happened because she coughed till she threw up all night. Her pulmonologist did come to see her and she is getting IV antibiotics and started Chest PT which I will be trained to do tomorrow. I feel like this doctor is taking her care seriously and treating her like CF.
I definately understand your point of view about not getting the proper treatment without the diagnosis. At the ER today the resident tried to tell me my daughter had a stomach bug because she threw up all night. She could care less that she only threw up each time she had a coughing fit even after she witnessed it over and over. So then the ER attending came in with a new story and then tried to tell me that with a negative sweat test she definately did not have CF. I told her to go talk to my daughter's pulmonologist and he can plan appropriately for her care. So then the head of the ER came in. At this point he told me he spoke to her pulmonologist and he started her on IV antibiotics and admitted her. As we were being escorted to the inpatient room we ran into her pulmonologist who said he just found out she was in the ER through a back door (long story) and this was about 5 hours after the head of the ER told us he spoke to her pulmonologist.
I am so thankful that this forum has helped to to learn about what care my child needs so that I can be a better advocate for her. What wonderful people are on this forum.
I am so thankful that this forum has helped to to learn about what care my child needs so that I can be a better advocate for her. What wonderful people are on this forum.
I definately understand your point of view about not getting the proper treatment without the diagnosis. At the ER today the resident tried to tell me my daughter had a stomach bug because she threw up all night. She could care less that she only threw up each time she had a coughing fit even after she witnessed it over and over. So then the ER attending came in with a new story and then tried to tell me that with a negative sweat test she definately did not have CF. I told her to go talk to my daughter's pulmonologist and he can plan appropriately for her care. So then the head of the ER came in. At this point he told me he spoke to her pulmonologist and he started her on IV antibiotics and admitted her. As we were being escorted to the inpatient room we ran into her pulmonologist who said he just found out she was in the ER through a back door (long story) and this was about 5 hours after the head of the ER told us he spoke to her pulmonologist.
I am so thankful that this forum has helped to to learn about what care my child needs so that I can be a better advocate for her. What wonderful people are on this forum.
I am so thankful that this forum has helped to to learn about what care my child needs so that I can be a better advocate for her. What wonderful people are on this forum.
I definately understand your point of view about not getting the proper treatment without the diagnosis. At the ER today the resident tried to tell me my daughter had a stomach bug because she threw up all night. She could care less that she only threw up each time she had a coughing fit even after she witnessed it over and over. So then the ER attending came in with a new story and then tried to tell me that with a negative sweat test she definately did not have CF. I told her to go talk to my daughter's pulmonologist and he can plan appropriately for her care. So then the head of the ER came in. At this point he told me he spoke to her pulmonologist and he started her on IV antibiotics and admitted her. As we were being escorted to the inpatient room we ran into her pulmonologist who said he just found out she was in the ER through a back door (long story) and this was about 5 hours after the head of the ER told us he spoke to her pulmonologist.
<br />
<br />I am so thankful that this forum has helped to to learn about what care my child needs so that I can be a better advocate for her. What wonderful people are on this forum.
<br />
<br />I am so thankful that this forum has helped to to learn about what care my child needs so that I can be a better advocate for her. What wonderful people are on this forum.
Oh my goodness, I am so sorry your daughter is in the hospital. But, also so happy she is getting good care. It does sound like the pulmonologist is taking it seriously, no matter what the diagnosis will finally be. I will keep you all in my thoughts and hope to hear a good update soon.
Oh my goodness, I am so sorry your daughter is in the hospital. But, also so happy she is getting good care. It does sound like the pulmonologist is taking it seriously, no matter what the diagnosis will finally be. I will keep you all in my thoughts and hope to hear a good update soon.
Oh my goodness, I am so sorry your daughter is in the hospital. But, also so happy she is getting good care. It does sound like the pulmonologist is taking it seriously, no matter what the diagnosis will finally be. I will keep you all in my thoughts and hope to hear a good update soon.