I am new to the forum...my daughter was diagnosed about 2 years ago. She is now 3 and doing well. I am starting to learn how to deal with my feelings. Talking with my husband helps, since he is truly the only one who knows how I feel. Our little girl is sick, not a niece or a friend, but the little one that we made together. He is a great strength & we lean on each other. He has dove into exercising because he feels if we set the example for our children, then a healthy lifestyle is how they will live (even our older son w/o CF). We try to stay optimistic & look to the future of science for Erin's continued success. We have recently gotten back into church. That has been wonderful and really helped. I try to have some time to myself everyday, but with two kids...not easy! I have also taken my husband's advice & started running again & we both want to do a triathalon. I gained weight after her diagnosis because I was so focused on her & getting her to gain weight, I forgot to take care of myself. The best advice is try to find someone you trust & that can understand how you feel. Keeping things bottled up only hurts. I was told by another cf mother that I will think about cf everday. She was right, now at least I don't think about it every hour! Also, educating myself helps. When she goes for her check-ups or starts another medication, if I am familiar with the terminology, I am not so overwhelmed. We also have decided to be a "cf family" if that makes any sense. We want Erin to know that we are in it together...all of us. We don't want her to be defined by an illness & want to give her the strength & courage she will need to live a full life. If you ever want to talk, you can email me at curecf@adelphia.net
Karon
Mother of Erin(3) w/CF & Jon(8) w/o CF