CF Pharmacy or Medicare Part B

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JennifersHope

New member
I have been put back on Pulmozyme, hypertonic saline and Source CF vitamins and enzymes. The last time I was on any of these I was working and had insurance.
I now have Medicare Part A, B, and D. with special medication assistance and then Medicaid as my secondary..or at least that is how I understand it.
I am absoultely confused. I am still in Colorado because after I finished my two week evaluation they found I am shunting blood in my heart through a hole. Which may or may not be the reason I need oxygen so I am waiting for a surgery consult..
It is not real surgery it is just done through the groin kind of like a stent would be put in your heart but they don't do it that way where I live so I am staying here because it just makes the most sense. Though if I don't need the surgery it will have cost me a lot of money to find out I don't.... and that is going to hurt!!!
Anyway, Have any of you dealt with the CF pharmacy before? I called them and I found the girl to be totally absent of any knowledge about how anything worked. I am not sure if I am going to use them but wanted to know other peoples experience with it.
How do you people who are on Medicare get your presciptions that are inhaled. I know it has to go through Part B.. Rite Aide in my town does not bill part B. I heard Walgreens might.
I Have learned so much information here....stuff to really improve lung function and to optimize reflux medications and I can't wait to share..but for now, my head is spinning in a million directions and I am trying to get this straightened out.
Any help is much appreciated. Thanks so much
 
J

JennifersHope

New member
I have been put back on Pulmozyme, hypertonic saline and Source CF vitamins and enzymes. The last time I was on any of these I was working and had insurance.
I now have Medicare Part A, B, and D. with special medication assistance and then Medicaid as my secondary..or at least that is how I understand it.
I am absoultely confused. I am still in Colorado because after I finished my two week evaluation they found I am shunting blood in my heart through a hole. Which may or may not be the reason I need oxygen so I am waiting for a surgery consult..
It is not real surgery it is just done through the groin kind of like a stent would be put in your heart but they don't do it that way where I live so I am staying here because it just makes the most sense. Though if I don't need the surgery it will have cost me a lot of money to find out I don't.... and that is going to hurt!!!
Anyway, Have any of you dealt with the CF pharmacy before? I called them and I found the girl to be totally absent of any knowledge about how anything worked. I am not sure if I am going to use them but wanted to know other peoples experience with it.
How do you people who are on Medicare get your presciptions that are inhaled. I know it has to go through Part B.. Rite Aide in my town does not bill part B. I heard Walgreens might.
I Have learned so much information here....stuff to really improve lung function and to optimize reflux medications and I can't wait to share..but for now, my head is spinning in a million directions and I am trying to get this straightened out.
Any help is much appreciated. Thanks so much
 
J

JustDucky

New member
I use foundation care and have had no problems with them and I have Medicare as my primary (parts B and D)....maybe you'll have better luck with them! Glad you finally were able to go to Colorado for your work up, can't wait to hear the details!

Jenn 40 wCF
 
J

JustDucky

New member
I use foundation care and have had no problems with them and I have Medicare as my primary (parts B and D)....maybe you'll have better luck with them! Glad you finally were able to go to Colorado for your work up, can't wait to hear the details!

Jenn 40 wCF
 
P

Printer

Active member
I use CF Services for ALMOST EVERYTHING and have done so for several years. Some minor issues on occasion but not as bad as CVS.

Bill
 
P

Printer

Active member
I use CF Services for ALMOST EVERYTHING and have done so for several years. Some minor issues on occasion but not as bad as CVS.

Bill
 
S

stephen

Guest
My experiences with the CF Services Pharmacy have been very positive!

They have been supplying me with Cayston for five years. Most of that time I was working and my insurance coverage was through my employer, with secondary insurance provided by my wife's previous employer.

This fall I retired and became covered by Medicare, with supplemental coverage still provided by my wife's previous employer. The switch-over was not easy to say the least. I found people at the CF Services Pharmacy extremely helpful!

Stephen
70 y/o; FEV 1 of 48%, otherwise feel great thank G-d
 
S

stephen

Guest
My experiences with the CF Services Pharmacy have been very positive!

They have been supplying me with Cayston for five years. Most of that time I was working and my insurance coverage was through my employer, with secondary insurance provided by my wife's previous employer.

This fall I retired and became covered by Medicare, with supplemental coverage still provided by my wife's previous employer. The switch-over was not easy to say the least. I found people at the CF Services Pharmacy extremely helpful!

Stephen
70 y/o; FEV 1 of 48%, otherwise feel great thank G-d
 
H

Havoc

New member
The pharmacy I use now is a mail order pharmacy called Med-Fast and their service is excellent. They are only located in Western Pa, but being mail order, they may ship to anywhere in the lower 48. They deal with a lot of CF patients and they know exactly how to deal with insurance companies.

Foundation Care sound like they are also good, but I have never used them, so I can't comment on that.
 
H

Havoc

New member
The pharmacy I use now is a mail order pharmacy called Med-Fast and their service is excellent. They are only located in Western Pa, but being mail order, they may ship to anywhere in the lower 48. They deal with a lot of CF patients and they know exactly how to deal with insurance companies.

Foundation Care sound like they are also good, but I have never used them, so I can't comment on that.
 
H

hmw

New member
Keep in mind Jenn asked about CF Pharmacy- that is a totally different one based in FL and not affiliated with the CFF or CF Services at all. Jenn, which pharmacy of the two did you talk to?
 
H

hmw

New member
Keep in mind Jenn asked about CF Pharmacy- that is a totally different one based in FL and not affiliated with the CFF or CF Services at all. Jenn, which pharmacy of the two did you talk to?
 
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