I don't do the Vest personally, because I hated it that much. I go with manual PT instead. And I don't take inhaled TOBI. Pulmo gets annoying, in that I have to remember and get off my butt to take it every day, and sometimes (okay, a lot of the time), I just want to be lazy. But I will agree with Courtney in that I hate the ADEKs. Some of the people I've talked to like the taste, but I can't stand it.
Worst meds of all time, though? Are three antibiotics, and not something I'm on constantly. Cipro, Ceftaz, and Meropenem. Cipro doesn't work for my lungs anymore, but that doesn't mean it does nothing. The entire time I'm on it, whenever I am, it tears through my intestines and gives me chronic constant diarrhea. I mean way worse than just normal CF issues. I can't really make any kind of plans where I'm out of the house for too long, because I need to be near a toilet I'm comfortable having diarrhea in. I hate going number 2 in any public bathroom with just "regular" CF stools. Diarrhea? Frickin forget it! ("What's worse than having diarrhea? Trying to have it quietly in a public bathroom"). And Ceftaz tastes how cat piss smells. Granted, it's an IV med, but as I'm sure most of you know, if you've got a good enough line, you can taste some meds as they're infusing. And Ceftaz literally tastes exactly how cat piss smells. And then finally, the Meropenem. I was on that for the first time last August, and I was nauseous the entire time I was on it. My appetite went to hell, and I hardly ate anything. Only thing that I wanted continually the whole two weeks was Junior Mints... and let's face it, that's not a good diet on its own. Haha. <img src="i/expressions/face-icon-small-wink.gif" border="0">
