My daughter Hadley was diagnosed with a newborn screening. I was breastfeeding her until I had mastitis 6 times in the first 6 weeks. I decided that I had to be healthy in order to take care of her. When we went to our CF clinic right after I had decided to put her on formula they told us about a new CF study that is going on. The infants recieve free formula for 1 year. We don't know whether we are getting Enfamil lipil or an new formula that has 3 times the amount of DHA. They believe that this new formula will decrease the severity of CF if given to infants. We feel very fortunate to be involved in this study and hope that they will make lots of progress about learning about CF. I was just wondering if there is anyone else on this site also in the study? Thought everyone would be interested in knowing about this study and I will keep you updated on the progress.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
CF study with infants formula
- Thread starter boman4802
- Start date
My daughter Hadley was diagnosed with a newborn screening. I was breastfeeding her until I had mastitis 6 times in the first 6 weeks. I decided that I had to be healthy in order to take care of her. When we went to our CF clinic right after I had decided to put her on formula they told us about a new CF study that is going on. The infants recieve free formula for 1 year. We don't know whether we are getting Enfamil lipil or an new formula that has 3 times the amount of DHA. They believe that this new formula will decrease the severity of CF if given to infants. We feel very fortunate to be involved in this study and hope that they will make lots of progress about learning about CF. I was just wondering if there is anyone else on this site also in the study? Thought everyone would be interested in knowing about this study and I will keep you updated on the progress.
My daughter Hadley was diagnosed with a newborn screening. I was breastfeeding her until I had mastitis 6 times in the first 6 weeks. I decided that I had to be healthy in order to take care of her. When we went to our CF clinic right after I had decided to put her on formula they told us about a new CF study that is going on. The infants recieve free formula for 1 year. We don't know whether we are getting Enfamil lipil or an new formula that has 3 times the amount of DHA. They believe that this new formula will decrease the severity of CF if given to infants. We feel very fortunate to be involved in this study and hope that they will make lots of progress about learning about CF. I was just wondering if there is anyone else on this site also in the study? Thought everyone would be interested in knowing about this study and I will keep you updated on the progress.
My daughter Hadley was diagnosed with a newborn screening. I was breastfeeding her until I had mastitis 6 times in the first 6 weeks. I decided that I had to be healthy in order to take care of her. When we went to our CF clinic right after I had decided to put her on formula they told us about a new CF study that is going on. The infants recieve free formula for 1 year. We don't know whether we are getting Enfamil lipil or an new formula that has 3 times the amount of DHA. They believe that this new formula will decrease the severity of CF if given to infants. We feel very fortunate to be involved in this study and hope that they will make lots of progress about learning about CF. I was just wondering if there is anyone else on this site also in the study? Thought everyone would be interested in knowing about this study and I will keep you updated on the progress.
My daughter Hadley was diagnosed with a newborn screening. I was breastfeeding her until I had mastitis 6 times in the first 6 weeks. I decided that I had to be healthy in order to take care of her. When we went to our CF clinic right after I had decided to put her on formula they told us about a new CF study that is going on. The infants recieve free formula for 1 year. We don't know whether we are getting Enfamil lipil or an new formula that has 3 times the amount of DHA. They believe that this new formula will decrease the severity of CF if given to infants. We feel very fortunate to be involved in this study and hope that they will make lots of progress about learning about CF. I was just wondering if there is anyone else on this site also in the study? Thought everyone would be interested in knowing about this study and I will keep you updated on the progress.
M
Mommafirst
Guest
Sounds like an interesting study, but I can't imagine how they would measure an atecedent outcome such as DHA lessening CF severity. They'd have to follow patients on both the DHA and the control group through their whole life to compare. Interesting theory though. I hope it goes well for you -- and at least its free formula for a year either way.
M
Mommafirst
Guest
Sounds like an interesting study, but I can't imagine how they would measure an atecedent outcome such as DHA lessening CF severity. They'd have to follow patients on both the DHA and the control group through their whole life to compare. Interesting theory though. I hope it goes well for you -- and at least its free formula for a year either way.
M
Mommafirst
Guest
Sounds like an interesting study, but I can't imagine how they would measure an atecedent outcome such as DHA lessening CF severity. They'd have to follow patients on both the DHA and the control group through their whole life to compare. Interesting theory though. I hope it goes well for you -- and at least its free formula for a year either way.
M
Mommafirst
Guest
Sounds like an interesting study, but I can't imagine how they would measure an atecedent outcome such as DHA lessening CF severity. They'd have to follow patients on both the DHA and the control group through their whole life to compare. Interesting theory though. I hope it goes well for you -- and at least its free formula for a year either way.
M
Mommafirst
Guest
Sounds like an interesting study, but I can't imagine how they would measure an atecedent outcome such as DHA lessening CF severity. They'd have to follow patients on both the DHA and the control group through their whole life to compare. Interesting theory though. I hope it goes well for you -- and at least its free formula for a year either way.
M
mneville
Guest
My son was also diagnosed at newborn screening and participated in the DHA formula study. We LOVED it! Free formula sent to us for a year and Aidan did awesome on it! He did much better with the formula than he was doing with breastfeeding. We don't know which one he received but we think it was the 'good stuff'. At nearly age 4 now, he is huge for his age. He is off the charts in both weight and height and other than sinus issues, he is great. Best of luck!
Megan, mom to Aidan with CF and Gavin, no CF
Megan, mom to Aidan with CF and Gavin, no CF
M
mneville
Guest
My son was also diagnosed at newborn screening and participated in the DHA formula study. We LOVED it! Free formula sent to us for a year and Aidan did awesome on it! He did much better with the formula than he was doing with breastfeeding. We don't know which one he received but we think it was the 'good stuff'. At nearly age 4 now, he is huge for his age. He is off the charts in both weight and height and other than sinus issues, he is great. Best of luck!
Megan, mom to Aidan with CF and Gavin, no CF
Megan, mom to Aidan with CF and Gavin, no CF
M
mneville
Guest
My son was also diagnosed at newborn screening and participated in the DHA formula study. We LOVED it! Free formula sent to us for a year and Aidan did awesome on it! He did much better with the formula than he was doing with breastfeeding. We don't know which one he received but we think it was the 'good stuff'. At nearly age 4 now, he is huge for his age. He is off the charts in both weight and height and other than sinus issues, he is great. Best of luck!
Megan, mom to Aidan with CF and Gavin, no CF
Megan, mom to Aidan with CF and Gavin, no CF
M
mneville
Guest
My son was also diagnosed at newborn screening and participated in the DHA formula study. We LOVED it! Free formula sent to us for a year and Aidan did awesome on it! He did much better with the formula than he was doing with breastfeeding. We don't know which one he received but we think it was the 'good stuff'. At nearly age 4 now, he is huge for his age. He is off the charts in both weight and height and other than sinus issues, he is great. Best of luck!
Megan, mom to Aidan with CF and Gavin, no CF
Megan, mom to Aidan with CF and Gavin, no CF
M
mneville
Guest
My son was also diagnosed at newborn screening and participated in the DHA formula study. We LOVED it! Free formula sent to us for a year and Aidan did awesome on it! He did much better with the formula than he was doing with breastfeeding. We don't know which one he received but we think it was the 'good stuff'. At nearly age 4 now, he is huge for his age. He is off the charts in both weight and height and other than sinus issues, he is great. Best of luck!
<br />
<br />Megan, mom to Aidan with CF and Gavin, no CF
<br />
<br />Megan, mom to Aidan with CF and Gavin, no CF
PlumPerfect
New member
sounds interesting. we were diagnosed at neworn screening too. I haven't heard about this, although I have researched alot on goats milk and he is thriving on it.
PlumPerfect
New member
sounds interesting. we were diagnosed at neworn screening too. I haven't heard about this, although I have researched alot on goats milk and he is thriving on it.
PlumPerfect
New member
sounds interesting. we were diagnosed at neworn screening too. I haven't heard about this, although I have researched alot on goats milk and he is thriving on it.
PlumPerfect
New member
sounds interesting. we were diagnosed at neworn screening too. I haven't heard about this, although I have researched alot on goats milk and he is thriving on it.
PlumPerfect
New member
sounds interesting. we were diagnosed at neworn screening too. I haven't heard about this, although I have researched alot on goats milk and he is thriving on it.