CF > SugarDiabetties?¿

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anonymous

New member
<img src="i/expressions/light.gif" border="0"><u>QUESTION: Is it common for CF patients to also have SugarDiabetties???</u> About a week or so ago, my 19yr. old daughter{with CF} was admitted to Childrens Hospital, with a cronic cough, also she is going to have sinus surgery {out patient} the 24 of this month, in hopes that it may help relief her cough some. Now she has been told, that she may have Suger Diabetties, & will need insuline to lower her blood sugar. *QUESTION: Is it common for CF patients to also have SugarDiabetties??? Anyone?
Thanks Concerned Dad owindspirit@peoplepc.com
 
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anonymous

New member
I don't know the exact percentage, but it is fairly common for CF'ers to develop CF related diabetes (CFRD) mostly related to pancreatic insufficiency.

I wish your daughter a speedy recovery!

Amy
37 w/CF
 
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anonymous

New member
Dad,
It is common for CF people to develop diabetes.

I was told that it had to do with the number of infections we have have and over time it damages the pancreas and that is what we need to produce our own insulin.

My diabetes was detected when I was about 25 and now I am 42. It seems like one more unfair thing to put upon us, but with proper training, it is not that bad.

Is she drinking more, or losing weight?

Joanne Schum
luckylungsforjo@aol.com
 
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anonymous

New member
Yes, it is common.
I was just reading the other day where there are clinical trials being done at this time with using a pill called Prandin instead of injected insulin for CFRD--this is something she may ask her clinic if they are participating in the study; if she is indeed diabetic. Depending on the severity of her diabetes it may or may not be an option, but worth mentioning.
 
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JazzysMom

New member
Its is very common for anyone with Pancreatic problems (CF or not) to have diabetes since the pancrease is what regulates the bodys natural insulin. Meds (steroids) & other factors can also influence CFers tho......
 
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naomiangel

New member
I have son and a daughter with CF and they have both developed cf-related diabetes.
Ben is 1 1/2 years with new lungs, but his diabetes developed years ago. He is 26 now.
Naomi is 18 and her diabetes developed about 2 years ago.
It is not too bad for her yet - one long-lasting shot of lantus in the a.m. and she is good.
I am sure she will have an increased need for insulin, but I heard they are very close to an inhaled insulin.
What a wonderful thing for cfer's - one painful thing taken away (in the shots)
 
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JazzysMom

New member
Diabetes is caused by an alteration to the pancreas (thru meds, illness, damage etc) since the pancrease regulates our natural insulin. If one has little or no pancreatic involvement that there is a less chance of them developing diabetes. Even with pancreatic involvement, it doesnt mean they are destined. It just means they are at greater risk. That applies with many things regarding health!
 
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anonymous

New member
My 15 yr old son was diagosed with CFRD a year ago and at the time we were upset and frustrated with even more stuff he has to do to take care of his CF everyday (besides all the meds, nebs, pulmonary therapy etc) he would have to start checking his blood surgar and take insulin shots. But once he started taking insulin when he ate, he gained weight and felt better - and after a while - just like everything else we do for CF - it gets to be routine and no big deal. They have a test called an OGGT test that determines whether or not they are diabetic. Especially if your child is having a hard time gaining weight it's a good thing to check for.
 
A

anonymous

New member
My 15 yr old son was diagosed with CFRD a year ago and at the time we were upset and frustrated with even more stuff he has to do to take care of his CF everyday (besides all the meds, nebs, pulmonary therapy etc) he would have to start checking his blood surgar and take insulin shots. But once he started taking insulin when he ate, he gained weight and felt better - and after a while - just like everything else we do for CF - it gets to be routine and no big deal. They have a test called an OGGT test that determines whether or not they are diabetic. Especially if your child is having a hard time gaining weight it's a good thing to check for.
 
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