CF Survey

L

Landy

New member
I'm posting this as a favor to a young lady that is wanting to survey parents of CF children that are enrolled in public school. She is doing this survey as part of a class. Her boyfriend has CF.

I saw this survey on another CF website & asked if I may post it here, thinking she would get a better response simply because there are more Users here. She said you could respond here or email the survey to her at onesweetmuffen@aol.com


Here it is:
I am a high school student conducting a survey for my quality of life research project. I am focusing on students who have Cystic Fibrosis and attend Public School. If you are a parent of a child who has Cystic Fibrosis and would like to participate please note that this is a confidential survey, so please do not write your name. Thank You.

Please check one of the following or fill in the blank for which best describes your child.
Age of child: ______
1) Gender of child: ______ Male ______ Female
2) Race of child:
______ African American ______ Asian
______ Hispanic ______ Native American
______ White/Caucasian Other(Please Specify) _________________
3) How many doctor appointments does your child have in a typical week?
______ 0 ______ 1-2 ______ 3-4 ______ 5 or more
4) How many days a week does your child leave early from school because he/she does not feel well?
______ 0 ______ 1-2 ______ 3-4 ______ 5 or more
5) How often is your child in the nurse's office a week?
______ 0 ______ 1-2 ______ 3-4 ______ 5 or more
6) How many days does your child miss in a typical school year because of CF?
______ 0-10 ______ 11-20 ______ 21-30 ______ 31-40
______ 41-50 ______ 51-60 ______ 61-70 ______ 71-80
______ 81 or more ______ Not Sure
7) Has your child ever been left back? (If no please skip question 8.)
_____ Yes ______ No ______ Not Sure

How many times has your child been left back because they were absent too many days?
______ 0 ______ 1-2 ______ 3-4 ______ 5 or more
9) Is your child enrolled in either of the following programs?
_____ IDEA ______ Section 504 ______ Neither ______ Not Sure
10) Does your child receive special help at school?
_____ Yes ______ No ______ Not Sure
11) Does your child receive any of the services listed below? (Check all that apply)
_____ Copy of teacher's material
_____ Extra time on tests
_____ Frequent breaks
_____ Note taking assistance/ Scribe
_____ Tutoring
Other (please state)
____________________________________________________________________________________________________ ____________________________________________

12) Do you feel that your child's CF makes him/her unable to focus on his/her schoolwork?
_____ Yes ______ No ______ Not Sure
13) Do you feel that the nurse and the teachers at your child's school know what he/she need?
_____ Yes ______ No ______ Not Sure
14) Please state obstacles/problems your child faces at school. (ex: unsanitary conditions or personal problems with school faculty.)
____________________________________________________________________________________________________ ____________________________________________________________________________________________________
 
L

Landy

New member
I'm posting this as a favor to a young lady that is wanting to survey parents of CF children that are enrolled in public school. She is doing this survey as part of a class. Her boyfriend has CF.

I saw this survey on another CF website & asked if I may post it here, thinking she would get a better response simply because there are more Users here. She said you could respond here or email the survey to her at onesweetmuffen@aol.com


Here it is:
I am a high school student conducting a survey for my quality of life research project. I am focusing on students who have Cystic Fibrosis and attend Public School. If you are a parent of a child who has Cystic Fibrosis and would like to participate please note that this is a confidential survey, so please do not write your name. Thank You.

Please check one of the following or fill in the blank for which best describes your child.
Age of child: ______
1) Gender of child: ______ Male ______ Female
2) Race of child:
______ African American ______ Asian
______ Hispanic ______ Native American
______ White/Caucasian Other(Please Specify) _________________
3) How many doctor appointments does your child have in a typical week?
______ 0 ______ 1-2 ______ 3-4 ______ 5 or more
4) How many days a week does your child leave early from school because he/she does not feel well?
______ 0 ______ 1-2 ______ 3-4 ______ 5 or more
5) How often is your child in the nurse's office a week?
______ 0 ______ 1-2 ______ 3-4 ______ 5 or more
6) How many days does your child miss in a typical school year because of CF?
______ 0-10 ______ 11-20 ______ 21-30 ______ 31-40
______ 41-50 ______ 51-60 ______ 61-70 ______ 71-80
______ 81 or more ______ Not Sure
7) Has your child ever been left back? (If no please skip question 8.)
_____ Yes ______ No ______ Not Sure

How many times has your child been left back because they were absent too many days?
______ 0 ______ 1-2 ______ 3-4 ______ 5 or more
9) Is your child enrolled in either of the following programs?
_____ IDEA ______ Section 504 ______ Neither ______ Not Sure
10) Does your child receive special help at school?
_____ Yes ______ No ______ Not Sure
11) Does your child receive any of the services listed below? (Check all that apply)
_____ Copy of teacher's material
_____ Extra time on tests
_____ Frequent breaks
_____ Note taking assistance/ Scribe
_____ Tutoring
Other (please state)
____________________________________________________________________________________________________ ____________________________________________

12) Do you feel that your child's CF makes him/her unable to focus on his/her schoolwork?
_____ Yes ______ No ______ Not Sure
13) Do you feel that the nurse and the teachers at your child's school know what he/she need?
_____ Yes ______ No ______ Not Sure
14) Please state obstacles/problems your child faces at school. (ex: unsanitary conditions or personal problems with school faculty.)
____________________________________________________________________________________________________ ____________________________________________________________________________________________________
 
L

Landy

New member
I'm posting this as a favor to a young lady that is wanting to survey parents of CF children that are enrolled in public school. She is doing this survey as part of a class. Her boyfriend has CF.

I saw this survey on another CF website & asked if I may post it here, thinking she would get a better response simply because there are more Users here. She said you could respond here or email the survey to her at onesweetmuffen@aol.com


Here it is:
I am a high school student conducting a survey for my quality of life research project. I am focusing on students who have Cystic Fibrosis and attend Public School. If you are a parent of a child who has Cystic Fibrosis and would like to participate please note that this is a confidential survey, so please do not write your name. Thank You.

Please check one of the following or fill in the blank for which best describes your child.
Age of child: ______
1) Gender of child: ______ Male ______ Female
2) Race of child:
______ African American ______ Asian
______ Hispanic ______ Native American
______ White/Caucasian Other(Please Specify) _________________
3) How many doctor appointments does your child have in a typical week?
______ 0 ______ 1-2 ______ 3-4 ______ 5 or more
4) How many days a week does your child leave early from school because he/she does not feel well?
______ 0 ______ 1-2 ______ 3-4 ______ 5 or more
5) How often is your child in the nurse's office a week?
______ 0 ______ 1-2 ______ 3-4 ______ 5 or more
6) How many days does your child miss in a typical school year because of CF?
______ 0-10 ______ 11-20 ______ 21-30 ______ 31-40
______ 41-50 ______ 51-60 ______ 61-70 ______ 71-80
______ 81 or more ______ Not Sure
7) Has your child ever been left back? (If no please skip question 8.)
_____ Yes ______ No ______ Not Sure

How many times has your child been left back because they were absent too many days?
______ 0 ______ 1-2 ______ 3-4 ______ 5 or more
9) Is your child enrolled in either of the following programs?
_____ IDEA ______ Section 504 ______ Neither ______ Not Sure
10) Does your child receive special help at school?
_____ Yes ______ No ______ Not Sure
11) Does your child receive any of the services listed below? (Check all that apply)
_____ Copy of teacher's material
_____ Extra time on tests
_____ Frequent breaks
_____ Note taking assistance/ Scribe
_____ Tutoring
Other (please state)
____________________________________________________________________________________________________ ____________________________________________

12) Do you feel that your child's CF makes him/her unable to focus on his/her schoolwork?
_____ Yes ______ No ______ Not Sure
13) Do you feel that the nurse and the teachers at your child's school know what he/she need?
_____ Yes ______ No ______ Not Sure
14) Please state obstacles/problems your child faces at school. (ex: unsanitary conditions or personal problems with school faculty.)
____________________________________________________________________________________________________ ____________________________________________________________________________________________________
 
2

2perfectboys

Guest
age of child:9
1. male
2. european-american
3. 3
4. 0
5. 5 or more
6. 0-10
7. no
8. 0
9. neither
10. no
11. no
12. no
13. no
14.would like to be able to let him have his own enzymes with him for lunch instead of having to go down to the nurses office before lunch.

any other questions u can email me at twoperfectboys@yahoo.com
 
2

2perfectboys

Guest
age of child:9
1. male
2. european-american
3. 3
4. 0
5. 5 or more
6. 0-10
7. no
8. 0
9. neither
10. no
11. no
12. no
13. no
14.would like to be able to let him have his own enzymes with him for lunch instead of having to go down to the nurses office before lunch.

any other questions u can email me at twoperfectboys@yahoo.com
 
2

2perfectboys

Guest
age of child:9
1. male
2. european-american
3. 3
4. 0
5. 5 or more
6. 0-10
7. no
8. 0
9. neither
10. no
11. no
12. no
13. no
14.would like to be able to let him have his own enzymes with him for lunch instead of having to go down to the nurses office before lunch.

any other questions u can email me at twoperfectboys@yahoo.com
 
M

mtgreen30

New member
12 1/2

1.male

2.white

3.3

4.2

5.5 or more

6.41-50

7.no

9.He has an IEP

10.yes

11.Frequent breaks, He leaves class a few minutes eariler than everyone to allow time for him to get up and down the flights of stairs and to go get his enzymes
12.no

13.yes

14.the boys bathroom doesn't have stalls on their doors so he has to use the bathroom in the nurses office. They also don't allow him to paricipate in gym class because he tends to break easy so he walks the halls with a pediometer
 
M

mtgreen30

New member
12 1/2

1.male

2.white

3.3

4.2

5.5 or more

6.41-50

7.no

9.He has an IEP

10.yes

11.Frequent breaks, He leaves class a few minutes eariler than everyone to allow time for him to get up and down the flights of stairs and to go get his enzymes
12.no

13.yes

14.the boys bathroom doesn't have stalls on their doors so he has to use the bathroom in the nurses office. They also don't allow him to paricipate in gym class because he tends to break easy so he walks the halls with a pediometer
 
M

mtgreen30

New member
12 1/2

1.male

2.white

3.3

4.2

5.5 or more

6.41-50

7.no

9.He has an IEP

10.yes

11.Frequent breaks, He leaves class a few minutes eariler than everyone to allow time for him to get up and down the flights of stairs and to go get his enzymes
12.no

13.yes

14.the boys bathroom doesn't have stalls on their doors so he has to use the bathroom in the nurses office. They also don't allow him to paricipate in gym class because he tends to break easy so he walks the halls with a pediometer
 
J

Jane

Digital opinion leader
Please check one of the following or fill in the blank for which best describes your child.
Age of child: 2 boys age almost 12 and almost 16
1) Gender of child: Male
2) Race of child:
white
3) How many doctor appointments does your child have in a typical week?
___x___ 0
4) How many days a week does your child leave early from school because he/she does not feel well?
___x___ 0
5) How often is your child in the nurse's office a week?
___x___ 0
6) How many days does your child miss in a <i>typical</i> school year because of CF?
11-20

7) Has your child ever been left back? (If no please skip question 8.)
No

How many times has your child been left back because they were absent too many days?
______ 0
9) Is your child enrolled in either of the following programs?
Section 504
10) Does your child receive special help at school?
No
11) Does your child receive any of the services listed below? (Check all that apply)
___x__ Copy of teacher's material
____x_ Extra time on tests
_____ Frequent breaks
_____ Note taking assistance/ Scribe
___x__ Tutoring
Other (please state)


12) Do you feel that your child's CF makes him/her unable to focus on his/her schoolwork?
__x___ Yes
13) Do you feel that the nurse and the teachers at your child's school know what he/she need?
____x__ No <b>but I make sure she does</b>
14) Please state obstacles/problems your child faces at school. (ex: unsanitary conditions or personal problems with school faculty.)
We have been very fortunate with our school system. Since I work in the district, I know the administrators/ teachers/ staff and can usually get what my kids need. Educating people is the hardest and most complicated part.
 
J

Jane

Digital opinion leader
Please check one of the following or fill in the blank for which best describes your child.
Age of child: 2 boys age almost 12 and almost 16
1) Gender of child: Male
2) Race of child:
white
3) How many doctor appointments does your child have in a typical week?
___x___ 0
4) How many days a week does your child leave early from school because he/she does not feel well?
___x___ 0
5) How often is your child in the nurse's office a week?
___x___ 0
6) How many days does your child miss in a <i>typical</i> school year because of CF?
11-20

7) Has your child ever been left back? (If no please skip question 8.)
No

How many times has your child been left back because they were absent too many days?
______ 0
9) Is your child enrolled in either of the following programs?
Section 504
10) Does your child receive special help at school?
No
11) Does your child receive any of the services listed below? (Check all that apply)
___x__ Copy of teacher's material
____x_ Extra time on tests
_____ Frequent breaks
_____ Note taking assistance/ Scribe
___x__ Tutoring
Other (please state)


12) Do you feel that your child's CF makes him/her unable to focus on his/her schoolwork?
__x___ Yes
13) Do you feel that the nurse and the teachers at your child's school know what he/she need?
____x__ No <b>but I make sure she does</b>
14) Please state obstacles/problems your child faces at school. (ex: unsanitary conditions or personal problems with school faculty.)
We have been very fortunate with our school system. Since I work in the district, I know the administrators/ teachers/ staff and can usually get what my kids need. Educating people is the hardest and most complicated part.
 
J

Jane

Digital opinion leader
Please check one of the following or fill in the blank for which best describes your child.
Age of child: 2 boys age almost 12 and almost 16
1) Gender of child: Male
2) Race of child:
white
3) How many doctor appointments does your child have in a typical week?
___x___ 0
4) How many days a week does your child leave early from school because he/she does not feel well?
___x___ 0
5) How often is your child in the nurse's office a week?
___x___ 0
6) How many days does your child miss in a <i>typical</i> school year because of CF?
11-20

7) Has your child ever been left back? (If no please skip question 8.)
No

How many times has your child been left back because they were absent too many days?
______ 0
9) Is your child enrolled in either of the following programs?
Section 504
10) Does your child receive special help at school?
No
11) Does your child receive any of the services listed below? (Check all that apply)
___x__ Copy of teacher's material
____x_ Extra time on tests
_____ Frequent breaks
_____ Note taking assistance/ Scribe
___x__ Tutoring
Other (please state)


12) Do you feel that your child's CF makes him/her unable to focus on his/her schoolwork?
__x___ Yes
13) Do you feel that the nurse and the teachers at your child's school know what he/she need?
____x__ No <b>but I make sure she does</b>
14) Please state obstacles/problems your child faces at school. (ex: unsanitary conditions or personal problems with school faculty.)
We have been very fortunate with our school system. Since I work in the district, I know the administrators/ teachers/ staff and can usually get what my kids need. Educating people is the hardest and most complicated part.
 
S

Seana30

New member
Age of child: 14

1) Gender of child: Female

2) Race of child: White/Caucasian

3) How many doctor appointments does your child have in a typical week?
2 appointments every 6 months unless she becomes ill

4) How many days a week does your child leave early from school because he/she does not feel well? 0-1

5) How often is your child in the nurse's office a week?
5 or more....she has to go to the nurse each day to take her enzymes

6) How many days does your child miss in a typical school year because of CF?
11-20

7) Has your child ever been left back? (If no please skip question 8.)
No

How many times has your child been left back because they were absent too many days?
____ 0 ______ 1-2 ______ 3-4 ______ 5 or more

9) Is your child enrolled in either of the following programs? Section 504

10) Does your child receive special help at school? No

11) Does your child receive any of the services listed below? (Check all that apply) None

12) Do you feel that your child's CF makes him/her unable to focus on his/her schoolwork? No

13) Do you feel that the nurse and the teachers at your child's school know what he/she need? No

14) Please state obstacles/problems your child faces at school. (ex: unsanitary conditions or personal problems with school faculty.)
We have a new nurse this year that has not taken the time to educate herself on CF. I also feel my daughter should not have to go to the nurse to get her enzymes. She should be allowed to carry them.
 
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