You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
CF Transplant article
- Thread starter cf4life
- Start date
That's the stupidest article I have read in a long time and has made me rather cross.
I think what they are getting at is that for many children (and I notice this is specifically about children not adults) who are transplanted, they live as long post transplant as they would have without.
But as someone very wisely already pointed out, there is absolutely no mention of <b>quality </b>of life here.
I had my tx at the beginning of the year. I was on 35% (8 litres) oxygen at all times just before hand and couldn't get dressed or wash on my own, let alone do anything else. My lungs had both collapsed several times (twice nearly killing me), I was painfully thin....and at the end of the day was dying. I was also in hospital about 50% of the time.
After my transplant recovery was hard. It was very hard. And it was long. But 11 months down the line I have already done a million and one things I wouldn't have done before. Even if it were all to end tomorrow, I'd say transplant has increased my life by so so much more than just quantity - and I have have enjoyed every single new breath since about April this year.
Grrr statistics annoy me so, not just in relation to tx, but in relation to most things they are just really not applicable to every day life because life is so much more than numbers stats and figures!
OK rant over <img src="i/expressions/face-icon-small-wink.gif" border="0">
I think what they are getting at is that for many children (and I notice this is specifically about children not adults) who are transplanted, they live as long post transplant as they would have without.
But as someone very wisely already pointed out, there is absolutely no mention of <b>quality </b>of life here.
I had my tx at the beginning of the year. I was on 35% (8 litres) oxygen at all times just before hand and couldn't get dressed or wash on my own, let alone do anything else. My lungs had both collapsed several times (twice nearly killing me), I was painfully thin....and at the end of the day was dying. I was also in hospital about 50% of the time.
After my transplant recovery was hard. It was very hard. And it was long. But 11 months down the line I have already done a million and one things I wouldn't have done before. Even if it were all to end tomorrow, I'd say transplant has increased my life by so so much more than just quantity - and I have have enjoyed every single new breath since about April this year.
Grrr statistics annoy me so, not just in relation to tx, but in relation to most things they are just really not applicable to every day life because life is so much more than numbers stats and figures!
OK rant over <img src="i/expressions/face-icon-small-wink.gif" border="0">
That's the stupidest article I have read in a long time and has made me rather cross.
I think what they are getting at is that for many children (and I notice this is specifically about children not adults) who are transplanted, they live as long post transplant as they would have without.
But as someone very wisely already pointed out, there is absolutely no mention of <b>quality </b>of life here.
I had my tx at the beginning of the year. I was on 35% (8 litres) oxygen at all times just before hand and couldn't get dressed or wash on my own, let alone do anything else. My lungs had both collapsed several times (twice nearly killing me), I was painfully thin....and at the end of the day was dying. I was also in hospital about 50% of the time.
After my transplant recovery was hard. It was very hard. And it was long. But 11 months down the line I have already done a million and one things I wouldn't have done before. Even if it were all to end tomorrow, I'd say transplant has increased my life by so so much more than just quantity - and I have have enjoyed every single new breath since about April this year.
Grrr statistics annoy me so, not just in relation to tx, but in relation to most things they are just really not applicable to every day life because life is so much more than numbers stats and figures!
OK rant over <img src="i/expressions/face-icon-small-wink.gif" border="0">
I think what they are getting at is that for many children (and I notice this is specifically about children not adults) who are transplanted, they live as long post transplant as they would have without.
But as someone very wisely already pointed out, there is absolutely no mention of <b>quality </b>of life here.
I had my tx at the beginning of the year. I was on 35% (8 litres) oxygen at all times just before hand and couldn't get dressed or wash on my own, let alone do anything else. My lungs had both collapsed several times (twice nearly killing me), I was painfully thin....and at the end of the day was dying. I was also in hospital about 50% of the time.
After my transplant recovery was hard. It was very hard. And it was long. But 11 months down the line I have already done a million and one things I wouldn't have done before. Even if it were all to end tomorrow, I'd say transplant has increased my life by so so much more than just quantity - and I have have enjoyed every single new breath since about April this year.
Grrr statistics annoy me so, not just in relation to tx, but in relation to most things they are just really not applicable to every day life because life is so much more than numbers stats and figures!
OK rant over <img src="i/expressions/face-icon-small-wink.gif" border="0">
That's the stupidest article I have read in a long time and has made me rather cross.
I think what they are getting at is that for many children (and I notice this is specifically about children not adults) who are transplanted, they live as long post transplant as they would have without.
But as someone very wisely already pointed out, there is absolutely no mention of <b>quality </b>of life here.
I had my tx at the beginning of the year. I was on 35% (8 litres) oxygen at all times just before hand and couldn't get dressed or wash on my own, let alone do anything else. My lungs had both collapsed several times (twice nearly killing me), I was painfully thin....and at the end of the day was dying. I was also in hospital about 50% of the time.
After my transplant recovery was hard. It was very hard. And it was long. But 11 months down the line I have already done a million and one things I wouldn't have done before. Even if it were all to end tomorrow, I'd say transplant has increased my life by so so much more than just quantity - and I have have enjoyed every single new breath since about April this year.
Grrr statistics annoy me so, not just in relation to tx, but in relation to most things they are just really not applicable to every day life because life is so much more than numbers stats and figures!
OK rant over <img src="i/expressions/face-icon-small-wink.gif" border="0">
I think what they are getting at is that for many children (and I notice this is specifically about children not adults) who are transplanted, they live as long post transplant as they would have without.
But as someone very wisely already pointed out, there is absolutely no mention of <b>quality </b>of life here.
I had my tx at the beginning of the year. I was on 35% (8 litres) oxygen at all times just before hand and couldn't get dressed or wash on my own, let alone do anything else. My lungs had both collapsed several times (twice nearly killing me), I was painfully thin....and at the end of the day was dying. I was also in hospital about 50% of the time.
After my transplant recovery was hard. It was very hard. And it was long. But 11 months down the line I have already done a million and one things I wouldn't have done before. Even if it were all to end tomorrow, I'd say transplant has increased my life by so so much more than just quantity - and I have have enjoyed every single new breath since about April this year.
Grrr statistics annoy me so, not just in relation to tx, but in relation to most things they are just really not applicable to every day life because life is so much more than numbers stats and figures!
OK rant over <img src="i/expressions/face-icon-small-wink.gif" border="0">
That's the stupidest article I have read in a long time and has made me rather cross.
I think what they are getting at is that for many children (and I notice this is specifically about children not adults) who are transplanted, they live as long post transplant as they would have without.
But as someone very wisely already pointed out, there is absolutely no mention of <b>quality </b>of life here.
I had my tx at the beginning of the year. I was on 35% (8 litres) oxygen at all times just before hand and couldn't get dressed or wash on my own, let alone do anything else. My lungs had both collapsed several times (twice nearly killing me), I was painfully thin....and at the end of the day was dying. I was also in hospital about 50% of the time.
After my transplant recovery was hard. It was very hard. And it was long. But 11 months down the line I have already done a million and one things I wouldn't have done before. Even if it were all to end tomorrow, I'd say transplant has increased my life by so so much more than just quantity - and I have have enjoyed every single new breath since about April this year.
Grrr statistics annoy me so, not just in relation to tx, but in relation to most things they are just really not applicable to every day life because life is so much more than numbers stats and figures!
OK rant over <img src="i/expressions/face-icon-small-wink.gif" border="0">
I think what they are getting at is that for many children (and I notice this is specifically about children not adults) who are transplanted, they live as long post transplant as they would have without.
But as someone very wisely already pointed out, there is absolutely no mention of <b>quality </b>of life here.
I had my tx at the beginning of the year. I was on 35% (8 litres) oxygen at all times just before hand and couldn't get dressed or wash on my own, let alone do anything else. My lungs had both collapsed several times (twice nearly killing me), I was painfully thin....and at the end of the day was dying. I was also in hospital about 50% of the time.
After my transplant recovery was hard. It was very hard. And it was long. But 11 months down the line I have already done a million and one things I wouldn't have done before. Even if it were all to end tomorrow, I'd say transplant has increased my life by so so much more than just quantity - and I have have enjoyed every single new breath since about April this year.
Grrr statistics annoy me so, not just in relation to tx, but in relation to most things they are just really not applicable to every day life because life is so much more than numbers stats and figures!
OK rant over <img src="i/expressions/face-icon-small-wink.gif" border="0">
That's the stupidest article I have read in a long time and has made me rather cross.
I think what they are getting at is that for many children (and I notice this is specifically about children not adults) who are transplanted, they live as long post transplant as they would have without.
But as someone very wisely already pointed out, there is absolutely no mention of <b>quality </b>of life here.
I had my tx at the beginning of the year. I was on 35% (8 litres) oxygen at all times just before hand and couldn't get dressed or wash on my own, let alone do anything else. My lungs had both collapsed several times (twice nearly killing me), I was painfully thin....and at the end of the day was dying. I was also in hospital about 50% of the time.
After my transplant recovery was hard. It was very hard. And it was long. But 11 months down the line I have already done a million and one things I wouldn't have done before. Even if it were all to end tomorrow, I'd say transplant has increased my life by so so much more than just quantity - and I have have enjoyed every single new breath since about April this year.
Grrr statistics annoy me so, not just in relation to tx, but in relation to most things they are just really not applicable to every day life because life is so much more than numbers stats and figures!
OK rant over <img src="i/expressions/face-icon-small-wink.gif" border="0">
I think what they are getting at is that for many children (and I notice this is specifically about children not adults) who are transplanted, they live as long post transplant as they would have without.
But as someone very wisely already pointed out, there is absolutely no mention of <b>quality </b>of life here.
I had my tx at the beginning of the year. I was on 35% (8 litres) oxygen at all times just before hand and couldn't get dressed or wash on my own, let alone do anything else. My lungs had both collapsed several times (twice nearly killing me), I was painfully thin....and at the end of the day was dying. I was also in hospital about 50% of the time.
After my transplant recovery was hard. It was very hard. And it was long. But 11 months down the line I have already done a million and one things I wouldn't have done before. Even if it were all to end tomorrow, I'd say transplant has increased my life by so so much more than just quantity - and I have have enjoyed every single new breath since about April this year.
Grrr statistics annoy me so, not just in relation to tx, but in relation to most things they are just really not applicable to every day life because life is so much more than numbers stats and figures!
OK rant over <img src="i/expressions/face-icon-small-wink.gif" border="0">
I agree....quality of life should factor into this. I do, however, could see it being more difficult for a pediatric transplant patient vs. an adult. I always sort of wondered how those child hood colds, being in school, and playing in the dirt outside could effect a pediatric transplant patient. I'm very happy that my transplant happened in my early adult hood, when i was strong enough to recover, but old enough to be through all of those child hood experiences. With that being said, i'm obviously in support of a transplant at any age. If a 10 year old can be offered the opportunity to run around without dragging an oxygen tank and iv pole behind them, by all means, lets give that child that opportunity.
And going back to what someone posted earlier, i have to agree with Candice. You never forget, yet it does become an ancillary part of life and not the focus. I would say that i think of my donor/donor family every morning when i wake up and every night before i go to bed. Basically i thank them for the day i have ahead of me and thank them for the day i just got through. My transplant still comes up in conversation with friends/family and sometimes even strangers, but hey it's a great story and why not share it!!!
I also just celebrated the third anniversary of my transplant!!! Crazy, i'm so happy and thankful/grateful for the last three years. I think whoever wants the opportunity to take a chance and get a transplant should be allowed to regardless of age.
And going back to what someone posted earlier, i have to agree with Candice. You never forget, yet it does become an ancillary part of life and not the focus. I would say that i think of my donor/donor family every morning when i wake up and every night before i go to bed. Basically i thank them for the day i have ahead of me and thank them for the day i just got through. My transplant still comes up in conversation with friends/family and sometimes even strangers, but hey it's a great story and why not share it!!!
I also just celebrated the third anniversary of my transplant!!! Crazy, i'm so happy and thankful/grateful for the last three years. I think whoever wants the opportunity to take a chance and get a transplant should be allowed to regardless of age.
I agree....quality of life should factor into this. I do, however, could see it being more difficult for a pediatric transplant patient vs. an adult. I always sort of wondered how those child hood colds, being in school, and playing in the dirt outside could effect a pediatric transplant patient. I'm very happy that my transplant happened in my early adult hood, when i was strong enough to recover, but old enough to be through all of those child hood experiences. With that being said, i'm obviously in support of a transplant at any age. If a 10 year old can be offered the opportunity to run around without dragging an oxygen tank and iv pole behind them, by all means, lets give that child that opportunity.
And going back to what someone posted earlier, i have to agree with Candice. You never forget, yet it does become an ancillary part of life and not the focus. I would say that i think of my donor/donor family every morning when i wake up and every night before i go to bed. Basically i thank them for the day i have ahead of me and thank them for the day i just got through. My transplant still comes up in conversation with friends/family and sometimes even strangers, but hey it's a great story and why not share it!!!
I also just celebrated the third anniversary of my transplant!!! Crazy, i'm so happy and thankful/grateful for the last three years. I think whoever wants the opportunity to take a chance and get a transplant should be allowed to regardless of age.
And going back to what someone posted earlier, i have to agree with Candice. You never forget, yet it does become an ancillary part of life and not the focus. I would say that i think of my donor/donor family every morning when i wake up and every night before i go to bed. Basically i thank them for the day i have ahead of me and thank them for the day i just got through. My transplant still comes up in conversation with friends/family and sometimes even strangers, but hey it's a great story and why not share it!!!
I also just celebrated the third anniversary of my transplant!!! Crazy, i'm so happy and thankful/grateful for the last three years. I think whoever wants the opportunity to take a chance and get a transplant should be allowed to regardless of age.
I agree....quality of life should factor into this. I do, however, could see it being more difficult for a pediatric transplant patient vs. an adult. I always sort of wondered how those child hood colds, being in school, and playing in the dirt outside could effect a pediatric transplant patient. I'm very happy that my transplant happened in my early adult hood, when i was strong enough to recover, but old enough to be through all of those child hood experiences. With that being said, i'm obviously in support of a transplant at any age. If a 10 year old can be offered the opportunity to run around without dragging an oxygen tank and iv pole behind them, by all means, lets give that child that opportunity.
And going back to what someone posted earlier, i have to agree with Candice. You never forget, yet it does become an ancillary part of life and not the focus. I would say that i think of my donor/donor family every morning when i wake up and every night before i go to bed. Basically i thank them for the day i have ahead of me and thank them for the day i just got through. My transplant still comes up in conversation with friends/family and sometimes even strangers, but hey it's a great story and why not share it!!!
I also just celebrated the third anniversary of my transplant!!! Crazy, i'm so happy and thankful/grateful for the last three years. I think whoever wants the opportunity to take a chance and get a transplant should be allowed to regardless of age.
And going back to what someone posted earlier, i have to agree with Candice. You never forget, yet it does become an ancillary part of life and not the focus. I would say that i think of my donor/donor family every morning when i wake up and every night before i go to bed. Basically i thank them for the day i have ahead of me and thank them for the day i just got through. My transplant still comes up in conversation with friends/family and sometimes even strangers, but hey it's a great story and why not share it!!!
I also just celebrated the third anniversary of my transplant!!! Crazy, i'm so happy and thankful/grateful for the last three years. I think whoever wants the opportunity to take a chance and get a transplant should be allowed to regardless of age.
I agree....quality of life should factor into this. I do, however, could see it being more difficult for a pediatric transplant patient vs. an adult. I always sort of wondered how those child hood colds, being in school, and playing in the dirt outside could effect a pediatric transplant patient. I'm very happy that my transplant happened in my early adult hood, when i was strong enough to recover, but old enough to be through all of those child hood experiences. With that being said, i'm obviously in support of a transplant at any age. If a 10 year old can be offered the opportunity to run around without dragging an oxygen tank and iv pole behind them, by all means, lets give that child that opportunity.
And going back to what someone posted earlier, i have to agree with Candice. You never forget, yet it does become an ancillary part of life and not the focus. I would say that i think of my donor/donor family every morning when i wake up and every night before i go to bed. Basically i thank them for the day i have ahead of me and thank them for the day i just got through. My transplant still comes up in conversation with friends/family and sometimes even strangers, but hey it's a great story and why not share it!!!
I also just celebrated the third anniversary of my transplant!!! Crazy, i'm so happy and thankful/grateful for the last three years. I think whoever wants the opportunity to take a chance and get a transplant should be allowed to regardless of age.
And going back to what someone posted earlier, i have to agree with Candice. You never forget, yet it does become an ancillary part of life and not the focus. I would say that i think of my donor/donor family every morning when i wake up and every night before i go to bed. Basically i thank them for the day i have ahead of me and thank them for the day i just got through. My transplant still comes up in conversation with friends/family and sometimes even strangers, but hey it's a great story and why not share it!!!
I also just celebrated the third anniversary of my transplant!!! Crazy, i'm so happy and thankful/grateful for the last three years. I think whoever wants the opportunity to take a chance and get a transplant should be allowed to regardless of age.
I agree....quality of life should factor into this. I do, however, could see it being more difficult for a pediatric transplant patient vs. an adult. I always sort of wondered how those child hood colds, being in school, and playing in the dirt outside could effect a pediatric transplant patient. I'm very happy that my transplant happened in my early adult hood, when i was strong enough to recover, but old enough to be through all of those child hood experiences. With that being said, i'm obviously in support of a transplant at any age. If a 10 year old can be offered the opportunity to run around without dragging an oxygen tank and iv pole behind them, by all means, lets give that child that opportunity.
And going back to what someone posted earlier, i have to agree with Candice. You never forget, yet it does become an ancillary part of life and not the focus. I would say that i think of my donor/donor family every morning when i wake up and every night before i go to bed. Basically i thank them for the day i have ahead of me and thank them for the day i just got through. My transplant still comes up in conversation with friends/family and sometimes even strangers, but hey it's a great story and why not share it!!!
I also just celebrated the third anniversary of my transplant!!! Crazy, i'm so happy and thankful/grateful for the last three years. I think whoever wants the opportunity to take a chance and get a transplant should be allowed to regardless of age.
And going back to what someone posted earlier, i have to agree with Candice. You never forget, yet it does become an ancillary part of life and not the focus. I would say that i think of my donor/donor family every morning when i wake up and every night before i go to bed. Basically i thank them for the day i have ahead of me and thank them for the day i just got through. My transplant still comes up in conversation with friends/family and sometimes even strangers, but hey it's a great story and why not share it!!!
I also just celebrated the third anniversary of my transplant!!! Crazy, i'm so happy and thankful/grateful for the last three years. I think whoever wants the opportunity to take a chance and get a transplant should be allowed to regardless of age.