Thank you to who replied to the mrsa. You said zyvox is a good drug. I am actually starting that tom. in the hospital. They don't like to start new drugs on me at home. As for vanco - I was funny enough on that 2 week prior to being cultured with mrsa. I was being treated for a port infection. My docs thought it was funny that after 2 weeks of vanco mrsa showed up. It could be bec. I had shingled believe it or not - I thought i popped my lung but no - it was shingles and my imune system was douwn and being on steroids brings your imune system down even more so then that is how I got this bug mrsa! That is my story for now. So I will be going in tom.
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CF - when nothing seems to help
- Thread starter coltsfan715
- Start date
Yes being on steroids really can do a job on your immune system.
That's when my husband got shingles too.
His situation was difficult enough that he went inpatient to be weaned off the steroids at the same time the upped the antibiotics.
Good luck to you.
Several of the newer studies say that zyvox is more effective than vanco.
Let us know how it goes (if you can)...
That's when my husband got shingles too.
His situation was difficult enough that he went inpatient to be weaned off the steroids at the same time the upped the antibiotics.
Good luck to you.
Several of the newer studies say that zyvox is more effective than vanco.
Let us know how it goes (if you can)...
I feel the same lately.
I had a bad infection right after Christmas. A long course of 750mg of Levaquin took care of it but I've just never gotten back to where I was before that. And prednisone
I've done doxycyline, am currently on Cipro and TOBI. Doing GSH, Pulmicort, Hypertonic Saline, Duoneb and if things aren't better will start pred tomorrow
I had a bad infection right after Christmas. A long course of 750mg of Levaquin took care of it but I've just never gotten back to where I was before that. And prednisone
I've done doxycyline, am currently on Cipro and TOBI. Doing GSH, Pulmicort, Hypertonic Saline, Duoneb and if things aren't better will start pred tomorrow
coltsfan715
New member
Hi there guys thanks for all the thoughts and thank you for the elaboration on the GSH. I will definitely look into that.
For who asked ...
My last hospitalization was in December 2005 I got off IVs the day after Christmas. Before that I had not been in the hospital or on IV meds since Jan 2005. I had a blockage that was causing a collapse (luckily I called with a complaint of breathing difficulty before the lung fully collapsed) and had that taken care of and the blockage was cleared with a bronch in August and the lung reexpanded.
Update on me:
I am feeling a bit better the past few days and a whole heck of a lot better today. I have decided that I am going to try doubling up on my treatments and doubling to tripling up on my Chest PT and see if it helps some. I am noticing a huge difference in the way I feel and a small difference as of now in the amount of coughing and the ease with which I am able to get the crap out. I haven't been getting sick to my stomach like I had been last week, so I have been able to eat without becoming ill - thank goodness.
As for the lung transplant thing .. No I have not looked into that yet. I actually haven't even had it mentioned to me by my docs. It is strange. I have low PFTs, but overall feel unchanged, have never been on O2 (except for surgery recovery room) go in the hospital roughly once a year. Of course if I go in in a few weeks it will not be a year but ... in the past. The main problem I have is struggling with weight, but I have always had that problem so it is nothing new.
I have advair that I take as an inhaled med as well. They had me on several inhaled steroids until I was diagnosed with CFRD. After that they try to keep me off the steroids as much as possible unless necessary. The steroids send my blood sugar out of control and I have to take so much insulin to conteract that and inflammation my b.s being high can cause that it is as effective. I am resistant to doxycyclene, probably Cipro now for the time being after being on it for the month, Bactrim I take on occassions to help keep the MRSA under control, but not usually for the Psuedo. Levaquin is the other biggie that I am sensitive too, but had an allergic reaction a few years ago and they are hesitant to try it again unless absolutely necessary.
I also tried Rehab last year after y January hospitalization but went for months and left unchanged once my insurance ran out. They gave me exercises to do but nothing has vastly improved my breathing. Who knows. I am going to start walking the dog and try to make it a daily thing and see how that goes <img src="i/expressions/face-icon-small-smile.gif" border="0">. I can increase on that once I get at a good walking level.
I will be looking into some of the things that everyone mentioned and truly do appreciate the outlook and views you guys have offered.
Have a great day,
Lindsey
For who asked ...
My last hospitalization was in December 2005 I got off IVs the day after Christmas. Before that I had not been in the hospital or on IV meds since Jan 2005. I had a blockage that was causing a collapse (luckily I called with a complaint of breathing difficulty before the lung fully collapsed) and had that taken care of and the blockage was cleared with a bronch in August and the lung reexpanded.
Update on me:
I am feeling a bit better the past few days and a whole heck of a lot better today. I have decided that I am going to try doubling up on my treatments and doubling to tripling up on my Chest PT and see if it helps some. I am noticing a huge difference in the way I feel and a small difference as of now in the amount of coughing and the ease with which I am able to get the crap out. I haven't been getting sick to my stomach like I had been last week, so I have been able to eat without becoming ill - thank goodness.
As for the lung transplant thing .. No I have not looked into that yet. I actually haven't even had it mentioned to me by my docs. It is strange. I have low PFTs, but overall feel unchanged, have never been on O2 (except for surgery recovery room) go in the hospital roughly once a year. Of course if I go in in a few weeks it will not be a year but ... in the past. The main problem I have is struggling with weight, but I have always had that problem so it is nothing new.
I have advair that I take as an inhaled med as well. They had me on several inhaled steroids until I was diagnosed with CFRD. After that they try to keep me off the steroids as much as possible unless necessary. The steroids send my blood sugar out of control and I have to take so much insulin to conteract that and inflammation my b.s being high can cause that it is as effective. I am resistant to doxycyclene, probably Cipro now for the time being after being on it for the month, Bactrim I take on occassions to help keep the MRSA under control, but not usually for the Psuedo. Levaquin is the other biggie that I am sensitive too, but had an allergic reaction a few years ago and they are hesitant to try it again unless absolutely necessary.
I also tried Rehab last year after y January hospitalization but went for months and left unchanged once my insurance ran out. They gave me exercises to do but nothing has vastly improved my breathing. Who knows. I am going to start walking the dog and try to make it a daily thing and see how that goes <img src="i/expressions/face-icon-small-smile.gif" border="0">. I can increase on that once I get at a good walking level.
I will be looking into some of the things that everyone mentioned and truly do appreciate the outlook and views you guys have offered.
Have a great day,
Lindsey
coltsfan715
New member
oops accidentally posted the same thing twice <img src="i/expressions/face-icon-small-happy.gif" border="0">.
Lindsey
Lindsey