CFF Fundraising

[anonymous]

I would like to know how many of you are involved in CF Fund-raising! It is very clear that many of you who post here have a strong will and are VERY determined!
So, are you involved in fighting this disease as well? I mean, are you involved with your local CF Foundation and do you raise funds to fight this disease? I know I do...in fact, my family has raised over $30,000 for our chapter. If you are not involved, this is a challenge for you to get involved <img src="i/expressions/face-icon-small-smile.gif" border="0"> PLEASE join me and our family in this fight!

 

[anonymous]

I would like to know how many of you are involved in CF Fund-raising! It is very clear that many of you who post here have a strong will and are VERY determined!
So, are you involved in fighting this disease as well? I mean, are you involved with your local CF Foundation and do you raise funds to fight this disease? I know I do...in fact, my family has raised over $30,000 for our chapter. If you are not involved, this is a challenge for you to get involved <img src="i/expressions/face-icon-small-smile.gif" border="0"> PLEASE join me and our family in this fight!

 

[jenhum]

i think it is awesome that you are so involved!!! i attend a big cf fundraiser in my city every year, and i have spoken at it a couple of times. though i really don't like speaking publicly about my cf, it sure helps raise more money! so i don't mind doing it. i am constantly amazed at the support of our extended family and friends, who give money and support the the cff whenever they can! good post though, i think it's a good reminder to get out there and do whatever we can b/c we all know how much research has already improved our lives!!! <img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[jenhum]

i think it is awesome that you are so involved!!! i attend a big cf fundraiser in my city every year, and i have spoken at it a couple of times. though i really don't like speaking publicly about my cf, it sure helps raise more money! so i don't mind doing it. i am constantly amazed at the support of our extended family and friends, who give money and support the the cff whenever they can! good post though, i think it's a good reminder to get out there and do whatever we can b/c we all know how much research has already improved our lives!!! <img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[kybert]

i go to the great strides walk and drag myself around the 3/5 km walk lol. id go to the anual cf ball but id probbaly end up spending more on a dress and shoes than the actual ticket. not many people are involved with fundraising here as the money never seems to go towards anything major. there also isnt enough funds left for upgrades and research after the money has been used to pay for staffing, advertising and other fundraising events. solution? raise more money. in a city that donates more to junior football leagues than needy charities, its easier said than done.

 

[kybert]

i go to the great strides walk and drag myself around the 3/5 km walk lol. id go to the anual cf ball but id probbaly end up spending more on a dress and shoes than the actual ticket. not many people are involved with fundraising here as the money never seems to go towards anything major. there also isnt enough funds left for upgrades and research after the money has been used to pay for staffing, advertising and other fundraising events. solution? raise more money. in a city that donates more to junior football leagues than needy charities, its easier said than done.

 

[EmilysMom]

My family, immediate and extended, has always been very supportive, emotionally and financially of Emily and CF. We have gotten away from fundraising as she has gotten older. We were very active when she was younger. She was a poster child for 6 years and we went all over the state all the time and participated in every CF function for those years. Her grandparents still donate part of their tax return every year to the CF Foundation and my brothers and sisters still donate when asked, but the Foundation in my state has gotten expensive! Tickets to the fundraisers here now have gotten so expensive that we can't afford to go the functions anymore. Example: The CF ball that we used to go to is now $200 per couple, Comedy Night is $75 per person, etc. Those ticket prices kind of put us out of being able to attend, so we still donate but don't attend the functions. <img src="i/expressions/brokenheart.gif" border="0">

 

[EmilysMom]

My family, immediate and extended, has always been very supportive, emotionally and financially of Emily and CF. We have gotten away from fundraising as she has gotten older. We were very active when she was younger. She was a poster child for 6 years and we went all over the state all the time and participated in every CF function for those years. Her grandparents still donate part of their tax return every year to the CF Foundation and my brothers and sisters still donate when asked, but the Foundation in my state has gotten expensive! Tickets to the fundraisers here now have gotten so expensive that we can't afford to go the functions anymore. Example: The CF ball that we used to go to is now $200 per couple, Comedy Night is $75 per person, etc. Those ticket prices kind of put us out of being able to attend, so we still donate but don't attend the functions. <img src="i/expressions/brokenheart.gif" border="0">

 

[JoAnn]

Thanks for the fundraising that you do. Our family has been able to raise between $13,000 and $20,000 a year for the past 6 years for my son's team for Great Strides and for our local stair climb. They are both run by the local CFF. Hopefully this is the info. that you were looking for.

 

[JoAnn]

Thanks for the fundraising that you do. Our family has been able to raise between $13,000 and $20,000 a year for the past 6 years for my son's team for Great Strides and for our local stair climb. They are both run by the local CFF. Hopefully this is the info. that you were looking for.

 

[anonymous]

My family and I participate every year. Over the last 3 years, we have raised over $50,000 just from our letter writing campaign! I'm also putting together a cookbook this year that will be sold at a fund raiser and future Great Strides walk. Our pulm has told us that the only thing keeping us from a cure is a big dollar sign. We can do it!!!

Carey

 

[anonymous]

My family and I participate every year. Over the last 3 years, we have raised over $50,000 just from our letter writing campaign! I'm also putting together a cookbook this year that will be sold at a fund raiser and future Great Strides walk. Our pulm has told us that the only thing keeping us from a cure is a big dollar sign. We can do it!!!

Carey

 

[Emily65Roses]

Yeah what my mom said, haha... and actually, recently a cute little thing I want to share. My Mike's parents were trying to sell their old minivan. They couldn't get what they wanted for it, so because of me, they're donating it to the CF Foundation.

 

[Emily65Roses]

Yeah what my mom said, haha... and actually, recently a cute little thing I want to share. My Mike's parents were trying to sell their old minivan. They couldn't get what they wanted for it, so because of me, they're donating it to the CF Foundation.

 

[midwestmama]

My husband and I were both active in raising money for CF years before we even knew each other. Neither of us had it or knew anyone that had it. I raised it with my cheerleading team and he did Great Strides walks way back when with friends for 'something to do'. How ironic when we found out our son had CF in May. We did Great Strides in Sept. In Dec my sister, dear friend and I are doing a bake sale during our town's historic Christmas event. My husband and I are also getting plans together to do a Poker Run on the Mississippi River next summer. We have talked with two sister casinos that are about 2 1/2 120 miles apart from each other and they are hopefully going to donate the prize money and specially priced packages for our participants. Then we will have a dinner and dance with other ways to raise money like raffles and silent auctions. If anyone has done this before and has some input, I would love to hear from you. You can email me at shellybutts11@hotmail.com with a note about CF in the subject line. Anyway, great topic. I would love to hear how others are raising money too. I can't sit on the sidelines for this one!!!!

Shelly

 

[midwestmama]

My husband and I were both active in raising money for CF years before we even knew each other. Neither of us had it or knew anyone that had it. I raised it with my cheerleading team and he did Great Strides walks way back when with friends for 'something to do'. How ironic when we found out our son had CF in May. We did Great Strides in Sept. In Dec my sister, dear friend and I are doing a bake sale during our town's historic Christmas event. My husband and I are also getting plans together to do a Poker Run on the Mississippi River next summer. We have talked with two sister casinos that are about 2 1/2 120 miles apart from each other and they are hopefully going to donate the prize money and specially priced packages for our participants. Then we will have a dinner and dance with other ways to raise money like raffles and silent auctions. If anyone has done this before and has some input, I would love to hear from you. You can email me at shellybutts11@hotmail.com with a note about CF in the subject line. Anyway, great topic. I would love to hear how others are raising money too. I can't sit on the sidelines for this one!!!!

Shelly

 

[anonymous]

It started with me and my friends doing the great stides walk (which we still do) but then I was like "I'm sick of the walk and I'm not into the black tie events so I started my own benefit. It's called the "Just Let Me Breathe" Benefit Concert for CF...it's a concert that features usually 3 detroit bands. My brothers band South Normal is always the headliner because it's named after their song "breathe." Last year was the first year and we sold out the 500 capacity place and raised nearly $9,000. This year we are moving to a bigger venue and my band (HELLEN) is playing..(one of our first big shows). There was a silent auction, a guitar was made especially for the night. This year our alternative station here in Detroit is running radio and and hosting it. I'm looking to take it on the road one day...

my new website will be www.letsrockcf.com which will give updates about the event
emily 22 pwcf from Detoit

 

[anonymous]

It started with me and my friends doing the great stides walk (which we still do) but then I was like "I'm sick of the walk and I'm not into the black tie events so I started my own benefit. It's called the "Just Let Me Breathe" Benefit Concert for CF...it's a concert that features usually 3 detroit bands. My brothers band South Normal is always the headliner because it's named after their song "breathe." Last year was the first year and we sold out the 500 capacity place and raised nearly $9,000. This year we are moving to a bigger venue and my band (HELLEN) is playing..(one of our first big shows). There was a silent auction, a guitar was made especially for the night. This year our alternative station here in Detroit is running radio and and hosting it. I'm looking to take it on the road one day...

my new website will be www.letsrockcf.com which will give updates about the event
emily 22 pwcf from Detoit

 

[anonymous]

It's really great to hear how everyone is involved - yeah! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Emily, good for you that you've started your own fund raising! I think it's important we all try to get creative and step out of the box to see how we can raise $ for this disease. Emily (Absinsorrow), that's really cool that your boyfriends' parents donated their van - - I wish more people knew about that!

Carey

 

[anonymous]

It's really great to hear how everyone is involved - yeah! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Emily, good for you that you've started your own fund raising! I think it's important we all try to get creative and step out of the box to see how we can raise $ for this disease. Emily (Absinsorrow), that's really cool that your boyfriends' parents donated their van - - I wish more people knew about that!

Carey