CFF Fundraising

anonymous

New member
I've never heard of that concert. If I did and still lived in Windsor I would go. I'm happy you got radio stations to support you. What stations?

Ashley 20w/cf
 

anonymous

New member
Ashley...our sponsor is 89X. They're going to run at least 15 radio ads for us and I think Holly is going to host it.
I've got a few friends from Windsor and we go over there quite a bit for Terra Cata pizza, have you been??? It's so good! Where do you live now??
Anyone out there from around Detroit?? I hope to see ya'll at the show.

Peace, love and rock n roll,
Emily 22 pwcf
 

cfgirl38

New member
I live in Birchrun between Flint and Saginaw. It sounds like a blast. I must not get that radio station here as I'v never heard of it. Hee. Hee. But I will look at your site for info! Eva
 

allie1

New member
To Emily.......my husband is a music producer/musician and he was going to try and get together a "show" of various local musicians to do a CF benefit show for the CF Foundation. He would love to talk to you to get some ideas and pointers since this will be the first one and he would hope to make it a yearly event. My daughter was just diagnosed 5 months ago. We are in NC. Would you mind emailing me or giving me your email address so he can ask you some questions? Thanks so much! My email is amyplymale@earthlink.net
 

anonymous

New member
We do an annual fundraiser called: SINGING FOR A CURE. Go to www.singingforacure.com for more information. We raised over $10,000 last year and we are going into our 5th year. Fundraising is hard work, but incredibly gratifying. If you are in the CT area and want to contribute, sponsor, or help out....please go to the site and contact us. Thank you.
 

anonymous

New member
Carey-$50,000 from a letter campaign is incredible!!! What is your secret? How many letters do you send out?

Whoo-Hoo to you!
 

Augustmoon

New member
My son was diagnosed in December '03 and I joined the Great Strides Commitee in January. I needed to do SOMETHING and I found that getting involved in the CFF was my way to fight it. I felt helpless and, yes, alone and needed to be around people who knew what I was going through. (So I guess it was good for many reasons!) I honestly don't know what I'd do without my "new family".
Our goal for the 2004 Great Strides walk was $30,000 (it's a small town) and we ended up raising over $52,000 (I raised somewhere between $9-10,000) with only a small number of walkers!! We made "65 Roses" bracelets, had a bake sale/garage sale, golf tournaments, etc. I encourage everyone to get out there and make a difference and fight this disease, because I have NO doubt in my mind that we will win!! <img src="i/expressions/face-icon-small-blush.gif" border="0">) www.fightforethan.com<img src="i/expressions/rose.gif" border="0">
 

anonymous

New member
Wow! You are all incredible. We found out our son had cf when I was 19 weeks pregnant with him on March 23rd 04. We did the Great Strides walk on May 16th and raised over 14,000 our first year! We are also going to try to do a wine tasting party at our house next year. Every little bit helps!!
 

anonymous

New member
<img src="i/expressions/face-icon-small-confused.gif" border="0">

I really don't know how to post here...but I am interested in finding out of the Cystic Fibrosis Foundation is supporting embryonic stem cell research to find a cure for this horrible disease. I have been financially supporting CFF for a long time...to the tune of many, many dollars, but I intend to discontinue supporting CFF if they are NOT using stem cell research, which promises so very much good to so many diseases. I am sure that other CF organizations are supporting and financing stem cell research for CF, but I don't know how to find out if the CF Foundation is doing that.

Is there anyone who can clue me in on this?

Thanks,
Allison
allison@stockley.us
 

anonymous

New member
Amanda
$52,00o is incredible. Congrats!! Do you hold these events leading up to Great Strides and then put the money towards it? Do you have lots of corporate sponsorship? What do you do to get others involved? Like these bracelets, who makes them and who buys them and do they raise alot of money. How long is your walk and do you have entertainemnt and things on the day? Do you get alot of knock backs or are most people supportive? I am from Australia and I am amazed at your success but would like to give things a go here. Do you have a successful letter writing campaign? Sorry for all the questions I just cant help but want to know if we can try similar and help fight this disease.
Jenni
 

anonymous

New member
Hello, I have just started to become involved with the CF foundation. My son was diagnosed @18 months old, that was almost three years ago. It was very hard for me to even think about the reality of his illness, let alone want to become involved in any fund raising. Several months ago I started making jewelry as a hobby and stress reliever. One evening I decided to make a CF bracelet, I have finished it and plan to use it to help raise money for the CF Foundation. Ihave given several to the CF clinic that my son goes to, and two of them are going on auction for my local CF Foundation's annual auction. The bracelet has swarovski crystals and "65" red glass beads. 100% of the profits go to the CF Foundation!!! If you are interested at all, or would be interested using them for your local chapter as a fund raiser, please email me at sheli_janik@hotmail.com and I will email you a picture and more detailed description. Thanks!!
 

jaime

New member
We do the Great Strides walk too. This year "Team Jaime" raised a ton of money and had over 100 walkers!! And its tons of fun!!
 

anonymous

New member
You are all awesome! NOW, if we could only get more parents of CF children, and CF kids/adults involved....what a difference it would make. It doesn't always involve attending the functions, because I know they can become expensive. What is does take is getting involved in the actual fundraising and sitting on the committees. It takes a lot of work, but if we all work together, and write a ton of letters to those who may donate (meaning all the businesses in your town) we WILL find a cure....I am SURE of that! I pray every day that my daughter (and all your kids) have a chance to WIN this disease!

p.s. if you have ANYTHING negative to say, please save it to yourself. It is NOT wanted here!!!!!!!!!<img src="i/expressions/rose.gif" border="0">
 

Emily65Roses

New member
Damn straight there's going to be a cure at somepoint. I fully believe that. It will be too late for some of us, but I'll hope it's in time for your daughter (to the last poster). Rock on, fundraising CFers/parents. <img src="i/expressions/rose.gif" border="0">
 

anonymous

New member
My daughter was diagnosed three years ago with cf. We sent out about 200 letters to our family and friends a few months after she was diagnosed. We were hoping to raise $5,000 for Great Strides. We received $21,500. The next year we received $29,000. This past year we received $48,000. So almost $100,000 in three years!!! We have been amazed with the support we have received. It can be challenging finding the time to write all of the thank you notes, but it is well worth it.
Sharon, mom to Sophia, 3 and Jack, 14 months both with cf
 

anonymous

New member
Sorry for the delayed reply. I haven't been on the board for a while. I worked very hard on my letter and we basically send it to anyone and everyone that we know. We also have my parents and husband's parents send the letter to their friends and family. We've raised over $50,000 through the course of 3 walks. If anyone's interested, I'd be happy to send you a copy of the letter we sent out last year. I'm always willing to ask for help in the cause, but I try to be careful with my wording. I never want people to feel obligated (you never know their financial situation) or uncomfortable. But, the cause is so dear to our hearts. So, we explain this in the letter. i.e. "it can be a little comfortable asking for your help every year, but this is why we do...." etc.... <img src="i/expressions/face-icon-small-smile.gif" border="0">

Carey
 

cfgirl38

New member
I would like it if you sent me a copy of your letter as I believe it's a great way to get people involved. My email address is sam001@charter.net Thanks! Eva
 

allie1

New member
I would also love to see a copy of your letter. My daughter was just diagnosed several months ago so this will be our first experiance with fundraising. I am planning to send out letters to everyone we know and I would love to have on to go by. Thanks. amyplymale@earthlink.net

Amy
 
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