Awwwww Sevenstars you are sweet! I think that is the first time I have ever been tagged an "expert" in anything! Too bad it's because of CFRD though. LOL
Hi Amy! Welcome to the board! I hope you find a lot of comfort here from some really great people. I know I have! (Welcome Shea! <img src="i/expressions/face-icon-small-happy.gif" border="0">) BTW Shea, I'd looove to see your biochem paper! (Hey everyone, Shea will be graduating from college very soon! Congrats!!!)
It is VERY good that Allie's docs have been watching her blood glucose levels at such a young age. I was diagnosed just after my 25th b-day. I KNOW now I had been suffering for years, but I had NO idea that CFRD even existed, so the tell-tale signs escaped me. Since I was untreated my CF health suffered. But, if CFRD is caught early and treated properly there shouldn't be much of an effect.
A flag went off in my head, since your daughter is sooo young. It is possible for Cystics to get Type 1 diabetes (different than CFRD), this happens at the same rate as the general population. There are several different, easy tests that can be done to figure out which it is. But I am not a medical professional, so don't take my word for it.
IF her blood work comes back high again, they will give her an oral glucose tolerance test to get a more accurate idea of how her blood sugars react after she eats/drinks carbohydrates. It is an easy test where they will prick her finger to get a tiny bit of blood to test her blood glucose levels at certain intervals after drinking a concoction that tastes like orange soda.
I have a blog about my life, CF and CFRD if you would like to check it out. PLEASE email me (or post on the board) if you have questions. Don't stress too much, you have us to lean on and although it seems overwhelming, we are here for you! You can learn from our mistakes, trials and tribulations, so please don't feel too overwhelmed.