cfrd

[anonymous]

Hi,
I am farily new to this site and was wondering how many of you have cfrd. I developed it 4 years ago and still am having trouble regulating my sugars. I take the pens, usually take about 5 needles a day. I'm not sure if it is the same everywhere but I take 12 units of N in the moring and 14 at night and 1 unit of H for every 10 carbs that I eat at meals. Is anyone on the pump? Do you find that it works better for you? Lately I have gotten a cold and my sugars seem to be extremly high no matter how much insulin I take. Does anyone else have that same problem when they get sick? Thankx for any input you can give me.

Lindsey 21wcf &cfrd

 

[anonymous]

i find that chewable vitamin e tablets help bring down my blood suger levels when they are high due to illness etc,my cfrd came as a side effect from taking steroid inhalers over the years,38 cfer

 

[LindseyRose]

Wow! Another Lindsey with cfrd! I am 23 and have been diabetic for almost 8 years now. Just last October I went on the pump and I love it!! It has seriously changed my life. I have a major sweet tooth so I ate stuff that I wasn't supposed to, plus I hated doing the shots. With the pump I can eat whatever I want without worrying about it and I only have to give myself a shot once every 3-4 days (just to insert the pump catheter). It is so much better than shots twice a day. My sugars have never been in more control. I am not as tired as I used to be and I have noticed that I have felt much healthier (CF wise) since being on the pump - most likely because my sugars are in control now. The only thing is I have to carb count now, but it sounds like you already do it. I would say that if you are thinking about the pump, Do it!

 

[anonymous]

hi, not to sound stupid but how did you find out you had cfrd? doctors? or did you have symptoms? i am a sugar nut..and i gt really dizzy when i don't have it..just wondering. thanks catherine

 

[dresapp]

Hi there
Im 23 and I have diabetes. I was diagnosed at 12. I take NPH 2 x a day and humalog as needed during the day. My sugars bounce around alot too. Im high than a few hours later Ill have a massive low. Because ppl with CF often have infections it causes sugars to go out of whack. Thats why its harder for us to control and there are studies being done that say that CF ppl might not metabolise the food we eat and insulin the same way as ppl without CF.
I was told if i could afford it to get the pump but I do not have insurance for it and I cannot afford it out of pocket as the supplies alone would cost me around $2000 a month here in Canada. But if your insurance will cover it, its worth looking into. Im also waiting for transplant so im often sick and I have liver disease too and that plays havoc with my sugars too.

Kris
23 pre xplant lungs and liver,

 

[anonymous]

hi kris, what kind on liver problems do you have? i have auto immune hep. i have had it for about 8 years..no idea how i got it..just wondering about you. is it cf related? are yo getting a liver transplant? catherine

 

[Lindsey]

Hey, I'm in canada too!
I am in New Brunswick, my doc said that it would be around $5000 for the pump, I think, but i didn't know the supplies were so expensive too. I am just getting tired of giving myself so many needles. Under my plan my drugs are partly coveraged but I have to pay 100% of the supplies, like strips and needles, stripes alone is about $100 a month, Do you have the same type of plan, where do you live? I also have the liver problems, I am on Ursole, 5 times a day. Something about liver ducts being blocked. Anyway I would really like to e-mail more if you wouldn't mind.
You can e-mail me at lindseythompson@hotmail.com

Lindsey

 

[Lindsey]

<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>hi, not to sound stupid but how did you find out you had cfrd? doctors? or did you have symptoms? i am a sugar nut..and i gt really dizzy when i don't have it..just wondering. thanks catherine<hr></blockquote>


I lost alot of weight in a short amount of time and had no energy. I slept all day and was completly exhausted all the time. I hadn't been in the hospital for 3 yrs before and kept putting off going to the doc because i knew he would put me in the hospital. I was only 17 and thought I could get better on my own. I was drinking massive amounts of liquids but was always thristy and my palms were dry. I had all the classic signs, I had to get up like 3 or 4 times a night to go pee. When i got admitted they diagnosed me on the first day. I use to be a candy lover and still am but have tried to cut back as much as possible.
Lindsey