CFRD

[megan6195]

thank you guys all SO much!! now i am not so upset about it after reading these. i talked to my doctor about this and how people who actually have CFRD told me that it's fine if you just compensate for whatever you eat with insulin. and they agreed and said sorry for not explaining it to me like they should have <img src="i/expressions/face-icon-small-smile.gif" border="0"> luckily i'm not at the point where i have to give myself insulin with every meal so if i get to that point i will definitely look into the insulin pump (i looked it up on Google and it seemed like a great thing) if it gets to that point because my docs said that it would be too soon to get one. so again, thank you so much RitaLSonnenberg, ej0820, PedsNP2007, tleigh, and cerulean!!!!!!!!!!!!!!!!!!!

 

[b12bc]

I do not have CFRD (I'm borderline though, my blood sugar is very inconsistent and shoots up occasionally, I can feel it when it does) but my sister did and she had an insulin pump. She did have to pay attention to what she ate and she kept a diet journal, but there were no restrictions or limitations. As CFers we're already used to paying attention to our food intake and how our bodies react to it. CFRD sounds like a hugely overwhelming and very scary diagnosis, but from my 3rd party experience it is much more easily managed than a lot of other CF related complications. Best of luck to you!

 

[b12bc]

I do not have CFRD (I'm borderline though, my blood sugar is very inconsistent and shoots up occasionally, I can feel it when it does) but my sister did and she had an insulin pump. She did have to pay attention to what she ate and she kept a diet journal, but there were no restrictions or limitations. As CFers we're already used to paying attention to our food intake and how our bodies react to it. CFRD sounds like a hugely overwhelming and very scary diagnosis, but from my 3rd party experience it is much more easily managed than a lot of other CF related complications. Best of luck to you!

 

[b12bc]

I do not have CFRD (I'm borderline though, my blood sugar is very inconsistent and shoots up occasionally, I can feel it when it does) but my sister did and she had an insulin pump. She did have to pay attention to what she ate and she kept a diet journal, but there were no restrictions or limitations. As CFers we're already used to paying attention to our food intake and how our bodies react to it. CFRD sounds like a hugely overwhelming and very scary diagnosis, but from my 3rd party experience it is much more easily managed than a lot of other CF related complications. Best of luck to you!

 

[ChristieLynn]

Hi everyone,

My names Christie and I am 20 years old with CF. I had a CFRD glucose test done a few days ago and am really scared for the results. If I do have CFRD, what is the process after diagnosis and how is it managed? I'm trying not to worry until i hear for sure but I'm just the type of person who likes to be prepared so figured i'd just ask. haha

thanks<img src="i/expressions/face-icon-small-smile.gif" border="0">

Christie

 

[ChristieLynn]

Hi everyone,

My names Christie and I am 20 years old with CF. I had a CFRD glucose test done a few days ago and am really scared for the results. If I do have CFRD, what is the process after diagnosis and how is it managed? I'm trying not to worry until i hear for sure but I'm just the type of person who likes to be prepared so figured i'd just ask. haha

thanks<img src="i/expressions/face-icon-small-smile.gif" border="0">

Christie

 

[ChristieLynn]

Hi everyone,
<br />
<br />My names Christie and I am 20 years old with CF. I had a CFRD glucose test done a few days ago and am really scared for the results. If I do have CFRD, what is the process after diagnosis and how is it managed? I'm trying not to worry until i hear for sure but I'm just the type of person who likes to be prepared so figured i'd just ask. haha
<br />
<br />thanks<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Christie

 

[TleighsHusband]

There is a lot of info out there on diabetes but as has been mentioned a number of times in the thread CFRD is different in some ways. Depending on how progressed it is will determine how it is managed. Tiffany was able to control it for a a number of years with just an oral drug but as it progressed then you switch to controlling it with insulin. You can either do it with shots or with a pump. Tiffany did shots for a year but then switched to the Ping pump because it gave her so much more control and versatility. She also didn't like poking herself so many times a day. Basically it is managed by checking your sugars often and then giving yourself the appropriate amount of insulin. If you can, try to go to an endocrinologist that knows something about CF as treatment is different with CFers when it comes to diet.

 

[TleighsHusband]

There is a lot of info out there on diabetes but as has been mentioned a number of times in the thread CFRD is different in some ways. Depending on how progressed it is will determine how it is managed. Tiffany was able to control it for a a number of years with just an oral drug but as it progressed then you switch to controlling it with insulin. You can either do it with shots or with a pump. Tiffany did shots for a year but then switched to the Ping pump because it gave her so much more control and versatility. She also didn't like poking herself so many times a day. Basically it is managed by checking your sugars often and then giving yourself the appropriate amount of insulin. If you can, try to go to an endocrinologist that knows something about CF as treatment is different with CFers when it comes to diet.

 

[TleighsHusband]

There is a lot of info out there on diabetes but as has been mentioned a number of times in the thread CFRD is different in some ways. Depending on how progressed it is will determine how it is managed. Tiffany was able to control it for a a number of years with just an oral drug but as it progressed then you switch to controlling it with insulin. You can either do it with shots or with a pump. Tiffany did shots for a year but then switched to the Ping pump because it gave her so much more control and versatility. She also didn't like poking herself so many times a day. Basically it is managed by checking your sugars often and then giving yourself the appropriate amount of insulin. If you can, try to go to an endocrinologist that knows something about CF as treatment is different with CFers when it comes to diet.

 

[TleighsHusband]

There is a lot of info out there on diabetes but as has been mentioned a number of times in the thread CFRD is different in some ways. Depending on how progressed it is will determine how it is managed. Tiffany was able to control it for a a number of years with just an oral drug but as it progressed then you switch to controlling it with insulin. You can either do it with shots or with a pump. Tiffany did shots for a year but then switched to the Ping pump because it gave her so much more control and versatility. She also didn't like poking herself so many times a day. Basically it is managed by checking your sugars often and then giving yourself the appropriate amount of insulin. If you can, try to go to an endocrinologist that knows something about CF as treatment is different with CFers when it comes to diet.

 

[TleighsHusband]

There is a lot of info out there on diabetes but as has been mentioned a number of times in the thread CFRD is different in some ways. Depending on how progressed it is will determine how it is managed. Tiffany was able to control it for a a number of years with just an oral drug but as it progressed then you switch to controlling it with insulin. You can either do it with shots or with a pump. Tiffany did shots for a year but then switched to the Ping pump because it gave her so much more control and versatility. She also didn't like poking herself so many times a day. Basically it is managed by checking your sugars often and then giving yourself the appropriate amount of insulin. If you can, try to go to an endocrinologist that knows something about CF as treatment is different with CFers when it comes to diet.

 

[TleighsHusband]

There is a lot of info out there on diabetes but as has been mentioned a number of times in the thread CFRD is different in some ways. Depending on how progressed it is will determine how it is managed. Tiffany was able to control it for a a number of years with just an oral drug but as it progressed then you switch to controlling it with insulin. You can either do it with shots or with a pump. Tiffany did shots for a year but then switched to the Ping pump because it gave her so much more control and versatility. She also didn't like poking herself so many times a day. Basically it is managed by checking your sugars often and then giving yourself the appropriate amount of insulin. If you can, try to go to an endocrinologist that knows something about CF as treatment is different with CFers when it comes to diet.

 

[musclemania70]

Most people freak when they hear that they have to start taking insulin (I did). And of course, its not like we need something ELSE to add to our daily routine. But honestly, if you handle your daily treatments and all other CF stuff responsibly, diabeties is simply an inconvenience. (in my opinion) CF is tough to handle but diabetes--once you have your sugars in control--(this takes a couple months to adjust)--it becomes something that is no big deal. I was told I could still eat anything as long as I take the appropriate insulin amounts. My last A1C was 5.9 so I know its possible to succeed with this. My one bit of advice is to always do the 2hr post prandial the first few months.

 

[musclemania70]

Most people freak when they hear that they have to start taking insulin (I did). And of course, its not like we need something ELSE to add to our daily routine. But honestly, if you handle your daily treatments and all other CF stuff responsibly, diabeties is simply an inconvenience. (in my opinion) CF is tough to handle but diabetes--once you have your sugars in control--(this takes a couple months to adjust)--it becomes something that is no big deal. I was told I could still eat anything as long as I take the appropriate insulin amounts. My last A1C was 5.9 so I know its possible to succeed with this. My one bit of advice is to always do the 2hr post prandial the first few months.

 

[musclemania70]

<p>Most people freak when they hear that they have to start taking insulin (I did). And of course, its not like we need something ELSE to add to our daily routine. But honestly, if you handle your daily treatments and all other CF stuff responsibly, diabeties is simply an inconvenience. (in my opinion) <br /><br />CF is tough to handle but diabetes--once you have your sugars in control--(this takes a couple months to adjust)--it becomes something that is no big deal. <br /><br />I was told I could still eat anything as long as I take the appropriate insulin amounts. My last A1C was 5.9 so I know its possible to succeed with this. My one bit of advice is to always do the 2hr post prandial the first few months.

 

[musclemania70]

PS--two other things.

1. Predisone ALWAYS HIGHLY AFFECTS SUGARS. (DR FAILED TO TELL ME THIS)

2. Regular exercise significantly affects blood sugars. (you need less insulin when you are regularly in an exercise program)

 

[musclemania70]

PS--two other things.

1. Predisone ALWAYS HIGHLY AFFECTS SUGARS. (DR FAILED TO TELL ME THIS)

2. Regular exercise significantly affects blood sugars. (you need less insulin when you are regularly in an exercise program)

 

[musclemania70]

PS--two other things.
<br />
<br />1. Predisone ALWAYS HIGHLY AFFECTS SUGARS. (DR FAILED TO TELL ME THIS)
<br />
<br />2. Regular exercise significantly affects blood sugars. (you need less insulin when you are regularly in an exercise program)

 

[Jeana]

On the line of exercise, this can be walking around a classroom a lot helping students, riding a 4-wheeler, etc.  Keep glucose tabs or candy or juice with you.  The lows are terrible.  You feel dizzy and lightheaded and can't think straight.  Just be prepared for unexpected lows even with ordinary daily activity.   <img src="i/expressions/face-icon-small-smile.gif" border="0">