CFRD

[ej0820]

hey guys!

This is a really long post, I'm sorry!

So I've had CFRD for about 4, almost 5, years now. I was diagnosed with it when I went in for IVs and my bloodwork showed that my sugars were in the 600s. After monitoring them and seeing that they would not come down on their own, I was educated on being diabetic and put on insulin. My sugars would sky rocket if I didn't take insulin with food from then on. This suggested to me (and my endocrinologist/CF doc) that my pancreas had very little insulin production, if any. That's typical in CFRD, I know. After getting sick of shots, I got an insulin pump and have had one for about 3 years. I LOVED my pump. It regulated my sugars so well.

Well...

Several months ago, I started getting low blood sugars constantly. A couple times a month turned into a couple times a week. I talked with the docs and we adjusted my pump settings to give me less insulin. Again, the lows came over and over. We adjusted my pump again. Then, a couple lows a week turned into a couple a day. My lows got bad, too. I stopped being able to recognize them and had everything happen from passing out or acting funny to having a full blown seizure. After my seizure we adjusted my pump AGAIN. A couple weeks after that, I had a low blood sugar and decided to take off my pump completely. I ate what I wanted through a weekend and would call my doc on monday. High sugars were better than low ones, I thought. I mean, I got to the point where my family was afraid to leave me home alone in fear of a blood sugar too low for me to take care of myself.

I have not used insulin in nearly 2 months and have not needed to! I call my doc weekly to review blood sugar numbers and every time they say, "Well, those are right in the target range, so keep doing what you're doing and call next week." Has anyone with CFRD had this happen?? My CF doc thinks it may be due to an abx or two that I'm on now that I wasn't before, but can that really be a side effect of abx? It's unexplainable! If I eat something really high in carbs or really sugary, I'll find my sugars to be in the high 200s (I've had a 300 twice since all this started), but hours later, my sugar will go back down and regulate itself. This has not happened since I became diabetic. Had I taken off my pump and eaten normally like this three years ago (even 1 year ago), my sugars would be in the 900s and not coming down. Weird.

Has anyone had this happen? Can anyone think of any way this could be explainable?

 

[ej0820]

hey guys!

This is a really long post, I'm sorry!

So I've had CFRD for about 4, almost 5, years now. I was diagnosed with it when I went in for IVs and my bloodwork showed that my sugars were in the 600s. After monitoring them and seeing that they would not come down on their own, I was educated on being diabetic and put on insulin. My sugars would sky rocket if I didn't take insulin with food from then on. This suggested to me (and my endocrinologist/CF doc) that my pancreas had very little insulin production, if any. That's typical in CFRD, I know. After getting sick of shots, I got an insulin pump and have had one for about 3 years. I LOVED my pump. It regulated my sugars so well.

Well...

Several months ago, I started getting low blood sugars constantly. A couple times a month turned into a couple times a week. I talked with the docs and we adjusted my pump settings to give me less insulin. Again, the lows came over and over. We adjusted my pump again. Then, a couple lows a week turned into a couple a day. My lows got bad, too. I stopped being able to recognize them and had everything happen from passing out or acting funny to having a full blown seizure. After my seizure we adjusted my pump AGAIN. A couple weeks after that, I had a low blood sugar and decided to take off my pump completely. I ate what I wanted through a weekend and would call my doc on monday. High sugars were better than low ones, I thought. I mean, I got to the point where my family was afraid to leave me home alone in fear of a blood sugar too low for me to take care of myself.

I have not used insulin in nearly 2 months and have not needed to! I call my doc weekly to review blood sugar numbers and every time they say, "Well, those are right in the target range, so keep doing what you're doing and call next week." Has anyone with CFRD had this happen?? My CF doc thinks it may be due to an abx or two that I'm on now that I wasn't before, but can that really be a side effect of abx? It's unexplainable! If I eat something really high in carbs or really sugary, I'll find my sugars to be in the high 200s (I've had a 300 twice since all this started), but hours later, my sugar will go back down and regulate itself. This has not happened since I became diabetic. Had I taken off my pump and eaten normally like this three years ago (even 1 year ago), my sugars would be in the 900s and not coming down. Weird.

Has anyone had this happen? Can anyone think of any way this could be explainable?

 

[ej0820]

hey guys!
<br />
<br />This is a really long post, I'm sorry!
<br />
<br />So I've had CFRD for about 4, almost 5, years now. I was diagnosed with it when I went in for IVs and my bloodwork showed that my sugars were in the 600s. After monitoring them and seeing that they would not come down on their own, I was educated on being diabetic and put on insulin. My sugars would sky rocket if I didn't take insulin with food from then on. This suggested to me (and my endocrinologist/CF doc) that my pancreas had very little insulin production, if any. That's typical in CFRD, I know. After getting sick of shots, I got an insulin pump and have had one for about 3 years. I LOVED my pump. It regulated my sugars so well.
<br />
<br />Well...
<br />
<br />Several months ago, I started getting low blood sugars constantly. A couple times a month turned into a couple times a week. I talked with the docs and we adjusted my pump settings to give me less insulin. Again, the lows came over and over. We adjusted my pump again. Then, a couple lows a week turned into a couple a day. My lows got bad, too. I stopped being able to recognize them and had everything happen from passing out or acting funny to having a full blown seizure. After my seizure we adjusted my pump AGAIN. A couple weeks after that, I had a low blood sugar and decided to take off my pump completely. I ate what I wanted through a weekend and would call my doc on monday. High sugars were better than low ones, I thought. I mean, I got to the point where my family was afraid to leave me home alone in fear of a blood sugar too low for me to take care of myself.
<br />
<br />I have not used insulin in nearly 2 months and have not needed to! I call my doc weekly to review blood sugar numbers and every time they say, "Well, those are right in the target range, so keep doing what you're doing and call next week." Has anyone with CFRD had this happen?? My CF doc thinks it may be due to an abx or two that I'm on now that I wasn't before, but can that really be a side effect of abx? It's unexplainable! If I eat something really high in carbs or really sugary, I'll find my sugars to be in the high 200s (I've had a 300 twice since all this started), but hours later, my sugar will go back down and regulate itself. This has not happened since I became diabetic. Had I taken off my pump and eaten normally like this three years ago (even 1 year ago), my sugars would be in the 900s and not coming down. Weird.
<br />
<br />Has anyone had this happen? Can anyone think of any way this could be explainable?

 

[mamerth]

I wish I had answers for you but I am new to the CFRD. I had sugars in the 200's during my last tune up. They had me on 3 shots of insulin a day. When I got home I started having trouble with low blood sugars on the insulin. I am not doing insulin anymore.

I am on a strict, carb counting diet. I have eliminated all sugary foods from my diet. Now only once in a blue moon do I get sugars over 150 pre meal. I have struggled with low blood sugars more than high sugars.

 

[mamerth]

I wish I had answers for you but I am new to the CFRD. I had sugars in the 200's during my last tune up. They had me on 3 shots of insulin a day. When I got home I started having trouble with low blood sugars on the insulin. I am not doing insulin anymore.

I am on a strict, carb counting diet. I have eliminated all sugary foods from my diet. Now only once in a blue moon do I get sugars over 150 pre meal. I have struggled with low blood sugars more than high sugars.

 

[mamerth]

I wish I had answers for you but I am new to the CFRD. I had sugars in the 200's during my last tune up. They had me on 3 shots of insulin a day. When I got home I started having trouble with low blood sugars on the insulin. I am not doing insulin anymore.
<br />
<br />I am on a strict, carb counting diet. I have eliminated all sugary foods from my diet. Now only once in a blue moon do I get sugars over 150 pre meal. I have struggled with low blood sugars more than high sugars.

 

[Havoc]

I have heard of atypical diabetes resolving on it's own, but I could not find anything on the spontaneous resolution of CFRD. I just did a cursory search, I'll keep looking.

 

[Havoc]

I have heard of atypical diabetes resolving on it's own, but I could not find anything on the spontaneous resolution of CFRD. I just did a cursory search, I'll keep looking.

 

[Havoc]

I have heard of atypical diabetes resolving on it's own, but I could not find anything on the spontaneous resolution of CFRD. I just did a cursory search, I'll keep looking.

 

[AnD]

What antibiotic are you on? If it is for inflamation, perhaps that is the clue? Inflamation can make insulin resistance increase, and I know that for me, more inflamation = higher blood sugars. I hope your CFRD stays away! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[AnD]

What antibiotic are you on? If it is for inflamation, perhaps that is the clue? Inflamation can make insulin resistance increase, and I know that for me, more inflamation = higher blood sugars. I hope your CFRD stays away! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[AnD]

What antibiotic are you on? If it is for inflamation, perhaps that is the clue? Inflamation can make insulin resistance increase, and I know that for me, more inflamation = higher blood sugars. I hope your CFRD stays away! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Giggles]

I was dx with CFRD in 2005 but still pretty mild only did 10 units of lantus at bed and around 3-5 units of novolog with meals. well since starting colistin and cayston I am not needing as much lantus only 7 units at bed and only 1-3 units of novolog with meals. NOt sure what the deal is and why. I still get lows like I have since being dx'd but my lows are not as bad or as often. My CFRD is so weird, it changes all the time and I just sorta guess with units to novolog to take with meals. I am usually right on and stay within 115-185 2 hours after meals. I strive to just be under 200 after meals cause if I take all this novolog with meals then I run into too many lows during the day. I am super active and I think that causes issues too cause that makes the blood sugar drop but I just carry juice around with me all the time, in case my sugar drops. I find CFRD to be a TOTAL pain in the ^%$%^.

Good luck! Glad to hear you are not needing as much insulin. I think is cyclical for some reason......


Jennifer 38 with CF and CFRD

 

[Giggles]

I was dx with CFRD in 2005 but still pretty mild only did 10 units of lantus at bed and around 3-5 units of novolog with meals. well since starting colistin and cayston I am not needing as much lantus only 7 units at bed and only 1-3 units of novolog with meals. NOt sure what the deal is and why. I still get lows like I have since being dx'd but my lows are not as bad or as often. My CFRD is so weird, it changes all the time and I just sorta guess with units to novolog to take with meals. I am usually right on and stay within 115-185 2 hours after meals. I strive to just be under 200 after meals cause if I take all this novolog with meals then I run into too many lows during the day. I am super active and I think that causes issues too cause that makes the blood sugar drop but I just carry juice around with me all the time, in case my sugar drops. I find CFRD to be a TOTAL pain in the ^%$%^.

Good luck! Glad to hear you are not needing as much insulin. I think is cyclical for some reason......


Jennifer 38 with CF and CFRD

 

[Giggles]

I was dx with CFRD in 2005 but still pretty mild only did 10 units of lantus at bed and around 3-5 units of novolog with meals. well since starting colistin and cayston I am not needing as much lantus only 7 units at bed and only 1-3 units of novolog with meals. NOt sure what the deal is and why. I still get lows like I have since being dx'd but my lows are not as bad or as often. My CFRD is so weird, it changes all the time and I just sorta guess with units to novolog to take with meals. I am usually right on and stay within 115-185 2 hours after meals. I strive to just be under 200 after meals cause if I take all this novolog with meals then I run into too many lows during the day. I am super active and I think that causes issues too cause that makes the blood sugar drop but I just carry juice around with me all the time, in case my sugar drops. I find CFRD to be a TOTAL pain in the ^%$%^.
<br />
<br />Good luck! Glad to hear you are not needing as much insulin. I think is cyclical for some reason......
<br />
<br />
<br />Jennifer 38 with CF and CFRD

 

[Solo]

I've certainly never heard of CFRD spontaneously "getting altogether better." Even if you make sure you do everything right, you still cannot predict how your CFRD will react. I think mine has greatly improved, I used to require a huge dose of Lantus, now I only take insulin to cover for meals, when I do not eat, I don't require any insulin. That works out great for me, because if I don't eat lunch at work, I can work hard and not have to worry about low blood sugars, or if its really slow, and I'm hardly exerting myself, I don't have to worry about high numbers.

I notice you said you have not used insulin in 2 months and not needed to, then you said that when you eat a lot of sugary food, it goes up to 200 or even 300. This is most definitely not good! A normal human whose pancreas secretes insulin does not have numbers like these! Maybe you can take a unit or 2 of Novolog per meal. I notice Erin that you're in your 20s. When you're at that stellar age, be extra sure to take care of your body, because you never get to be in your 20s again. And when you're older, you're gonna wish you took that extra shot, even if it's a pain.

 

[Solo]

I've certainly never heard of CFRD spontaneously "getting altogether better." Even if you make sure you do everything right, you still cannot predict how your CFRD will react. I think mine has greatly improved, I used to require a huge dose of Lantus, now I only take insulin to cover for meals, when I do not eat, I don't require any insulin. That works out great for me, because if I don't eat lunch at work, I can work hard and not have to worry about low blood sugars, or if its really slow, and I'm hardly exerting myself, I don't have to worry about high numbers.

I notice you said you have not used insulin in 2 months and not needed to, then you said that when you eat a lot of sugary food, it goes up to 200 or even 300. This is most definitely not good! A normal human whose pancreas secretes insulin does not have numbers like these! Maybe you can take a unit or 2 of Novolog per meal. I notice Erin that you're in your 20s. When you're at that stellar age, be extra sure to take care of your body, because you never get to be in your 20s again. And when you're older, you're gonna wish you took that extra shot, even if it's a pain.

 

[Solo]

I've certainly never heard of CFRD spontaneously "getting altogether better." Even if you make sure you do everything right, you still cannot predict how your CFRD will react. I think mine has greatly improved, I used to require a huge dose of Lantus, now I only take insulin to cover for meals, when I do not eat, I don't require any insulin. That works out great for me, because if I don't eat lunch at work, I can work hard and not have to worry about low blood sugars, or if its really slow, and I'm hardly exerting myself, I don't have to worry about high numbers.
<br />
<br />I notice you said you have not used insulin in 2 months and not needed to, then you said that when you eat a lot of sugary food, it goes up to 200 or even 300. This is most definitely not good! A normal human whose pancreas secretes insulin does not have numbers like these! Maybe you can take a unit or 2 of Novolog per meal. I notice Erin that you're in your 20s. When you're at that stellar age, be extra sure to take care of your body, because you never get to be in your 20s again. And when you're older, you're gonna wish you took that extra shot, even if it's a pain.